Black and white ink drawing of an oak seedling sprouting surrounded by Sun rays
Happy April!
A panel from my graphic memoir The Facts of Life (2017). I have some copies for sale right from the horse's mouth and will list them somewhere soon.
#comics #NatureWriting #Writing #ArtSky
I’ll soon have a couple of #comics mentoring spots opening up; so if you’d welcome a regular check-in on your comics or #graphicnovel project, something to consider.
I’m just one of the mentors available via the @ldcomics.bsky.social mentoring scheme www.myfanwytristram.com/comics-and-g...
URGENT:
An NHS hospital is starving a severe ME patient & has now stopped giving her fluids. Savannah has now lived with severe ME for several years - but the Queen Elizabeth Hospital in South London is putting her life at risk. @h-sharland.bsky.social has the story
www.thecanary.co/uk/analysis/...
Please consider donating to Savannah's fundraiser so she can afford care and continue legal representation. She has v severe ME with feeding problems and is being treated appallingly in QEH hospital right now.
Please share! 🙏
Any questions, please read the fundraiser updates.
#MEcfs #Disability
Wow.
www.theguardian.com/politics/202...
A hand-drawn text: ‘New look!’. Under it A Quiet Storm cloud logo. And below the logo a text: ‘Our updated website is now live!’.
We have finally finished updating our online art gallery into a dark theme!
A Quiet Storm showcases art made by people who have experienced severe ME/CFS.
Our full statement is below.
www.aquietstorm.me
#MECFS #pwME #Art #OnlineArtGallery
A photo of a robin on a curved red brick wall top. Words: I took meow worms today but no one was interested in them. This was the result of another photography twitcher with sunflower seeds. I'm jealous of his lens. It's bigger than mine, but I suppose it's what you do with it that counts.
A robin photo from when I was able to go out with my modest telephoto lens (I was unable to hold anything bigger than that up). I can't believe this was 10 years ago.
#Nature #Robins #Photography
📚💙 A member of our book club on Fable has set up her own space, 'Endless Horizons' for teens living with disabilities to help build community and connection.
If you know a disabled teen who would be interested here is the link! 👇
Looking forward to non-fiction workshop with Rae Earl this morning with @ldnwriterscentre.bsky.social
I'm attending three writing events this week, and I'm completely bedridden.
It wouldn't be possible without online provision. Disabled writers and artists deserve inclusion.
#DisabledWriters
I might be past my best by then, but I do hope to make it.
It's great to have successes in creative work but don't pull the ladder up after you. It's good to share knowledge, other people's work and help others on their path. The world is better for art, writing and creativity.
#DisabledArtists #DisabledWriters
#Writing #ArtSky #Comics
The Sisters are great guests. Come in person this evening or watch the improved live stream on www.youtube.com/@panelborder...
Today (23 Feb) reps from Forward ME are meeting with the DHSC and NHS England to discuss progress on the development of a clinical care pathway for people with mild-moderate ME/CFS. However, crucially, the pathway fails to include people with severe ME. 1/3
TW: Very distressing content
Clip from Austrian TV report on Samuel, who developed severe ME/CFS following Covid and chose assisted suicide on his 22nd birthday. Includes a brief interview with him before his death. #MECFS #LongCovid
My writing software doesn't recognise the word 'mither'. How very dare it?
#AmWriting
Update on Savannah’s case in The Times. She has severe ME/CFS, has lost 30kg and eaten nothing since January 18.
Sonya Chowdhury, CEO of Action for ME, describes the situation as “appalling” and says she is very worried Savannah could die.
archive.ph/J3Xv3
In my experience I found that if you pull on the connecting bit it gets smaller instead of freeing up.
Thank you.
A four panel comic with a teal background. image is of struggling white skinned hands clasped by a cable tie and resulting injuries. ME is like a cable tie. The harder you fight it the tighter its grip
A metaphor for PEM.
New short comic about ME.
#Comics #MEcfs #Disability
#DisabledArtists #pwME
#MyalgicEncephalomyelitis #GraphicMedicine
Don't miss this on Tuesday eve ONLINE - Morag's book is so brilliant and necessary - a vital amendment to so much walking lit - an intersectional feminist history of walking as creative practice, radical act and resistance, with a focus on queer, disabled & working-class lives. #BookSky #WalkingLit
CW Edited clip from an ORF report on the death of Samuel by assisted suicide.
Highlights that many people don’t know about the illness, there are no effective treatments, there is a lack of care, services, financial aid and support for people with #MECFS in Austria.
That's great.
Hat Festival tho - nice indeed!
I'll save 19th June!
People looking at Myf Tristram's pictures
ROAD TRIP (well, rail trip)!
I've got a load of events set up around the launch of Noisy Valley and I'd love to see you at one of them. I'm listing them all in a newsletter to go out tomorrow, so do sign up for all the details on the where and when! mailchi.mp/3e30144be390...
Yesterday, we launched Brave New World? a ground-breaking report about the impact of Generative artificial intelligence (GenAI). This major new study has been published in partnership with other creator-led organisations. buff.ly/vIuLqfn
NEW 🚨 A South London hospital is still putting severe ME patient Savannah's life at risk and a clinician who psychologises ME might be why.
www.thecanary.co/uk/analysis/...
This also goes for lists of protected characteristics in diversity discourse that miss disability.
