Building a strong support network is essential for every caregiver! 🤝 Discover strategies to connect with others and find the support you need. You're not alone in this journey! Download your Caregivers Toolkit - www.mefm.bc.ca/caregiver-re... #Caregivers #SupportNetwork #MEFM #LongCOVID
🌟 Excited to launch our Caregivers Toolkit! A must-have for those supporting loved ones with ME, FM, & Long-COVID. Packed w tips & support resources. Download & share now! #MECommunityStrength #MEBCCommunitystrength #MEFMBC #Longcovid #FM #BChealthcare mefm.bc.ca/caregiver-re...
Caregiving for someone with #MEcfs, #LongCovid or Fibromyalgia? A new resource is launching THIS FRIDAY to support YOU. 💪 Stay tuned! #caregiver #resources #comingsoon
🌟 #IWD2025: 80% of ME cases are women. Menopause + ME? Hormonal shifts can worsen fatigue, pain, & brain fog. MYTH: “It’s just aging.” FACT: ME is a distinct illness. Rest isn’t failure—it’s survival. 💪💜
👉 Tips + support: shorturl.at/qDWU0
#MEAwareness #MenopauseAndME
The @bcndp.bsky.social budget has once again failed our community. @josieosborne.bsky.social we urge you to act immediately and prioritize the care this community deserves. Please see our response here -www.mefm.bc.ca/post/response-to-the-202...
More Myth Busting! 'GET' isn’t a cure for ME/CFS or Long-COVID and can be harmful. Protect your health with accurate info! #MECFS #ChronicIllnessAwareness
Myth Busting!! Symptoms of ME/CFS & Long-COVID can fluctuate. Yesterday’s abilities don’t mean today’s. Let’s understand and support! #ChronicIllnessSupport #LongCovid #MECFS
Myth Busting! ME/CFS & Long-COVID are real, with biological changes like immune dysfunction. They're not psychosomatic myths. Let's spread awareness! #MECFS #LongCOVID
Feeling festive without fatigue? Discover pacing strategies to manage your energy this holiday season. Learn more in our free email series! - www.mefm.bc.ca/need-support... 🎉 #ME #FM #LongCOVID #PacingTips
🌟 Your voice matters! Help shape better healthcare in BC. If you're in Canada with ME/CFS, Fibromyalgia, Lyme Disease, or Long-COVID, we want to hear from you. Share your experiences to drive real change.
Take the survey now: info595.questionpro.com/Health2024 #HealthcareBC #PatientVoices
Our FREE Holiday Pacing Module is OUT!! What's your biggest holiday energy-zapper? Share with us! 🌟 www.mefm.bc.ca/holiday-module #HolidayPacing
We need your voice! Help inform better healthcare in BC.
GO TO SURVEY NOW
(info595.questionpro.com/Health2024)
Click on image below to read entire article or view it on our website (www.mefm.bc.ca/.../we-need-...).
Having #LongCovid has made it crystal clear that we do not have a robust, systematic way to support caregivers. We need a co-designed person-centred system where supports are built in
Q: What happens when a #caregiver becomes a #Patient in Canada?
A: Nothing....absolutely nothing
Burnley Express: 'ME: 'My daughter has ME, she went into the appointments able to walk and came out in a wheelchair''
'We speak with Michiel van Zanten who lives with ME & Janet Sylvester from MEAction whose daughter Emma has been living with ME for 12 years'
www.burnleyexpress.net/health/me-ch...
Chiming in to add that my spouse and I have had zero respiratory infections since the last one in January 2020. The only reason: Masks. All public places. We started off with cloth, upgraded to KN95s, and then finally N95s when Omicron popped up. Our prepandemic average was 2-3 per person per year.
Today, on the International Day for Persons with Disabilities, I am beyond proud that the Canadian Institutes for Health Research have released their Anti-Ableism Action Plan, entitled "From Intention to Impact". 1/3
cihr-irsc.gc.ca/e/54121.html...
Immune cells become exhausted in #MECFS. Read about the latest findings of the PNAS research paper of M. Hanson et al. here: news.cornell.edu/stories/2024...
The BMJ will remunerate patient and public reviewers | The BMJ www.bmj.com/content/387/...
#PatientEngagement
This #GivingTuesday, support those living with ME, FM, & Long-COVID! Your gift can funds vital support groups & email series that empower individuals. 💌🤝 www.canadahelps.org/en/dn/9932?v...
Monthly or 1-time donations make a difference! Not able to give? Share our mission or sign up for membership.
We made a zine! @thesicktimes.bsky.social commissioned artist Katie Drackert to create a printable mini-magazine of our first year’s highlights, as well as top Long COVID and COVID-19 resources. Check it out: thesicktimes.org/2024/12/02/s...
Canada's proposed Long COVID recommendations (CAN-PCC) pose harm to patients.
I spoke with experts + advocates including @sunsopeningband.bsky.social, Adriana Patino, @sabrinapoirier.bsky.social to breakdown why.
#pwME #LongCOVID #CanadaSky
simonspichak.beehiiv.com/p/everything...
Those who continue to push the FND/psych narrative should lose their medical licenses for wilfully ignoring scientific advances and their Hippocratic oath “to do no harm”
You can protect yourself & your loved ones from COVID with these 6 steps:
😷 Wear a respirator mask
🏠 Stay home if sick
⏰ Test if you have symptoms
🌳 Let fresh air in or meet outdoors
💉 Stay up to date with your vaccinations
💡 Talk to your GP about COVID medicines.
youtu.be/FlBfq22nxt8?...
Red and white graphic of CAN-PCC Canadian guidelines for post COVID-19 condition. CAN-PCC recommendations public comment survey – November 2024. Draft recommendations for input.
Advocacy alert ‼️ New Canadian draft recommendations for Long Covid are out, & they include concerning guidance to EXERCISE to prevent Long Covid, & to use CBT as a treatment.
Have your say by Wednesday Nov 27 at 8:45 pm Pacific / 11:45 pm Eastern: www.research.net/r/CAN-PCCRec...
Your usual reminder that CBT has *never* been shown to improve *actual physical symptoms* in #MECFS patients.
Self-reported well-being is often higher after CBT; but that's what CBT does -- it gets people to look at things more positively.
Actual strength, endurance, mobility etc all UNAFFECTED
www.youtube.com/watch?v=278v... Videos of the PolyBio symposium held on Friday are available on youtube. Lots of exciting work being done by so many researchers. Thank you so much.
Let’s start a thread of awesome follows on here that relate to #MyalgicEncephalomyelitis #MECFS #LongCovid or #InfectionAssociatedChronicIllnesses.
Because it is hard to rebuild community on a new platform…but doing it as a #PwME…nearly impossible.
Let’s help each other with safe suggestions.
