I just donated to help fund #PraderWilli research in honor of my friend’s son Jude. PWS is a rare genetic disorder where his brain never tells him he’s full so he always wants to eat. 2x matching today. @givingtuesday.bsky.social impact.fpwr.org/campaign/729...
🔴 #ERSCongress
Le Dr G. Gulpo présente un travail sur l’intérêt des enregistrements du sommeil 💤 chez les patients syndrome de #PraderWilli bénéficiant d’un traitement par hormone de croissance.
@royallondon.bsky.social
#RespiRare
#DefiScience #CRMR #PRADORT
Epigenetics Update - Mechanism of EHMT2-mediated genomic imprinting associated with Prader-Willi syndrome go.nature.com/4kq4vQC
Yong-hui Jiang (Yale University) reporting in Nat Commun
#Epigenetics #Imprinting #PraderWilli
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High-resolution insights without cell sorting; epigenometech.com
From The Foundation for Prader-Willi Research-Check out the Fact Sheet called "What is Prader-Willi Syndrome?"
It's not easy to find accurate, accessible information on PWS. Get our free fact sheet today and share it with colleagues, family, and friends. #PraderWilli hubs.la/Q03qd3nl0
While much of the public focused on the remarkable effects of GLP-1 agonists, an even more remarkable story has largely escaped notice. In March, @fda.gov approved the first ever treatment for #PraderWilli syndrome.
HT: @kffhealthnews.org
conscienhealth.org/2025/06/prad...
📅 Hoy es el Día Mundial del #SíndromeDePraderWilli.
Un trastorno genético poco frecuente que requiere diagnóstico genético y apoyo especializado.
Conocerlo es clave para detectarlo a tiempo.
#PraderWilli @csic.es
Bodegas Maset entregará la Beca Pau Massana 2025 para investigar el síndrome de Prader-Willi #BodegasMaset #BecaPauMassana #PraderWilli #Investigación #EventosSolidarios
Emotional regulation in folks with PWS with Dr. Kacey Bedard
www.behaviourspeak.com/e/behavior-a...
@pwsausa
#praderwillisyndrome #praderwilli #praderwillisyndromeawareness #emotionalregulation #emotionalregulationskills #behavioranalysis #appliedbehavioranalysis #bcba
Effects of Oxytocin
#hormone
#science
#oxytocin
#weightgain
#weightloss
#eatingdisorder
#praderwilli
#anorexianervosa
www.linkedin.com/posts/syed-s...
CRISPR can be used to switch on suppressed genes that cause Prader-Willi syndrome new research has shown. Dr Melania D'Angiolo writes more in BioNews: www.progress.org.uk/crispr-used-...
#genetics #genomics #genes #DNA #CRISPR #PraderWilli
Epigenetics News - Activating Complex Regions of the Genome to Treat Rare Diseases bit.ly/3EHrWG4
A master epigenetic switch that activates silenced genes compensates for their missing counterparts in Prader-Willi syndrome
#Epigenetics #News #PraderWilli
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Gain deeper insights with epigenome.us
Looking forward to sharing tips & tricks for #raredisorder caregivers at tonight's #PraderWilli caregiver group @ NYU Langone Health! The #PWS community funded a pilot that led to NIH-funded Project WellCAST - & now we get to start sharing back what we're learning through this project!
Trump's admin will also be reducing educational services & healthcare to kids & adults w/ disabilities. After seeing how little govt help is available to my sister (w/Prader-Willi syndrome) my parents are pro-choice. Pro-birthers only care until the child is born. #praderwilli #specialeducation
