#cSLE "In children, high-quality evidence is lacking, and the management of #lupus nephritis is largely established based on data derived from adults or from cohort studies"

📰 Editorial: Is It Time to Change Our Approach to to Childhood Lupus Nephritis? Journal of the American Society of Nephrology

Drs. Linda Hiraki and Bonnie Bermas discuss applying 2025 SLE Guidelines to #cSLE

⭐️Peds specific GC dosing: GCs impact physical appearance ➡️ self-identity, mood
⭐️ Mental health screening is 🔑
⭐️Impact on growth
⭐️Monitor school attendance/performance
⭐️Transition

#ACR25 #ACRambassador #pedsrheumsky

💡 A fantastic October to explore childhood-onset lupus and get involved in the discussion! #cSLE #lupus #paediatric Coming-up events:

☑️ Thur, 16 Oct | 13:00–15:00 CEST, JIR Academy

☑️ Tue, 21 OCT | 12:00 CEST, PrES School

☑️ Sat, 25 OCT | 9:30-13:00 CEST, ENCA Network Event

Exciting week ahead in Helsinki for #PReS2025! 🇫🇮
First up it’s the young investors meeting!
Fantastic science and a privilege to be on the organising committee of #PReSEMERGE
An @arrdept-ucldom.bsky.social takeover later for the #cSLE session with @junjie-peng.bsky.social @heather--cross.bsky.social

How ACR Volunteers Educate School Nurses About Childhood-Onset Lupus - The Rheumatologist The ACR’s SHOP initiative partners pediatric rheumatologists & school nurses to raise cSLE awareness & better support students living with lupus.

Great project #support ⭐ #lupus #cSLE

'How ACR Volunteers Educate School Nurses About Childhood-Onset Lupus'
www.the-rheumatologist.org/article/how-...

Next generation sequencing analysis reveals complex genetic architecture of childhood-onset systemic lupus erythematosus Objectives Our current understanding of the genetic architecture of childhood-onset SLE (cSLE) is limited by a dearth of comprehensive genomic studies in cSLE. We have quantified the number of known r...

We are so excited to share our manuscript describing the genetic architecture in a diverse, international cohort of childhood-onset lupus patients.
-We found that cSLE patients have a high burden of BOTH common and rare SLE risk variants
🧬🔬🦋
#lupus #genomics #cSLE
lupus.bmj.com/content/12/1...

Same to you on both counts! I regret that we forgot to get a photo of us together. Looking forward to continuing our exciting collaboration in #cSLE! 🧬 🔬🧫🧪

😓🇨🇦 Couldn’t make it to Toronto but wishing you were at #LUPUS2025? Follow @caringforlupus.bsky.social and @tiffanyandlupus.bsky.social — they’re sharing all the key #lupus #research #SLE #CLE #cSLE updates! 🤩🎉

New BSR SLE guideline will be first to cover all ages The British Society for Rheumatology’s (BSR’s) upcoming guideline for systemic lupus erythematosus (SLE) will be the first in the world to offer advice for patients at all stages of life, the co-chair...

#Lupus #cSLE #LupusNephritis #UK #Guidelines

"New BSR SLE guideline will be first to cover all ages" #TheLimbus thelimbus.co.uk/rheumatology...

#LupusAwarenessMonth See you all tomorrow THU 8th, 12pm (BST)/ 1pm (CET) 💻 Looking forward to joining a great team and bringing the patient voice to the conversation #cSLE #peds #Lupus 🦋

🔗 Zoom: us02web.zoom.us/webinar/regi...

The Brain on Lupus: How Dr. Andrea Knight is Shaping Mental Health Research in Rheumatologic Disease By Priya van Oosterhout

🦋 Recently highlighted by @IMSMagazine: the impact of childhood-onset lupus #cSLE #lupus on mental health, and Dr. Andrea Knight’s research aimed at improving care. From the TEACH program for youth to mindfulness tools for families 💡
imsmagazine.com/2025/04/28/t...

Today! The JIR Winter School organised by the JIR Network.
Topic: #Lupus #Nephritis and Childhood-onset Lupus #cSLE 🦋 #online #inperson

www.jircohorte.org/winterschool

UCD Rheumatology #Dublin has been hosting excellent online seminars on childhood-onset lupus #cSLE #lupus, including today’s insightful talk by Prof Coziana Ciurtin @UCL

📨 Worth joining their seminar mailing list to stay updated www.ucd.ie/medicine/res...

Growing up with #lupus #cSLE is tough, inc. navigating changes in healthcare 🩺💜 LUPUS UK has developed a new booklet, led by Chelsea Wong, to support young people during the transition ➡️ paediatric to adult services.
⭐️ Empowering resources like this make a difference www.lupusukyouth.org/resources