Spoken by women who walk in the shoes - "Underfunding in gynaecological cancer research is costing women their lives". www.womencan.org.au/underfunded #gynaecancer #uterinecancer #endometrialcancer #ovariancancer #cervicalcancer #vaginalcancer #vulvarcancer www.youtube.com/watch?v=gYwC...
The #OncoAlertColloquium 2026 GYN Malignancies🚨 DAY FOUR (ESGO)
Presentation by Dr. Cyrus Chargari 🇫🇷 : Year in Review Medical #VulvarCancer #VaginalCnacer REGISTER HERE TO WATCH: buff.ly/xwD5G2D
The #OncoAlertColloquium 2026 GYN Malignancies🚨 DAY FOUR (ESGO)
Presentation by Dr. Giorgia Garganesse 🇮🇹 : Year in Review Surgical #VulvarCancer
REGISTER HERE TO WATCH: buff.ly/xwD5G2D
🧬 Biology-driven surgery (STRIVE)
🩺 SLNB expansion (GroSNaPET)
🤖 AI/image-guided groin surgery (RHINOCERUS)
Got my plot.
Right next to Mom's.
This is soooo weird.
#CancerSucks #VulvarCancer
#PlanningForTheEnd
Met with the doctor earlier.
We are now taking things week by week, not month by month.
That was really fucking hard to hear.
I could die before the one year anniversary of my diagnosis.
#CancerSucks #VulvarCancer
So much pain these days.
#CancerSucks #VulvarCancer
It is important to highlight the fact that today, outcomes are not what they were even 10 years ago. #vulvarcancer
Bad pain day
#VulvarCancer #CancerSucks
Chemo & immuno therapies tomorrow, along with another blood transfusion
I've lost track of how many transfusions I've had haha
#VulvarCancer #CancerSucks
Going to be a long day
Chemo, immunotherapy and blood transfusions
#CancerSucks #VulvarCancer
CT scan shows the cancer is shrinking
#CancerSucks #VulvarCancer #GoodNewsThisTime
Hospital bed comes today
Mixed feelings on that
Looking forward to being able to sleep in a bed (been having to use a recliner) but having a hospital bed at home feels like the end is closer
Fuck, I hope chemo and immunotherapy slow this cancer down
#CancerSucks #VulvarCancer #Stage4Cancer
Tired looking woman with buzz cut, sitting in recliner, hooked up to an IV for immunotherapy and chemo, giving thumbs up 👍
Let's do this!!!
#VulvarCancer #CancerSucks #immunotherapy #chemotherapy
Oncologist appointment this morning
Hopefully we'll be getting these treatments going again soon -- no more setbacks!!
#VulvarCancer #CancerSucks
Got a walker to help get around the house
It makes a huge difference with pain management
It's also a pretty bluish purple and will go well with my Mystic Purple wheelchair that will be coming in the next week or two
#VulvarCancer #CancerSucks
#Lymphedema
I think we finally have the pain under control
Now, to find out when my treatments resume so we can try to stop this cancer from growing
Bumps or lesions, itchiness, thinning of skin, white spots can be signs of vulvar cancer
It's rare, so push hard
Your life could be on the line
#VulvarCancer
Having big ol' sobfests quite frequently these days
Sometimes, it's just too heavy, too much to take, between the cancer, pain, lymphedema, having people do daily care to my most private area and the hospital stays
Sometimes, I just need to have a good cry
#VulvarCancer #CancerSucks
I have a blood clot in my pelvis, which is causing some of the swelling in my leg
They don't want the clot to move, so I'm basically bedridden now
This fucking cancer just keeps taking and taking
I'm so tired of this
#VulvarCancer #CancerSucks #RealTalk
Can't even dress myself any more
I hate this
#VulvarCancer #CancerSucks
Immunotherapy has shown limited effectiveness in #vulvarcancer, benefiting < 10% of patients. Traditional biomarkers cannot predicted treatment response. We’re proud to share that we’ve developed the first immune score model. @unibergen.bsky.social www.modernpathology.org/article/S089...
Bit of a fever, so spending my Friday night at emerge
#VulvarCancer #CancerSucks
Lymphedema sucks
My right leg is swollen from toes to hip and I'm in excruciating pain if I'm on my leg more than a few minutes
On two different fluid pills in hopes of bringing some of the swelling down
It's just one thing after another with this damn cancer
#VulvarCancer #Lymphedema
The lymphedema is now making it painful to get my VON care
Everything seems to change so quickly
It scares me
I hope the chemo and immunotherapy slow this fucking cancer down
#VulvarCancer #CancerSucks
Need them, grateful for the care but I cannot get used to these VON visits
It really is the most awkward place to have cancer and care, and I'm sure I make the situation more awkward with my babbling small talk
#VulvarCancer #CancerSucks
Spent the day in emerge because of swelling in one of my legs
No blood clots -- my problematic lymph node is growing more, so it's causing swelling issues
Fluid pills for the fix
#VulvarCancer #CancerSucks
Update on my cancer journey and a plug for the amazing work Colchester East Hants Hospice Society does coming up before 10 am on Cat Country 99.5 in Truro
#VulvarCancer #CancerSucks #Hospice #Radio
Oncologist appointment tomorrow
Feeling scared
Almost terrified, at moments
Fuck
This is hard
You know it's going to be, but, man
This is rough
#VulvarCancer #CancerSucks
Back to having VON coming twice a day for skin/wound care
They are truly wonderful
So incredibly grateful to have access to the VON and the care they provide
#VulvarCancer #VON #CancerSucks #VONRocks
Heading back home
Bleeding slowed
#VulvarCancer #CancerSucks
Masked mid-40s woman in emergency room
Back at emerge -- bleeding heavily -- again ☹️
#VulvarCancer #CancerSucks
