If you want to improve outcomes in intoxication type IMDs, you need prompt recognition and excellent emergency management.
#thinkrare #treatrare
Listen here 👉 soundcloud.com/user-1090061...
Spotify: open.spotify.com/episode/17nL...
#Rhabdomyolysis #thinkammonia #InbornErrorsOfMetabolism
Have you ever felt unseen as a person impacted by rare disease? We hope this gallery featuring just some of the pictures from the NHS on Rare Disease Day will give you hope.
Listen - Learn - Advocate (repeat)
#ShowYourStripes #RareDisease #ThinkRare
www.m4rd.org/2025/03/04/r...
Thank you to @kingshealth.bsky.social for raising awareness of the #RareDisease A lack of healthcare professional awareness of the impact of having a rare condition is one of the biggest challenges people face. We need our HCPs to #ThinkRare so that they can provide excellent care #ShowYourStripes
Had to try them out!! Getting ready for #RareDiseaseDay #ShowYourStripes @medicsforrare.bsky.social #ThinkRare #RareSky
Come and join us ahead of Rare Disease Day and be educated about #RareDisease at this online training with @medicsforrare.bsky.social on 25th Feb #Genetics #Genomics #RD101 #ThinkRare #RareSky
Find out what you need to know about #RareDisease at this online training with @medicsforrare.bsky.social on 25th Feb #Genetics #Genomics #RD101 #ThinkRare #RareSky
Thank you for @politico.eu highlighting this issue. I've been in rare disease advocacy my whole life and no amount of technology or innovation has made up for lack of healthcare professional awareness. Check out www.m4rd.org
#ThinkRare
Thank you for highlighting this issue. I've been in rare disease advocacy my whole life and no amount of technology or innovation has made up for lack of healthcare professional awareness. Check out www.m4rd.org #ThinkRare