► FESTIVALS • #EINDHOVENMETALMEETING

EINDHOVEN METAL MEETING is probably the hardest and heaviest metal festival in the run-up to Christmas. Running order and timetables are online
12/11-13 NL – Eindhoven - Effenaar
Get your tickets here: www.ticketmaster.nl/artist/eindh...
#emm #emm2025

Our Secretary, Tobias Hagedorn, participated in the Eurordis Members Meeting #EMM2025 in Riga. The meeting's theme was 'Maximising our Impact.' Discussions focused on key topics related to patient advocacy, self-help, care, and political lobbying for rare diseases.

🇪🇺 Our president @flaviagalletti.bsky.social is attending the @eurordis.bsky.social Membership Meeting 2025 on behalf AIRP (Associazione Italiana Rene Policistico), giving strength and voice to the PKD community within #EURORDIS. 🌷

#PKD #AIRP #EMM2025 #RareDiseases #PatientAdvocacy

The #EMM2025 meeting highlights the importance of unified advocacy and inclusive dialogue at every level.

Together, we are building a stronger, more visible future for the rare disease community.

There is a photograph of Avril Daly on stage placed on a pink background. She is speaking into a microphone. Behind her on screen is a presentation slide. The Retina International logo is placed at the bottom centre of the graphic.

Our CEO @avrilbdaly.bsky.social, in her role as President of @eurordis.bsky.social, opened the EURORDIS Membership Meeting 2025 in Riga 🇱🇻 #EMM2025

The theme: Maximising our impact - Strengthening the voice of the rare disease community in decision-making.

#RareDiseases #EURORDIS #PatientVoice

Want to learn, connect, and exchange best practices to better advocate for the rare diseases community? Join me at #EMM2025 in Riga - I’d love to see you there!

🙋 Open to all in the rare disease community

🗓 22–24 May | 📍 Riga, Latvia
👉 go.eurordis.org/EMM25
#PatientVoice #RareDiseases #ARPKD