20yrs ago I was sitting in a hotel room with my wife and my father getting ready to have surgery to correct #SuperiorCanalDehiscence at @jhu.edu hospital. #SCDS Lloyd Minor changed my life.

(Post 7)

I still hear internal noises that I shouldn’t hear, such as my eyes moving, as I have thinning of the other superior semicircular canal. But I have my life back, and intend to make the most of it.
#rarediseasesday #scds

Lovely bit of Bhangra/Bollywood (not sure what you'd call it to be honest) from Bal for her CC. I'll give her and Jules a 9 for that. Stunnin'!

#Strictly #SCDS

Interpretation and use of caloric testing Caloric testing is an otoneurologic evaluation of the status of the vestibular-ocular reflex; it allows an evaluation of each labyrinth separately. The main aspects on the use and interpretation of ca...

#vestibular #vestibularmigraine #sccds #scds #audiology #otolaryngology #dizziness #vertigo #innerear #calorictesting #vng #vemp

Can someone simplify this please? #ENT

pmc.ncbi.nlm.nih.gov/articles/PMC...

Some of you have never heard your eyeballs move and it shows. #shhhhhh #scds #superiorcanal

One of those days when you Can hear the rotation of the earth. #SCDS #SuperiorCanal Dehiscence is a helluva "drug"
#hyperacusis #misophonia

Carey conducted the live telemetry when Minor correct my #SCDS back around 2007. Im bilateral with #hyperacusis and misophonia. Great people there. My right side symptoms are increasing but I was told they won't do other side.

a man is covering his ears in a store . ALT: a man is covering his ears in a store .

Been a bad week for #superiorcanaldehiscence. Anyone else hear the rotation if the earth? Ugh. #scds #hyperacusis Also, something in my hood is beeping twice every 30 seconds. #superhearing

#chronicpain #chronicillness
#superiorcanaldehiscence #scds #scoliosis

Is there anyone out there with Superior Canal Dehiscence? I have bi-lateral and was wondering if there’s a calling for a bit of a support group here on Bluesky…? I’ve known about mine for 6 years but I’m not a candidate for surgery. It’s been a life changer. #scd #scds

Wretched ear #scds. Felt it coming on, it was gonna be a bad day. The suicidal volume and erratic noise that cant be stopped.
That lack of self preservation resulting in Social then, bedbound and helpless to make it stop. A valium would have worked but NOPE is always the response from docs.

After Paris: Keeping our buildings and minds open In the wake of the Paris shootings the Daily Mail, and ot...

Excellent recent blog by tonight's @scotdiaspora speaker, Gavin Schaffer: Keeping our Buildings and Minds Open #SCDS
mbsbham.wordpress.com/2015/01/19/after-paris-k...

Gavin Schaffer is speaking @HCAatEdinburgh tomorrow for @scotdiaspora seminar: Racism & Broadcasting in 1970s Britain #SCDS

Gavin Schaffer will be speaking @HCAatEdinburgh next week for @scotdiaspora seminar: Racism & Broadcasting in 1970s Britain #SCDS