FDA leader and rare‑disease family recount decades‑long transplant journey, living‑donor rescue and caregiver toll A guest at the FDA's Rare Disease Week town hall described long delays to diagnosis, two liver transplants, experimental treatments, and family caregiving that culminated in their son serving as a living donor for a sibling.

A family's harrowing journey through rare disease, liver transplants, and the ultimate sacrifice of a son to save his sibling reveals the hidden struggles of caregivers and patients alike.

Learn more here

#US #TransplantAwareness #RareDisease #HealthCare #CitizenPortal #CaregiverSupport

Organ donation truly is the gift of life — especially for those living with end-stage renal disease.
I share why this matters to me and what it really means in a short video.

🎥 NielFlamm.com → Videos → End Stage Renal Disease

#OrganDonation #GiftOfLife #TransplantAwareness

How One Babys Heart Transplant Created a Special Bond with Her Donors Family A Heartfelt Connection: How a 3-Week-Old Baby's Heart Transplant Led to a 'Donor Mom' Relationship 14 Years Later In a

14 Years Later How a Donor Family Became Part of Our Familys Story
#hearttransplant #organtransplant #donorlove #donationstory #organrecipient #organfamilies #life-savingdonation #transplantjourney #transplantawareness #NationalDonateLifeMonth #healthcareheroes #donorsavealife #transplantcommunity

Transplant Patient Journey around Infectious Diseases

Transplant recipients face higher infection risks, this free webinar equips you to stay informed and empowered 💪

🗓️ 24 April at 17:30
📍 Online + multilingual subtitles
🎙️ Hosted by ESOT & top patient advocates

#HealthJourney #TransplantAwareness #PoweredByESOT
Learn more & register⤵️

Transplant Patient Journey around Infectious Diseases

𝗡𝗲𝘄 𝗘𝗦𝗢𝗧 𝗪𝗲𝗯𝗶𝗻𝗮𝗿: 𝗧𝗿𝗮𝗻𝘀𝗽𝗹𝗮𝗻𝘁 𝗣𝗮𝘁𝗶𝗲𝗻𝘁 𝗝𝗼𝘂𝗿𝗻𝗲𝘆 𝗮𝗿𝗼𝘂𝗻𝗱 𝗜𝗻𝗳𝗲𝗰𝘁𝗶𝗼𝘂𝘀 𝗗𝗶𝘀𝗲𝗮𝘀𝗲𝘀
24 April 2025 | 17:30–18:30 CEST | ESOT Virtual

💻 Online + subtitles in your language
🎙Penilla Gunther, Fiona Loud, Fernanda Ortiz, William Scott
#TransplantAwareness #InfectiousDiseases #PatientAdvocacy

Liver cancer awareness. Please follow for my journey 💚🍀
#cancer #cirrhosis #organdonation #wedorecover #sobreity #cancersucks #transplantawareness #transplantwaiting

Waiting on a liver transplant. I have stage 4 cirrhosis. And HCC (Liver Cancer). I'm "too healthy" to be listed higher until cancer points kick in June. I've had cancer a year. #transplantawareness #organdonation #cancersucks #cirrhosisawareness #wedorecover

Follow me for more of my liver transplant journey! ❤️
#Cancersucks #wedorecover #fdt #liverhealth #organdonation #transplantawareness

My life in a nutshell.
Amateur Cheesecakes
My family
Liver cancer ribbon
Hippie Vibes all day
#makeitcount #transplantawareness #organdonationsaveslives #cheesecake #hippie #peace #love