In our feedback on the #DeliveryPlan for #ME Im sure that the majority of us who completed the❓aire were very clear about why its imperative that all reeducation in #ME for Drs & HCPs be mandatory, we've been ignored again & the consequences mean nothing will change for #pwME
@tessamunt.bsky.social
MP John Milne writes to Wes Streeting, questioning “the absence of strategic approach to biomedical research into Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) as part of the Final Delivery Plan”.
Read more: https://meassociation.org.uk/ehm8
#MECFS #pwME #MyalgicE #DeliveryPlan
2/2 "He said that the without a “far more ambitious” long term research strategy with dedicated funding the majority of research will continue to be funded by the charity sector."
Read more on the blog: https://meassociation.org.uk/mv7d
#MECFS #pwME #MEAssociation #MyalgicE #DeliveryPlan #NICE
David Tuller, DrPh, has interviewed Dr Charles Shepherd, MEA Honorary Medical Advisor, about the recent publication of the new ME/CFS Delivery Plan.
Watch the interview on our blog: https://meassociation.org.uk/4imr
#MECFS #pwME #MyalgicE #DeliveryPlan
2/2 Channel 4 News Report: ‘ ME Delivery Plan: will it make a difference?' - interviews with Nick (who has ME) and his father, Dr Binita Kane and Sir Sajid Javid
www.youtube.com/watch?v=FBa9...
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan
1/2 Channel 4 News asks the question 'ME Delivery Plan: will it make a difference?'
"The Delivery Plan was first commissioned back in 2022 by the Health Secretary at the time, Sajid Javid, who had a mixed reaction to today’s announcement,”
www.channel4.com/news/me-deli...
#MECFS #DeliveryPlan
Independent: I have ME. Here’s what I wish people knew about living with it - Tracy Meggitt reveals how her 2018 ME diagnosis impacts her life
https://tinyurl.com/23xw8hex
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan
3/3 Link to MEA website: meassociation.org.uk/qbpq
Direct link to Press Release:
www.gov.uk/government/n...
#MECFS #MyalgicEncephalomyelitis #DeliveryPlan
3/3
As we understand, the Final Plan will not be published until after the release of the NHS 10-Year Plan. We are continuing to advocate for its immediate release, & proper funding. Further delays are unacceptable
#pwME #MECFS #MyalgicE #MyalgicEncephalomyelitis #DeliveryPlan #FundThePlan
IiMER quote from Déjà vu?- June 2022
IiMER quote from Déjà vu?- June 2022
We wrote this 3 years ago - before IiMER were even '𝒊𝙣𝒗𝙞𝒕𝙚𝒅' into the DHSC working group
investinme.org/iimer-newsle...
#mecfs #deliveryplan Déjà vu?
‘No extra cash for new services or research’.
#ME #DeliveryPlan
The Times today.
www.thetimes.com/article/0612...
#pwME #UK #DeliveryPlan #MyalgicEncephalomyelitis
Have you seen this?