“Loved beyond words, missed beyond measure.”
May sweet Ravi rest in heavenly peace.
#curegm1 #childloss #sweetangels #raredisease
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Happy heavenly birthday to sweet Aidan!
“Don’t give up hope, but cherish each moment.“ -Aidan's grandma
HIS STORY: curegm1.org/aidans-story-2
#curegm1 #raredisease #community #sweetangels
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"Losing a child is like losing a piece of your own soul. It changes you forever." -Anonymous
May sweet little Josias rest in peace and may his family find comfort at this heartbreaking time.
#curegm1 #raredisease #childloss #grief #sweetangels
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We have updated the candlelight memorial video honoring 3 children whose lives were tragically lost between December 10–14.
This video is shared in remembrance, love, and solidarity with their families and all those grieving.
youtu.be/rw3UVZj9gM8
#curegm1 #sweetangels #childloss #raredisease
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Three beautiful babies gone too soon in our community in the span of 5 days.
May sweet baby Amelia rest in peace now free of suffering, pain, and GM1.
#curegm1 #raredisease #restinpeace #memorial #childloss #sweetangels
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Join us as we honor the beautiful angels lost to GM1 gangliosidosis during our Annual Candlelight Memorial. Part of the Compassionate Friends Worldwide Candle Lighting, we are united with families around the world in remembrance.
#curegm1 #raredisease #childloss #sweetangels #memorial
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Tonight at 7 PM your time around the world🕯️
Join us as we honor the beautiful angels lost to GM1 gangliosidosis during our Annual Candlelight Memorial.
curegm1.org/family-videos/in-memoriam-videos
#curegm1 #raredisease #childloss #sweetangels #memorial
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Tonight at 7 PM your time around the world🕯️
Join us as we honor the beautiful angels lost to GM1 gangliosidosis during our Annual Candlelight Memorial.
curegm1.org/family-videos/in-memoriam-videos
#curegm1 #raredisease #childloss #sweetangels #memorial
youtu.be/OMGzdA_hg7E?...
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“You were only here for a moment, but you are loved for a lifetime.”
May sweet Dawson rest in heavenly peace, now free of GM1.
#curegm1 #childloss #raredisease #sweetangels
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“You were only with us for a little while, but you filled our hearts forever.”
May little Kassidy's family find comfort at this difficult time.
#curegm1 #childloss #raredisease #sweetangels
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Save the date and time. In support of the Compassionate Friends, candles are lit in each time zone, a wave of light will circle the globe—reminding us that love is stronger than distance and we are never alone in our grief or our hope.
#curegm1 #raredisease #sweetangels #memorial
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Save the date and time. In support of the Compassionate Friends, candles are lit in each time zone, a wave of light will circle the globe—reminding us that love is stronger than distance and we are never alone in our grief or our hope.
#curegm1 #raredisease #sweetangels #memorial
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Today, we honor and remember Violet Aurora Sison Law (June 11, 2019 - November 11, 2023).
Violet’s short and beautiful life was full of laughter and smiles, fulfilling her destiny that was written in the stars.
curegm1.org/violets-story
#curegm1 #raredisease #sweetangels #legacy #charity
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"Becoming a grandmother was the most exciting and rewarding experience of my life. Now I’m left with empty arms."
READ and SHARE: curegm1.org/aidans-story-2
GIVE: givebutter.com/iXRo17/conni...
#curegm1 #raredisease #charity #sweetangels #childloss
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"Until she was 14, everyone thought she had some form of myopathy and heart problems, but in 2008 she was diagnosed with GM1 gangliosidosis. For her parents, for us and for her, it was a shock."
READ MORE: curegm1.org/solomijas-story
#curegm1 #raredisease #sweetangels
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We are absolutely heartbroken for Daxton's family. His family shared his story to spread awareness and to create a legacy of hope.
READ MORE: curegm1.org/daxtons-story
#curegm1 #raredisease #hope #sweetangels #childloss #community #grief #give
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"From the moment he was born until his last breath, he was truly loved and cared for." -Ananda's family
#curegm1 #raredisease #community #sweetangels #childloss #genetics #medicine
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Today is a day to offer support and understanding to bereaved parents who live with immeasurable loss. May greater awareness of GM1 usher in meaningful progress and change.
curegm1.org/about-gm1
#curegm1 #raredisease #sweetangels #childloss #grief #bereavement
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"Healing from loss starts with remembering the love that was shared."
A sweet baby and beloved child now free of GM1.
curegm1.org/stories
#curegm1 #raredisease #sweetangels #childloss #grief #loss
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We honor sweet Fiona's life and her father's touching account of her story.
"It was the lessons she taught me without a single word: To live for the moment because tomorrow may never come."
READ AND SHARE: curegm1.org/fionas-story
#curegm1 #raredisease #hope #sweetangels #childloss #grief
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We honor sweet Fiona's life and her father's touching story.
READ AND SHARE: curegm1.org/fionas-story
#curegm1 #raredisease #hope #sweetangels #childloss #grief
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Little Gabriel has Type 1 infantile GM1. Yesterday, was his heavenly birthday.
GM1 stories: curegm1.org/stories
#curegm1 #raredisease #community #childloss #sweetangels #grief
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A very special thank you to all who love sweet Niam and who create hope for a brighter future for all those impacted by GM1.
ABOUT: curegm1.org/gm1day
#curegm1 #raredisease #hope #community #sweetangels #charity #give #legacies #childloss
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Far too many in our community have lost their sweet children. There are no magic words that will ever be enough. We are thinking of all bereaved mothers today.
#curegm1 #raredisease #childloss #sweetangels #grief
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It is absolutely stunning that three babies have died in the span of two days in our global GM1 community. Rest in peace Timosha.
LEARN: curegm1.org/about-gm1
#curegm1 #raredisease #community #sweetangels #childloss #fightforlife
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May sweet baby Joaquim rest in peace.
READ MORE: curegm1.org/joaquim-and-sofias-story
#curegm1 #raredisease #childloss #fightforlife #grief #sweetangels
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Little Ela died on April 2nd. She suffered from Type 1 infantile GM1 gangliosidosis.
ABOUT GM1: curegm1.org/about-gm1
#curegm1 #raredisease #community #sweetangels #grief #childloss #fightforlife
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Beautiful Madi passed away 9 years ago. Her angelversary is Feb. 19th.
LEARN MORE: curegm1.org/about-gm1
#curegm1 #raredisease #sweetangels #alwaysremember #childloss
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Dear sweet Theo, to all who knew and loved you, during this time of profound grief, please know that you are not alone May sweet Theo rest in peace, now free of GM1.
WATCH: youtu.be/Peyxld5wVxA?...
#curegm1 #sweetangels #raredisease #restinpeace #alwaysremembered
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Let's honor sweet Pax who would have been 13 years old today. Sweet Pax is forever in our hearts.
HIS STORY: curegm1.org/a-beautiful-baby-boy-born-february-16-2012
#curegm1 #raredisease #community #sweetangels #childloss #alwaysremembered
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