Early diagnosis of Congenital Hyperinsulinism is vital and can potentially prevent brain damage and possibly death! (4/4)
#rarediseaseday #hyperinsulinism
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#hyperinsulinism
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In the first photo I did not know I was dangerously hypo and had no symptoms. Congenital Hyperinsulinism causes the pancreas to produce too much insulin, which results in low blood glucose levels. (3/4)
#rarediseaseday #hyperinsulinism
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I was diagnosed and started diazoxide at 1 years old, at 9 years old I came off diazoxide but at 22 years old I still have hyperinsulinism and have very frequent hypos. (2/4)
#rarediseaseday #hyperinsulinism
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Happy Rare Disease Day! @chcharityuk.bsky.social
Since I was born, I have had Congenital Hyperinsulinism (CHI), a condition which was 1 in 28,000, (1/4)
#rarediseaseday #hyperinsulinism
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Imagine discovering your newborn is battling life-threatening hypoglycaemia.
Lengthy hospital stays follow. Bonding is disrupted. Feeding plans change. The precious early moments you imagined become a new reality: glucose monitoring, medications, and complex care.
#RareDiseaseDay #Hyperinsulinism
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Congenital #hyperinsulinism: common, high stakes, and historically limited treatment options.From neurologic risk of hypoglycemia to feeding challenges and emerging therapies, this CME webinar highlighted why innovation in HI is urgently needed. Exciting science ahead. #MedEd #PedsEndo
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Yesterday’s routine? Perfect. Today? Blood sugar has a mind of its own 💥
Illness, sleep, stress, activity, hormones, body changes, teething, anxiety… any could be the reason.
But hypoglycaemia in #Hyperinsulinism is unpredictable = same day, same routine, completely different result.
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🎉What better way to celebrate LEGO Day than a look back at our Legoland fun day! Where 55 #Hyperinsulinism families were brought together to meet, share experiences & form friendships. We can't wait for the next one🎉
#BringingFamiliesTogether #HIFamilies4HIFamilies #LEGODay
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💓 We love someone with Hyperinsulinism!
For the courage, bravery, and resilience needed to manage this rare, life-threatening condition, we are celebrating CHI Superheroes and the loved ones who support them every day.
hyperinsulinism.co.uk
#CHILove #Hyperinsulinism
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Daily life with #Hyperinsulinism can be a lot to cope with
These resources are designed to help:
💓 https://ow.ly/2Oen50XPm0z
💓 https://ow.ly/3ynQ50XPm0x
💓 https://ow.ly/u2TC50XPm0w
💓https://ow.ly/jOuv50XPm0y
#Blue Monday #HIFamilies4HIFamilies
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🎉 Happy #DitchYourResolutionDay! 🎊 Living with #Hyperinsulinism is tough—plans change fast! So enjoy cosy nights, treats, & (fingers crossed) a few hypo-free hours. 🛋🍫
Why you 'hopefully' relax, we will keep our resolution: fighting for #CHISuperheroes💖
#AimHI
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💓💊 Happy National Pharmacy Day!
For Hyperinsulinism families, pharmacists are often the quiet heroes behind the scenes, helping us manage daily medication, supporting emergency needs, and keeping our children safe.
#Hyperinsulinism #NationalPharmacyDay
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#Hyperinsulinism = A rare condition where the body overproduces insulin leading to severe and unpredictable Hypoglycaemia. Find out more: https://www.hyperinsulinism.co.uk
e-mail enquiries@hyperinsulinism.co.uk
Support Group: www.facebook.com/groups/CHCharityUK/
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🦌 Day Four of Santa Bingo!! Find a Reindeer!
What a beautiful present to find! CHI Superhero Chester has spotted reindeer on his Christmas present bag. This is fantastic, Chester, well done!👏🥰
#SayHItoSanta #Hyperinsulinism
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Today, Santa’s #Hyperinsulinism journey continues with student volunteer Mihika! 🎅✨ She’s sharing insights into future research and innovations, all hoping for better treatments and brighter outcomes for #CHISuperheroes. 💓
#AimHIforHyperinsulinism #CongenitalHyperinsulinism
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As patients navigate life with #hyperinsulinism, #Rezolute Patient Affairs team is committed to walking alongside them every step of the way. That’s why we are excited to launch 𝘛𝘩𝘦 𝘙𝘦𝘻𝘰𝘭𝘶𝘵𝘪𝘰𝘯, a new initiative dedicated to supporting those impacted by hypoglycemia related to hyperinsulinism
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We were honored to attend the UKI NETS Annual Conference yesterday and connect with leading experts and people impacted by #insulinomas, a rare type of neuroendocrine tumor.
At Rezolute, we’re committed to advancing care options for the #hyperinsulinism
#MedSky #EndoSky #OncSky #raredisease
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Congenital Hyperinsulinism (HI) is a rare condition causing dangerously low blood sugar levels (hypoglycaemia). It’s the leading cause of persistent severe #hypoglycaemia in babies under 3 months. In the UK, HI affects at least 1 in 28,000 births. #Hyperinsulinism #RareDisease
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November is #NationalFamilyCaregiversMonth, a time to honor and celebrate the incredible #caregivers who provide invaluable support to the #hyperinsulinism community.
Hear more from caregivers here: bit.ly/46IK51G
#Rezolute #congenitalHI #tumorhyperinsulinism #raredisease #MedSky #EndoSky #PedSky
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From worrying about blood sugars to wondering what their friends might think, there’s so much going on in CHI Superheroes' minds. That’s why it’s crucial that schools not only understand how #Hyperinsulinism impacts learning but also recognise the psychological effects.
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Today is #WorldPancreaticCancerDay, and we're shining a light on #insulinomas - a rare type of tumor that usually forms from the insulin-secreting cells in the pancreas, resulting in hypoglycemia.
Explore how #Rezolute is working to shape the future of #hyperinsulinism: bit.ly/46IK51G
#MedSky
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#WorldChildrensDay, “My Day, My Rights.” At CHC Children with #Hyperinsulinism co-create HI resources, participate in patient-led projects, shape our advocacy, raise awareness and volunteer. Our HI Heroes scheme recognises their achievements & our fundays bring them together🥰
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“We spend so much time thinking about the medical challenges of #Hyperinsulinism, but it’s just as important to focus on the psychological impact on children, parents & siblings.”
🌟Charlotte, Clinical Psychologist, Alder Hey - Video is available to watch now!
🎥 https://youtu.be/WarE8V2HDQA
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Advances in Pharmacotherapy for Congenital #Hyperinsulinism link.springer.com/article/10.1... #hvhebron #endoped
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Endocrine grand rounds: Pediatric endocrine fellow Dr Clare Parker presented on #hyperinsulinism in childhood.
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There’s nothing better than seeing families living with Hyperinsulinism come together for connection, laughter, and fun.
🥰🎉 Our Family Conferences and Fun Days are some of the happiest moments of our year!
#HappyHourDay #Hyperinsulinism
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To learn more about our sunRIZE Phase 3 preliminary demographic and baseline clinical characteristics, please check out our poster on our website: rezolutebio.com/wp-content/u... #SPES2025
#RZLT #CongenitalHI #raredisease #hyperinsulinism #ersodetug #PedSky #EndoSky #MedSky
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It is important to know that in babies, hypoglycaemia can be hard to detect. Watch for feeding difficulties, breathing problems, seizures, or unresponsiveness, these could signal dangerously low blood sugar.
🔄 Share to help us raise awareness
#Hyperinsulinism #Hypoglycaemia #HypoAwarenessWeek
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🚨 This week is Hypo Awareness Week 🚨
We are raising awareness of the signs & symptoms of Hypoglycaemia in babies with Hyperinsulinism, as early detection means faster intervention & diagnosis, helping to prevent neurological harm.
www.hyperinsulinism.co.uk
#Hyperinsulinism #HypoAwarenessWeek
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