1 year anniversary of my sudden paralysis. When my life changed forever. #MeningealCyst #TarlovCyst #SuddenParalysis #SpineSurgery #Neurosurgery
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#SuddenParalysis
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Almost a year out and I’m trying to pick up the pieces of my life from before I was paralyzed. Only to realize there’s not as much life to time back too. Things and people, moved on without me. #NEISvoid #Disability #MeningealCyst #SuddenParalysis
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Trying to deconstruct the internal ableism that tells me I’m a burden to my family. Trying to learn a new way to live now with my limitations. Grieving what my life once was. Celebrating it’s not worse. Fearing it will be. I’m…tired. #Spoonie #hEDS #MeningealCyst #SuddenParalysis #PartialParalysis
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What else is happening with my body that I don’t understand?
I start PT this week finally. And I sent off my cheek swabs to the geneticist so I should get some answers in the next 2-3 weeks.
#ChronicIllness #ChronicPain #SuddenParalysis #NEISvoid #DisabilityLife #RareDisease
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Happy Tarlov (and Meningeal) Cyst Awareness Day!!! 🦓🦓🦓🦄🦄🦄 #TarlovCyst #RareDisease #Spine #SpineSurgery #SuddenParalysis #CaudaEquinaSyndrome
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Struggling with depression and melancholy after my sudden paralysis. It’s been since March 13th, but I just can’t seem to shake myself out of this funk. #MentalHealth #SuddenParalysis
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I both want to do things, and want to do nothing. I have no stamina and it’s depressing for things to be so difficult when they used to be so easy. #ChronicIllness #ChronicPain #SuddenParalysis
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Followed up with gastro for bloating, constipation and neurogenic bowel. They prescribed me new meds which have been great except now I have bloating, neurogenic bowel, and diarrhea. 🙃 #ChronicIllness #SuddenParalysis #ChronicPain #MeningealCyst
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MRI black and white photo of an 8.8cm meningeal cyst
The massive, 8.8cm meningeal cyst that caused my sudden paralysis on March 13th, 2025. Grateful for Dr. Frank Feigenbaum who removed it on March 28th, and gave me a chance at recovery. #MeningealCyst #SuddenParalysis #ChronicPain #SemiParesis #RareDisease #Disability
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In this Chicago Med scene, a doctor collapses mid-surgery, not from stress or exhaustion, but something far more unexpected Subscribe to read more on www.pouringpotions.com
#ChicagoMed #MedicalDrama #ParalysisTick #Neurotoxins #SuddenParalysis #HealthAwareness #MedicalReels
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The first group of neurologists I saw said my cyst was “inoperable” and suggested losing weight sometimes takes pressure off of the nerves the cyst was pushing on which could improve my symptoms. 😒 #MeningealCyst #ChronicIllnessCommunity #ChronicPain #SuddenParalysis
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