Switched our family’s DIY Loop setup to GitHub Browser Build — fewer rebuild headaches and smoother updates for everyone who helps care for our boys. Wrote about it here:
web.erdella.com/a-more-manag...
#WeAreNotWaiting #DIYLoop #T1D #Loop
I can now say that both #xdrip and #AndroidAPS work perfectly well on #GrapheneOS, even with battery saver turned on.
#t1d #t1diabetes #WeAreNotWaiting
Anyone tried using #xdrip and/or #AndroidAPS and/or official #Dexcom apps on #GrapheneOS and can comment whether they work or not?
#AskFedi #t1d #t1diabetes #WeAreNotWaiting
Welp. #AndroidAPS now contains code generated by #Claude
#WeAreNotWaiting #t1diabetes #LifeWithDiabetes
My spoons/marbles/spell slots today/this week have been largely consumed by "my phone decided to stop being compatible with stuff helping keep me alive".
#LifeWithDiabetes #WeAreNotWaiting
Sigh. Debugging sensor connectivity issues (the one in my arm, helping keep me alive).
Change a setting.
Wait 5 minutes for another attempt to communicate with sensor.
Change a setting.
Wait 5 minutes.
Change a setting.
Reboot.
Wait 10 minutes, because after reboot first time communication will […]
Hey people #SelfHosting your #NightScout instance! What do you use, how do you like it? Do you do backups of it?
I'm talking to someone with a kid with #type1diabetes and they're interested in hosting their own, but they don't have that much experience wrangling computers to do their bidding. I […]
Hey people #SelfHosting your #NightScout instance! What do you use, how do you like it? Do you do backups of it?
I'm talking to someone with a kid with #type1diabetes and they're interested in hosting their own, but they don't have that much experience wrangling computers to do their bidding. I […]
Exciting news! Dana-i insulin pumps are now possible to get in #Poland!
They're among the best supported by #AndroidAPS. They're still Fucking Expensive (~16k PLN, about two average monthly salaries before taxes, you pay full price), but they're here!
#WeAreNotWaiting #diabetes #t1d #t1diabetes
On that note: #WeAreNotWaiting #NotWaiting
cc: @projectex.me 🌱
#DVAM #DVAM2025
@diabetech.bsky.social newest video about the Ai food search capability in #DIYLoop is a great way to start the week. While watching the video I was able to update my Loop code in Github and build the customization directly to my phone. Amazing how far we have come. #WeAreNotWaiting
Thinking of switching to a commercial Automated Insulin Delivery system for my #type1diabetes after 7 years of open source #DIYAPS so figured I would take stock of some of the helpful features I will miss. This is just the tip of the iceberg. #WeAreNotWaiting myartificialpancreas.net/2025/08/18/w...
t3n: Open-Source: Automatisierte Insulinzufuhr der Marke Eigenbau – und was die Medizin dazu sagt t3n.de/news/open-so...
#WeAreNotWaiting #GoodNews
t3n: Open-Source: Automatisierte Insulinzufuhr der Marke Eigenbau – und was die Medizin dazu sagt t3n.de/news/open-source-projekt...
#WeAreNotWaiting #GoodNews
The Warm Days are here, so I guess by now the experiment is conclusive: mixing 1:1 #insulin #FIASP with something else (in my case, liprolog) still gives you faster action, but generally no site blockages during the 3-4 days I keep the site and tubing. Pure fiasp could result in a blockage […]
Glucose level graph showing near non-diabetic levels of adherence to the target glucose value.
Bloody hell, y'all!
#t1d #AAPS #OpenAPS #WeAreNotWaiting
Commercial or DIY artificial pancreas: what’s the best choice for T1D? A new study compared the effectiveness, safety, and user experience of two types of systems: commercials vs. DIY.
💡 Check out our latest blog to learn more about the study findings!
#wearenotwaiting #DIYAID #type1diabetes #T1D
iOS and Android development experience for newbies via @danamlewis.bsky.social
#wearenotwaiting #belikelight
diyps.org
Thrilled to be attending #ATTD2025 this year in person as a #dedoc° voice. ❤️🦄I'll be tweeting live from the conference & will share what I learn through my blog & the #dedoc° blog. If you'll be there & would like to connect, pls reach out. @dedocORG #WeAreNotWaiting
Is there a trans version of the rallying cry #WeAreNotWaiting?
Reading about how people with #t1diabetes and ADHD typically have higher hba1c and worse glucose control than those without (having grown up as one of these people can confirm) and thinking about how much DIY looping #wearenotwaiting has made a normal life possible for me
While I am not T1D, my daughter is. openaps.org has been a promising concept for many years #WeAreNotWaiting. Not a cure, but at least an option
It was the summer of 2012 and Type 1 diabetes knew no cure -- but it had not yet faced off with Jonathon Braxton. #t1d #type1diabetes #wearenotwaiting #bigpharmasucks
It's the summer of 2012 and Type 1 Diabetes knows no cure --- but it had not yet faced off with Jonathon Braxton. #t1d #typeonediabetes #curetd1d #wearenotwaiting
A screenshot of the hybrid closed loop app called Trio
Today marks a decade of living with #Type1Diabetes
10 years in I remain thankful to my family, the #NHS and the amazing #WeAreNotWaiting gang who make it possible for me to use the open-source Hybrid Closed Loop called Trio to help keep my blood sugar levels mostly in range
❤️ this! Especially true for patient-led research like in diabetes. There’s a great example in the #wearenotwaiting movement and DIYPS. @danamlewis.bsky.social is unaffiliated and doing important research published on her own and in collaboration w academic scientists!
Bugfix Release 3.3.1
Thanks to all developers of #AndroidAPS #AAPS and the #wearenotwaiting community! #t1d #closedloop
We can get to the cure faster.
We just need to be.
more smarter.
less political.
more focused.
less greedy.
More or less-we need a Jon Braxton
#Type1Diabetes #T1D #hope #type1diabetic #wearenotwaiting #type1lookslikeme #diabetessucks #beyondtype1 #t1d #t1diabetic #type1diabetesawareness #t1dstrong
… #WeAreNotWaiting movement is rooted in patients wrestling access to their diabetes data from closed systems.
Small-scale RCTs have shown that the original oref1 algorithm is comparable to even the most advanced commercial algorithms currently on the market, and we are STILL not waiting, and…
I use Loop (www.dddiaz.com/post/loop/) to help manage my Diabetes. It is incredible that not only is it an open source project, it is now being included in the diabetes standard of care!
diabetesjournals.org/care/article...
#T1D #diabetes #wearenotwaiting #loop #opensource