Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

🌟 Spotlight on our Medical Advisers 🌟

Our Medical Advisory Panel is made up of UK experts, dedicated to improving care for people with #PelvicRadiationDisease (PRD).

Meet Professor Sara Faithfull and discover her work: https://ow.ly/SJ0450YCeGf

Great to hear that people are being signposted to the right help.
But for it to only happen decades after radiotherapy! How many more people are like Alyson but suffering in silence 😕
#PelvicRadiationDisease is still an under-recognised problem

Quote: After an initial, kindly phone consultation, I was accepted to see the Senior Therapeutic Radiographer, who decided, even after thirty years since my radiotherapy, that she could help. I hadn’t realised that Pelvic Radiation Disease was a ‘thing’, and she gave me gentle support and told me about PRDA. Just the acknowledgment that I wasn’t just another old woman suffering incontinence, that there was indeed an association to help and inform, was a comfort.

Symptoms of #PelvicRadiationDisease can emerge months, years, or even decades after radiotherapy.

Alyson self-referred to Nottingham’s Late Effects Service 30+ years later thanks to signposting from a Macmillan nurse.

UK late effects services: prda.org.uk/late-effects-services/

Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓️ Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

Thank you so much Trish for sharing 💙
A stark reminder of the embarrassing, painful and long lasting symptoms of #PelvicRadiationDisease and the impact on people’s daily lives
#LivingWithAndBeyondCancer

Anal cancer: Woman left in pain six years after radiotherapy treatment Trish Prosser said she was too embarrassed to tell loved ones about the type of cancer she had as she felt there was a stigma surrounding anal cancer.

We’re so grateful to Trish for speaking so openly 💙 Sadly, she’s not alone.

#PelvicRadiationDisease can cause numerous symptoms, yet awareness is low and support is very limited in the UK, with no services in Northern Ireland.

https://www.bbc.co.uk/news/articles/c5yq1yg9ldwo

Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

🚨New Simply Oncology Podcast on #PelvicRadiationDisease with the superb consultant radiographer Lisa Durrant🚨
As we search for cancer cure can we help manage;
Bowel
Bladder
Pain
Sexual function

Let’s keep QoL with cure🎯

@eururoloncol.bsky.social @oncodaily.bsky.social @lisadurrant.bsky.social

Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

Healthcare professionals: if you’re supporting people living with #PelvicRadiationDisease, please consider signposting them to our Out and About Toolkit. Practical tips and tools to help people feel more confident leaving home.
👉 prda.org.uk/out-and-about-toolkit/

#SupportiveOncology

Very interesting study! Any work towards minimising #PelvicRadiationDisease is very welcome

@prda.org.uk

“It’s so important that we have long-term plans to help cancer survivors fit into normal life and achieve the best possible quality of life.” Amy - living with PRD

Surviving cancer isn’t just about a cure, it’s about living well after treatment. Many people struggle with late effects. The National Cancer Plan must recognise #PelvicRadiationDisease and provide support shaped by lived experience.

https://ow.ly/RArl50Yep2U

#NationalCancerPlan

“I often see patients who were unprepared for new symptoms and the significant impact these have on quality of life.” Dr Jan Bornschein, Consultant Gastroenterologist and PRDA Medical Adviser

Many people aren’t prepared for the lasting effects of pelvic radiotherapy, which can affect daily life. The PRDA is calling for consistent, compassionate, patient-focused care.

👉 prda.org.uk/prda-response-to-the-national-cancer-plan/

#PelvicRadiationDisease #NationalCancerPlan #PatientCentredCare

We welcome the National Cancer Plan’s focus on quality of life, not just survival. But NHS staff training & dedicated long-term care services are urgently needed for equitable outcomes.

prda.org.uk/prda-response-to-the-national-cancer-plan/

#PelvicRadiationDisease #SupportiveOncology

Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease (PRD). Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #SupportiveOncology

Support is available for people living with #PelvicRadiationDisease through our Chat Together virtual support group.

🗓 Meeting times:
• 3rd Tuesday of each month at 12:30pm
• 1st Wednesday of each month at 7:00pm

🔗 Find out more or signpost: prda.org.uk/chat-together

By taking the #PRDPledge our pledge champions are helping us raise awareness of #PelvicRadiationDisease

Thank you for your dedication to better outcomes, better understanding, and better care 💙

Get involved and take the pledge👉 https://ow.ly/bb6i50Y3W16

#RTLateEffects #RadOnc

New or ongoing symptoms 3 months or more after pelvic radiotherapy could be #PelvicRadiationDisease

Symptoms can start years or even decades after radiotherapy and are often under-recognised. Find more information on our website:

prda.org.uk/what-is-pelvic-radiation-disease-prd/

Thanks to Macmillan funding, we’re increasing access to our Out and About Toolkit programme across NHS Late Effects Services.

If your service isn’t yet involved and would like to find out more, please get in touch.

👉 Read more: https://ow.ly/VvjR50XX7A5

#PelvicRadiationDisease

Support is available for people living with #PelvicRadiationDisease at our Chat Together virtual support group.

➡️3rd Tuesday of each month at 12:30pm and 1st Wednesday of each month at 7pm
prda.org.uk/chat-together

#LivingWithAndBeyondCancer #CancerQualityOfLife

New or ongoing symptoms 3 months or more after pelvic radiotherapy could be #PelvicRadiationDisease

Symptoms can start years or even decades after radiotherapy and are often under-recognised. Find more information on our website:

prda.org.uk/what-is-pelvic-radiation-disease-prd/

Pelvic Radiation Disease Association Support Support is available from the PRDA for people affected by Pelvic Radiation disease. We have a number of support services available that are free to access for people living with symptoms of PRD.

Happy New Year from all of us at PRDA 🎉

If you know someone with #PelvicRadiationDisease who could benefit from peer support, please explore our services at: prda.org.uk/support/

#LivingWithAndBeyondCancer #RTLateEffects

Healthcare professionals: if you’re supporting people living with #PelvicRadiationDisease, please consider signposting them to our Out and About Toolkit. Practical tips and tools to help people feel more confident leaving home.
👉 prda.org.uk/out-and-about-toolkit/

#SupportiveOncology

🎁Make a difference with every gift you buy🎁

Use Give as You Live to do your online shopping and a percentage of your purchase is donated to us, at no extra cost: https://ow.ly/kk5350XKU6Z

Thank you and happy shopping!

#GiveAsYouLive #PelvicRadiationDisease

📢Healthcare professionals: if you’re supporting people living with #PelvicRadiationDisease, please consider signposting them to our Out and About Toolkit. Practical tips and tools to help people feel more confident leaving home.
👉 prda.org.uk/out-and-about-toolkit/

#SupportiveOncology

Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease. Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #CancerCare

Grateful to the many healthcare professionals helping improve recognition of #PelvicRadiationDisease. Using the term PRD helps validate patients’ experiences and supports better long-term care.

👉Take the pledge: prda.org.uk/the-pelvic-radiation-disease-pledge/

#PRDPledge #CancerCare