#nspku

Daughter trying low protein granola, yoghurt with fruit.

Dr Gisela Wilcox taking about new pku guidelines.

Conference programme. I'm speaking about a labour of love.

Low protein lunch menu.

My weekend. Talking womens health and pku in Cardiff. 12 Yr old with pku enjoying activities and new dietary foods! #nspku

Ian has done it - congratulations 👏🏼 Amazing achievement, he crossed the finish line today at the RVI, Newcastle, where my daughter & SiL were to see him cross the finish line . #nspku

Redirecting...

Ian Spriggs only just managed today's leg of Bristol to Newcastle. Across the Pennines with wind and rain. Crazy. Incredible. Bit of both. #nspku
www.facebook.com/share/p/1G4C...

Got my #nspku news and views magazine!

I haven't managed to have a full read of it yet, but I briefly read about sepiapterin and JNT-517, and both seem to be extremely exciting developments in the world of #pku #phenylketonuria

I have worked with #NSPKU charity to talk to clinics, doctors, dieticans and food companies about how they can do better, what needs to change and what support is needed so the next generation doesn't have to struggle like I did.
The #PKU community is a small but powerful one! ❤️ 🌍