A snippet from our upcoming book. Sharing the stories of those living with myalgic encephalomyelitis.

Come to a meeting!
The WIMEL group who authored this are having a well-earned break but there are plenty of other groups.

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Coming soon... Our book was written in community sharing our experiences of living with myalgic encephalomyelitis

Thursday 9th April Early Pillows Optional Prompt: Transcending Lifetimes 2:00 pm GMT
Thursday 9th April Standard Pillows for all forms of writing 11:00am PST.
Friday 10th. Pillows Write Now. Instant writing 11:00am PST
Sunday 12th WIMEL Social Media Briefing.11:00am PST.

IMAGE DESCRIPTION: Southend VOX Community Choir logo. ME Association logo. Heading - "The MEA Are Southend Vox Community Choir’s Charity of the year! Come along to their performance in the park: July 4th, Southend-On-Sea"

1/2: Southend Vox are a community choir based in Southend-on-Sea. Annually their members select a charity to support throughout the year with various fundraising events.

This year they chose the ME Association!

Thank you to Southend Vox for supporting us!

#MECFS #pwME #SouthendOnSea

Members of the Pillow Writers are speaking at 8:00pm on Wednesday 8th
Symposium for Disability and Accessibility at Yale.

Tickets are free

dandasymposium.yale.edu/events/2026-...

Sometimes, even after all these years, I misjudge the day and it becomes impossible to get ready for the night ahead.

On the plus side, tomorrow is Thursday, Early Pillows followed by Standard Pillows .

Hope to see you there.
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Sunday 12th April 11:00am PST

WIMEL Social Media Briefing. Half of writing a book is marketing it.

Please join us on Zoom to discuss what you can do to help promote the WIMEL book What is Myalgic Encephalitis Like.

#ME/CFS

𝙒𝙝𝙖𝙩 𝙞𝙨 𝙈𝙮𝙖𝙡𝙜𝙞𝙘 𝙀𝙣𝙘𝙚𝙥𝙝𝙖𝙡𝙤𝙢𝙮𝙚𝙡𝙞𝙩𝙞𝙨 𝙇𝙞𝙠𝙚? This book is a must-read for medical professionals,
students, policy-makers, researchers, caregivers, and all affected by myalgic
encephalomyelitis (ME). WIMEL — a Pillow Writers group

You should write a piece

“Advice for the newly diagnosed”

Then we could all just post a link instead of writing it all out each time.

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What a brilliant and comprehensive answer.
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Our latest News in Brief summary has headlines and links to further reading about ME/CFS, Long Covid, and related news for the week of Mar. 23-29:

Topics:
News, advocacy, articles
Coming events
Research news and commentary
Published research

www.s4me.info/threads/news...

#MEcfs #LongCovid

This week:
Monday 30th March The Annex for long form writers 11:00am PST.
Thursday 2nd April . Early Pillows ‘Pyjama Party’2:00pm GMT.
Thursday 2nd April Standard Pillows for all forms of writing 11:00am PST.
Friday 3rd April Pillow Crafters for people who like to create arts and crafts 11:00am PST.

"All you need is love. But a little chocolate now and then doesn't hurt." Charles M. Schulz Huge thanks to Jo and Rob at The Chocolate Shop for partnering with The Red Tree and ME to help raise awareness of the ME/CFS research led by Professor Chris Ponting at The University of Edinburgh and...

A chocolate shop in Southport Lancs has created a limited-edition red leaf chocolate to raise awareness of ME and money for Prof Ponting's research. The red leaf is a symbol of hope for Joe Greer, whose daughter has severe ME
tinyurl.com/22u24zr2

Just because I could do it yesterday doesn’t mean I can today, and just because today is a no doesn’t mean tomorrow will be. My body runs on its own schedule, not my expectations. mybodyistryingtokillme.com

Simple graphic with the two pages of the Quick Start Guide at the bottom. Text above: ME/CFS Advocacy Week 2026 Register: https://tinyurl.com/MEActionAdvo2026. Quick Start Guide Now Available!

The ME/CFS Advocacy Week Kickoff Call just ended. @solveme.bsky.social will be sharing the recording!

The 2 main things to know:
1. Register to participate & everything you need will show up in your inbox. tinyurl.com/MEActionAdvo...

2. Save this quick start guide. www.canva.com/design/DAHEr...

This week’s meetings.

Thursday 26 March Early Pillows Optional Prompt: The Coat Abandonment Hotline. 2:00pm GMT.
Thursday 26 March Standard Pillows for all forms of writing 11:00am PST.

Our international writing community finds solace in helping others better understand what living with myalgic encephalomyelitis (ME) is like. A Pillow Writers group sponsored by ME Action strives to bring support and awareness for those living with ME.

On Medical Education for Long Covid, ME and IACC with Prof David Putrino In this special episode for Long Covid Awareness Day, we speak with Professor David Putrino, neuroscientist and rehabilitation specialist at the Icahn School of Medicine at Mount Sinai - and general…

Fantastic interview with Dr Rupert Higham from the Institute of Education at UCL and Prof David Putrino 'On Medical Education for Long Covid, ME and IACI'

It is divided into short named chapters for accessibility and there is also a transcript. #LongCovidAwarenessDay
youtu.be/S5amDZFaVeE?...

IMAGE DESCRIPTION: Photo of cheering people running a marathon. Heading - "Calling all friends and family of the MEA! Got a challenge in mind? Do it for the ME Association and make it count." QR code bottom right.

Calling all friends and family of the ME Association!

Looking for a new challenge in 2026? Why not fundraise for The MEA!

Find out more and sign up to your event today: meassociation.org.uk/get-involved/fundraise-f...

#MECFS #pwME #Fundraising #MEAssociation

Loving the optimism.
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Pillow Writers An ME/CFS writing group

Yay Thursday!

Standard and Early Pillows day.

Free writing Groups over Zoom for ME/CFS, Long Covid sufferers

pillowwriters.wordpress.com

Want to learn more about the ME Association?

Check out our LinkedIn page, where we share current news, information and charity updates to help keep you in the loop.

Head on over: ME Association | LinkedIn

#pwME #MyalgicE #MECFS #LongCovid #MEAssociation

When people tell me, "I've heard enough about your illness," I tell them a little more about my illness, in case they were just being polite.

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Our online community, ME Connected, has over 1,400 members supporting each other and discussing topics ranging from tips and tricks on managing ME/CFS, to our popular book club!

Join today:  https://meassociation.org.uk/discord

#pwME #MECFS #LongCovid #PostCovidSyndrome #Discord #OnlineCommunity

We fully support this decision and we’re a writing group.