"And forget being excited about plans, about working on my life, the lofty plans and ideals are gone; I’m suddenly just pushing through life again…struggling to do the day-to-day minimum. Back to basics." #Fibromyalgia #Flare #WhatIKnowIsReal
"Most nights I would be so exhausted, I would need to go through maybe a couple #sleep cycles on the couch, often around three hours, just to be able to get up and go to my own bed." #Fibromyalgia #WhatIKnowIsReal
#ChronicFatigue "For many of the fifteen years I’ve lived with #fibromyalgia, especially the early years, this tiredness wasn’t alleviated by any amount of sleep and rest…not any amount I was able to get anyways." #WhatIKnowIsReal
#Fibromyalgia "...like the athlete running the marathon, my mental game, my incredibly strong mind, IS getting me somewhere. And I won’t be quitting." #WhatIKnowIsReal
"If I am controlling my #fibromyalgia symptoms through my own lifestyle choices, it can’t be taken away from me." #WhatIKnowIsReal
"I wouldn’t have chosen to have #fibromyalgia, but I can’t deny I have a resolute RESILIENCE and a mental CLARITY, with which to stare down anything in life I need to, that I feel GRATEFUL for." #WhatIKnowIsReal
"It seems so simple...it SHOULD be simple...your body hurts, hmm, what do you do? I have #fibromyalgia…I work on #stress.” #WhatIKnowIsReal
"Yes, after over fifteen years of living with #fibromyalgia and no matter how many times a “bad” #flare up happens to me, I get jarringly worried at first…upset and unnerved as seriously scary symptoms set in." #WhatIKnowIsReal
"Throughout my whole adult life, pretty much, working out has been my medication of choice. I haven’t needed to read the literature on it, nor look up the science behind it…I can just tell what it does for me.” #Depression #WhatIKnowIsReal
"In fact, having #fibromyalgia and having SOMEONE ELSE tell ME to be positive would pretty much elicit the exact opposite...I’m pretty sure I’d be far from positive in my response to them!" #WhatIKnowIsReal
"And yes, #fibromyalgia certainly likes to (try to) keep slapping us back down again and “keep us in our place” when we step off our fibromyalgia “tightrope”…but we can’t let that place be nonexistent." #WhatIKnowIsReal
"If I am controlling my #fibromyalgia symptoms through my own lifestyle choices, it can’t be taken away from me." #WhatIKnowIsReal
“Everything #fibromyalgia revolves around #sleep…got a bit…not enough…need more…need too much…can’t sleep…can’t stay awake…can’t wait to sleep…it’s never enough…” #WhatIKnowIsReal
“So I didn’t know many things about fibromyalgia when I was first diagnosed…AND I’M GLAD.” #WhatIKnowIsReal
#FibroFog "And speaking of old age, as I watch my eighty-six and ninety-year-old parents struggle with memory problems, it occurs to me that I’ve had a lot more in common with them in that department, than my own peers..." #WhatIKnowIsReal
"I don’t know about anyone else, but I need to feel this…that I can do something that makes a difference!
So. I have #fibromyalgia. I work on #stress." #WhatIKnowIsReal
“If I could go back and tell my early #fibromyalgia self to work on just one thing...work on getting restorative sleep." #WhatIKnowIsReal
”I’m trying to NOT focus on it…in fact, I try to focus on everything but it…my gaze is outward on life around me and not inward on my #fibromyalgia.” #WhatIKnowIsReal
"…have I overdone it…lost control…pushed too far…can I “get back”?
This is my #fibromyalgia…at it’s worst…the “flare up” that everyone dreads…a really bad flare up." #WhatIKnowIsReal
"Right from the start I decided I’d rather do things with pain and exhaustion than not do them at all." #Fibromyalgia #WhatIKnowIsReal
#Fibromyalgia "I had this debilitating health condition, which overruled everything in my life, every day, and my doctor never even mentioned it when assessing my overall health for over 10 years." #WhatIKnowIsReal
"Rebuilding has been a hard fought for long term process…a short-term pain for long-term gain type of process…but a process of making good solid unmistakable steady endgame progress. And I thank my lucky stars that I persisted." #WhatIKnowIsReal
#Fibromyalgia and #Sleep ..."Finally(!) made some changes...just diligently kept at it...I guess it has happened so very gradually that I wasn’t noticing, but awhile back I suddenly realized that my chronic fatigue is now largely gone!" #WhatIKnowIsReal
#Fibromyalgia and #Stress ...“I always realize that, more often than not, it’s not the actual circumstances or events going on in my life that are causing me the stress…the stress is coming from HOW I’M THINKING ABOUT THEM.” #WhatIKnowIsReal
#Fibromyalgia and #Depression ..."Fibromyalgia is absolutely unrelenting in this; the fibromyalgia battle, it seems, is as much mental as it is physical." #Hope #WhatIKnowIsReal
#FibroFog …"...annoying…the small day-to-day things...that my previous sharp memory ALWAYS knew…now, just gone…until someone mentions them again, often I remember, sometimes I still don't." #WhatIKnowIsReal
“So it seems to me if I totally listened to the signals my body was sending and obliged...well, I'd never get out of bed...I'd never do anything! (None of us with #fibromyalgia would.)" #WhatIKnowIsReal
"#Fibromyalgia is a tough battle, a daily onslaught of physical and mental challenges. And it’s complicated.
It’s vicious cycle after vicious cycle…that’s what makes it so difficult to manage." #WhatIKnowIsReal
"I believe that restorative #sleep SAVES ME…getting it is what I need to do. If I could go back and tell my early #fibromyalgia self to work on just one thing, it would be to work on getting restorative sleep." #WhatIKnowIsReal
