Thank you to everyone who supported the meeting this afternoon, by attending online, submitting the participation form or both.
Special thanks to the young people who shared their experiences, and asked important questions and the DfE for listening.
#Community #LongCovidKids #overlappingillness
Recently, Colin our Representative for Northern Ireland and his daughter Rosie attended the #ME Conference in #NorthernIreland, joining clinicians, researchers, patients and families to discuss the future of services for people living with ME.
#NorthernIreland #YouthAdvocacy #ME #OverlappingIllness
😊 great opportunity!
Benedict has been leading the development of the statutory guidance, and was supportive of LCK’s input, with many recommendations adopted Inc-language re fluctuating illness, award based attendance, requests for medical docs and #cleanair.
#LongCovidKids #OverlappingIllness
It would be good to see clear public health messaging on this @ukhsa.bsky.social
What is your advice ?
#Infection
#Reinfection
#LongCovidKids
#OverlappingIllness
#PostViralIllness
#Disability
Funded by the Buckinghamshire-based ME Association, external and carried out at Imperial College London, the Rosetta Stone study hopes to look for biomarkers and "decode the immunological profile" of both ME and Long Covid.
www.bbc.co.uk/news/article...
#OverlappingIllness #ME #LongCovid
3/3
The OIA also launched its first resource (a brief guide for parliamentarians) which is available on the OIA's website, along with a list of attendees 👇
www.overlappingillnessalliance.org.uk/parliamentar...
#OverlappingIllness #OIA #MECFS #MCAS #PoTS #PoTSUK#EhlersDanlos #EDS #LongCovid
This is the future IMHO.
Collaboration for the benefit of patients - dream team!
Such a positive experience, so nice to meet everyone in person - looking forward to seeing how the alliance grows and the changes we can achieve together!
#OverlappingIllness #OIA #StrongerTogether #LongCovidKids
📢 #OverlappingIllness Alliance parliamentary drop-in update
Over 50 MPs, Peers, and their colleagues attended the Overlapping Illness Alliance's drop-in event in Parliament yesterday!
The event raised much need awareness and understanding of the impact of
Developing any new condition is a tough gig - developing a poorly understood and under resourced condition is monstrously challenging.
Please help @ukpots.bsky.social
obtain the signatures needed to secure debate.
#Overlappingillness #PoTS
petition.parliament.uk/petitions/70...
