Happy birthday to my sweet bean who passed away 11 years ago. 💚
Last year I hiked along the McKenzie River in Oregon to spread her ashes.

#trisomy18 #centraloregon #mckenzieriver

Approaches to Treatment and Care for Babies with Trisomy 18 (Edwards Syndrome) This article examines the complexities and evolving landscape of treatment and care for infants diagnosed with Trisomy 18, also known as Edwards syndrome, a rare genetic disorder characterized by…

Approaches to Treatment and Care for Babies with Trisomy 18 (Edwards Syndrome) killbait.com/en/approache... #health #trisomy18 #edwardssyndrome #geneticdisorders

Shouting into the void today: abortion is health care. Which is what I shouted at the anti-abortion idiots at Baseline and Clyde this morning.

Don't judge what you haven't walked, assholes.

#AbortionIsHealthCare #Trisomy18 #TFMR #YOW #Ugh

Today is #Trisomy18 AwarenessDay ! 1️⃣8️⃣

🧬In this #sciencepodcast episode, we talk about common misconceptions of #Trisomy18 and the E. WE Foundation goals with Sarita Edwards!

🎧dnapodcast.com/episodes/2024/2/23/277-t...

#genetics

SOFT Ireland - Support for Trisomy 13 & Trisomy 18 Patau\'s & Edwards\' Syndrome SOFT Ireland, the Support Organisation for Trisomy in Ireland, is a voluntary group dedicated to providing support for families of children born with Patau’s Syndrome (Trisomy 13), Edwards’ Syndrome (...

Today is #Trisomy18 (Edwards' Syndrome) Awareness Day

SOFT Ireland provides support, assistance & information for families of children diagnosed & born with Trisomy 18 & Trisomy 13 (Patau’s Syndrome)

ℹ️ www.softireland.com

#TrisomyAwareness #TrisomyAwarenessMonth

My beautiful daughter smiling while cuddling up on a white blanket.

Happy birthday to my daughter who would have been 10 years old today! She blessed us with her presence in 2015 for one week. My pregnancy happened in Idaho, right before the first Trump administration took off. I’m blessed that I was taken care of. That wouldn’t be the same today. #trisomy18

Trisomy Awareness Month 2025 is just around the corner and we will be doing our part to spread awareness of Trisomy 13 and Trisomy 18.

We'd love to know how you raise awareness. Let us know in the comments below.

#tam2025 #trisomyawareness #trisomyawarenessmonth #trisomy #trisomy13 #trisomy18

Join us this Thursday for our Living With Trisomy call at 19:30.

This call is for families to catch up and talk, share tips, and ask other families for advice about their children with Trisomy.

If you'd like an invite, please email shaun.dowdall@soft.org.uk for an invite.

#trisomy13 #trisomy18

John's fundraiser for Acorns Children's Hospice Trust Help John Rayson raise money to support Acorns Children's Hospice Trust

Doh! So new to this. Forgot to actually post a link to #JustGiving page.

www.justgiving.com/page/john-ra...

#hospice #Trisomy18 #EdwardsSyndrome