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Together, awareness can make a difference.

#RareDiseaseDay #GM1 #DiagnosisMatters #CureGM1Foundation

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Female ADHD and Hormones - The Perfect Storm Dr Lotta Borg Skoglund, leads a session that explores the underrepresented biological differences between sexes in ADHD research and clinical practice, despite a growing awareness of ADHD in girls and...

Delayed ADHD diagnosis in females? This session breaks down gender gaps and solutions, led by Dr. Borg Skoglund

https://www.acamh.org/event/female-adhd-and-hormones/
#DiagnosisMatters #HealthcareEquity

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🧠 Not all dementias are the same.

🌍 World Alzheimer's Day was yesterday, we’re shining a light on Lewy body dementia, the second most common type in older people - but often mistaken for Alzheimer’s.

👉 Learn more: www.lewybody.org

#LewyBodyDementia #WorldAlzheimersDay #Dementia #DiagnosisMatters

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Why is it important to use the term Fetal Alcohol Spectrum Disorder (FASD) in diagnosis?
Prof. Elizabeth Elliott from @FASDHubAus explains why correct terminology matters for understanding & support.
🎥 Watch: buff.ly/qDzdhki
#FASD #DiagnosisMatters

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Diagnosing moles is tricky; misdiagnoses can cause anxiety or wrong treatment. Learn why it's complex and discover new tools.

Empower your health!

#MelanomaAwareness #DiagnosisMatters #KnowYourSkin

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Diagnosing moles is tricky. Early melanoma diagnoses often vary, risking misdiagnoses. This may cause false reassurances or unnecessary surgeries. Researchers aim to improve detection. #MelanomaAwareness #DiagnosisMatters #KnowYourSkin

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Diagnosing moles is complex! Many early melanomas are misdiagnosed, leading to errors in treatment. We urgently need better detection tools. Join us this month to explore advancements in melanoma diagnosis.

#MelanomaAwareness #DiagnosisMatters #KnowYourSkin

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Create a Dementia-Inclusive Community
Small changes = big impact.
Make public spaces easier to navigate for people with dementia.
Review signage, seating, and design this #DementiaActionWeek.
Toolkit: www.alzheimers.org.uk/.../dementia....
#DementiaFriendly #DiagnosisMatters

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Primary Care is Pivotal
GPs: You’re key to early dementia diagnosis.
Use the Alzheimer’s Society symptom checklist in routine health checks & embed dementia-friendly practices.
Support starts here.
#DementiaActionWeek #DiagnosisMatters

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Dementia Action Week Our next Dementia Action Week will take place from 19 - 25 May 2025, where we will continue to raise awareness of the importance of an early diagnosis for people affected by dementia.

Early Diagnosis Saves Futures
Early dementia diagnosis enables better care, slows decline & supports families.
This #DementiaActionWeek, let’s champion earlier intervention across the UK.
Access tools: alzheimers.org.uk/DAW
#DiagnosisMatters #DementiaAwareness

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Monday, May 12 is #FibromyalgiaAwarenessDay 💜

Did you know❓

Iit takes 2–8 years to get diagnosed and that people with fibromyalgia feel dismissed by the system.

Early diagnosis = better care, less suffering.

It’s time to be heard.

#FAC #May12 #Fibromyalgia #DiagnosisMatters

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This is why #diagnosismatters.

This is why #accommodationsmatter.

This is why it’s important to know if you’re #actuallyautistic or #actuallyADHD.

Bc the alternative is spending your life believing you’re a failure as a human.

The alternative is a never-ending silent struggle.

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Why an autism diagnosis is an invitation to finally be yourself | Ellie Middleton | TEDxShoreditch
Why an autism diagnosis is an invitation to finally be yourself | Ellie Middleton | TEDxShoreditch YouTube video by TEDx Talks

Okay, well, brb sobbing for 15 minutes. 😭😭😭

#actuallyautistic #diagnosismatters #neurodivergent #TEDTalk #TEDxShoreditch #EllieMiddleton

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Chaz Lucius - a first-round NHL draft pick - made the decision to retire from hockey after being diagnosed with Ehlers-Danlos syndrome. His story is a powerful reminder of the impact rare genetic conditions can have and the importance of getting diagnosed.
#ChazLucius #DiagnosisMatters #RareButReal

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The struggle for a diagnosis is real.

Too many patients face years of symptoms, referrals, and dismissal—without answers.

We stand with the unheard. www.forgottenpatients.org
#ForgottenPatients #ChronicIllness #InvisibleIllness #DiagnosisMatters #MedicallyUnexplainedSymptoms

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Amen to this! As a member of the ADHD tribe I support this message. #diagnosismatters

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Adults diagnosed with ADHD have shorter life expectancy, UK study shows Data based on recorded deaths raises concerns around under-diagnosis of attention deficit hyperactivity disorder

#DiagnosisMatters #ADHD
Data based on recorded deaths raises concerns around under-diagnosis of attention deficit hyperactivity disorder
www.theguardian.com/society/2025...

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Diagnosis highlights:
• Gold standard: Kidney biopsy, but false negatives are common due to the focal nature of BKPyVAN.
• BKPyV DNAemia detected via qPCR serves as a key screening tool, but assay variability limits universal thresholds. #DiagnosisMatters

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The risk was dramatically less in heart failure. #DiagnosisMatters

www.ajkd.org/article/S0272-6386(18)30...

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