Advertisement · 728 × 90
#
Hashtag
#pwLE
Advertisement · 728 × 90
Post image

✨Meet our #NAPainSchool 2026 patient partner Prachi Khanna✨

#PWLE of #pain will attend sessions, give a talk to the students about their "pain journey" and discuss about the collaboration with lived experience experts.

2 0 0 0
Post image

✨ Meet our #NAPainSchool 2026 patient partner Jenna Swidrovich! ✨

🎞️ Learn more about Jenna here cdn.jwplayer.com/previews/HC0...

#PWLE of #pain will attend sessions, give a talk to the students about their "pain journey" and discuss about the collaboration with lived experience experts.

0 0 0 0

Wow, kudos to this entire team, and a huge thanks to all the participants. Come check out the data that's available for study! #chronicpain #painresearch #pwle

2 1 0 0

Check Us out! Me and my favourite co-worker, @peprpartnership.bsky.social co-director, Desmond Williams created a #PWLE podcast - For Us, By US.

0 0 0 0

This #NPAW2025, PEPR would like to emphasize how we’re identifying institutional interests that underpin #pain #research in Canada and exploring the social relations that organize the experiences of #PWLE of #ChronicPain.

#PrioritizePain #PeprPartnership

1 1 0 0

PEPR Partnership supports meaningful engagement in #ChronicPain research in ways that move beyond the individual towards communities. Through community consultations, we’re learning collaboratively & carefully how, when & where to engage #PWLE of #pain & marginalization.
#NPAW2025 #PeprPartnership

2 0 0 1

@zackpolanski.bsky.social
Can we rely on your government to give a likely half a million people with #ME patients and #pwLE the best chance possible chance of true recovery and return to work?
Suspect is a whole load easier than making them contestants for “Small Boats part 2”

2 0 0 1

Sepsis continues to be a global burden to all healthcare systems. That's why it's important for people like me, #pwle (people with lived experience) to share their stories of survival. See you @vancouverconventioncentre.com!

0 0 1 0
Post image Post image Post image

🫀Don’t miss out on Session I of our 10th Annual #HFSymposium!

🎙️Drs. Mansoor Husain, Seema Mital, Craig Simmons, Heather Ross will host a retrospective & forward-looking discussion with a #PWLE perspective from Todd Murray.

🎟️Register: tedrogersresearch.ca/symposium/

2 0 1 2
Post image

Your Voice is Vital for Change 📢

Join the Health Advisory Network and get paid to share your healthcare story. 💬 Help improve the system with YOUR experiences. Learn more and sign up here: healthpartners.ca

#YourVoice #Healthcare #PWLE #LivedExperience #MentalHealth

0 0 0 0
Post image

Performing at this year’s @sxsw.com Music Festival in Austin, TX, are several artists with lived experience of the criminal legal system in this country.

Take a look at those artists: jlusa.org/2025/03/14...

#SXSW #PwLE #Consumables #EitheKing #YoshiVintage #Zayytee

0 1 0 0
Post image

✨ Excited to have @QuanaMadison
joining us at #NAPainSchool 2025 ✨
Quàna is a member of the Community Leadership Council of the NPAC and a #PWLE at the NIH HEAL initiative.
Quána is also a multi-disciplinary artist🎨, healing arts workshop facilitator, model and well-being advocate

2 0 1 0
Post image

Critically, #PWLE (persons with lived experience) are central to the work of this organization - supported through stipends for their participation & subsidized for education!

surveys.sickkids.ca/surveys/?s=X...

0 0 1 0

#PwLE need to be leading in these spaces (and compensated to do so) if we want to create positive change and innovation.

Our knowledge and #LivedExperience has been a missing piece this entire time.

As those with everything to lose, we are highly motivated to get meaningful answers urgently.

7/

17 0 1 0
Post image

@transformhf.bsky.social is developing training resources & activities to better support #researchers, #trainees, & #PWLE in working together effectively!

📋 Take this short survey to help identify needs for fostering a meaningful collab: surveymonkey.com/r/ZGLS7FS

🗓 Deadline: Jan. 5, 2025

1 1 0 0
Preview
‘I will play this tokenistic game, I just want something useful for my community’: experiences of and resistance to harms of peer research Hiring peer researchers – individuals with lived experience of the phenomenon under study – is an increasingly popular practice. However, little research has examined experiences of peer research f...

This was a reassuring read. I am not alone in feeling frustrated/disheartened in many of the #research spaces I contribute to.

Most of the power sits in the hands of individuals who expect me to be totally disconnected from my actual reality, as a #PwLE.

www.tandfonline.com/doi/full/10....

4 0 0 0