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Posts by BRCAresponder

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Lesley Ann Warren on the importance of breast cancer screening & her movie 'Love Danielle'

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2 days ago 2 2 0 1
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FYI: 23andMe's #BRCA test not clinical grade & only covers 44 variants out of thousands, so a negative result does not mean you are in the clear. Certified genetic counselor=most qualified to assess cancer risk, order appropriate testing panels, & interpret results. findageneticcounselor.nsgc.org

1 day ago 0 0 1 0
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BRCA gene mutations now implicated in thyroid, bladder, skin, and head and neck cancer An international group have discovered associations between pathogenic variants of the BRCA 1 and 2 genes and four types of cancer. Published in ESMO Open, the findings expand the potential for p...

An international group led by researchers from the RIKEN Center for Integrative Medical Sciences (IMS) in Japan have discovered associations between pathogenic variants of the #BRCA genes & 4 types of cancer.

#hereditarycancer #genetics #cancerresearch #medsky

6 days ago 1 2 0 0
Cover of the booklet Peas and Q’s. Text: “Hereditary Cancer Info. PEAS and Q's is a 20-page booklet that helps illustrate the terms related to genes, genetic mutations, & hereditary cancer in a simple question-and-answer format.

Download a free PDF copy at www.genetionary.org.”

Cover of the booklet Peas and Q’s. Text: “Hereditary Cancer Info. PEAS and Q's is a 20-page booklet that helps illustrate the terms related to genes, genetic mutations, & hereditary cancer in a simple question-and-answer format. Download a free PDF copy at www.genetionary.org.”

This resource was produced to try and help explain genetic mutations and cancer risk to those unfamiliar with the subject. Download a free PDF copy at www.genetionary.org.

#freebooklet #genetictesting #health #cancer #HereditaryCancer #genetics #geneticmutations #familyhealth

1 month ago 3 2 0 0
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Health screenings for BRCA carriers do not stop after preventive surgery. Here's what came up at my 6 month high-risk check up and why it matters.

@oncodaily.bsky.social @oncoalert.bsky.social
#BRCA #Previvor #HereditaryCancer #OncoDaily #OncoAlert

2 weeks ago 1 0 0 0
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Frontiers | Testing for hereditary cancer genes in men: a missed opportunity for cancer prevention IntroductionGenetic testing for inherited cancer risk syndromes can inform targeted surveillance and intervention, but testing for male patients is inadequat...

Men represented a minority in #genetictesting for #hereditarycancer but had ⬆️ test + rates. These findings underscore the need for ⬆️ integration of routine screening for cancer risk factors in primary care settings to enhance early detection & prevention.

#menshealth #BRCA #medsky #cancerresearch

2 weeks ago 1 1 0 0
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Amy Byer Shainman Amy Byer Shainman is a BRCA1 carrier and a previvor advocate known as BRCAresponder, an author, and a film producer behind feature film Love, Danielle.

My advocacy started from frustration.

I help people better understand hereditary cancer and the decisions that come with it. I can’t sleep at night if I don’t.

www.ourcancerstories.com/breast-cance...

3 weeks ago 1 1 0 0
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Previvorship - Final report Final project report: Social media for carriers of hereditary cancer syndromes

Final project report: Social media for carriers of hereditary cancer syndromes. @stefaniavicari.bsky.social @leverhulme.ac.uk

www.previvorship.org/final-report

#BRCA #lynchsyndrome #socialmedia #research #hereditarycancer

1 month ago 5 2 0 0
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Father of 3 ‘Shocked’ by Rare Breast Cancer Diagnosis on 53rd Birthday, Says Regular Testing ‘Saved My Life’ (Exclusive) After discovering he carried the BRCA2 gene in 2013, one man began getting yearly mammograms. Twelve years later, he was still “shocked” to learn he had breast cancer and is now sharing his story to r...

In 2013, following a strong #familyhistory of #breastcancer, Jacob Johnson learned he was #BRCA2 +. Over a decade later, at the age of 53, the father of 3 was diagnosed with a rare & aggressive form of cancer in his right breast.

#bcsm #hereditarycancer #menshealth #genetics #patientexperience

1 month ago 3 2 0 0
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Attending SGO this year? Add "Love, Danielle" when registering! This story needed to be told and I am so grateful it is now being seen by the medical community at one of the most important women's cancer conferences of the year. www.sgo.org/events/annua...

#GynecologicOncology #BRCA

1 month ago 1 2 0 0
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Love, Danielle - A Film About Previvorship | BRCA & Beyond

Thank you to Marisa and BRCA & Beyond for such a thoughtful conversation. Lead actress Devin Sidell and executive producer Amy Byer Shainman talked about the lived experiences behind Love, Danielle and the realities of navigating hereditary cancer risk.
shows.acast.com/689fca81aabb...

3 months ago 1 1 0 0
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Danielle's Decisions and Why Previvor Choices Must Be Personal - BRCAStrong By Amy Byer Shainman, @BRCAresponder     Love, Danielle is the narrative feature film I produced about a woman navigating hereditary cancer risk and the deeply personal decisions that come with it.   ...

Previvor choices are nuanced, personal, and shaped by where you are in your life. Danielle’s decisions in Love, Danielle @lovedaniellefilm.bsky.social were the right choices for her.
I wrote about this in my guest post on BRCAStrong.
www.brcastrong.org/danielles-de...
#BRCA #previvor

3 months ago 1 1 0 0
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What Men Need to Know About BRCA and Other Gene Mutations | Breast Cancer Research Foundation Many of us are familiar with the BRCA1 and BRCA2 genes that, when mutated, are linked to an increased risk of breast cancer in women.…

What Men Need to Know About #BRCA & Other Gene Mutations: Get to know your #familyhistory on both sides. If inherited gene mutations are prevalent in your family, consider #genetictesting
If you’re a BRCA carrier, stay on top of breast self-exams & prostate exams.

#menshealth #genetics

4 months ago 3 1 0 0
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NHS restart of BRCA testing is good news for community – and Britain as a whole - The Jewish Chronicle Wes Streeting’s welcome announcement points the way ahead for Government and UK’s Jews in 2026

NHS restart of BRCA testing is good news for community – and Britain as a whole

www.thejc.com/opinion/nhs-...

4 months ago 2 1 0 0
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The male breast cancer story of former San Diego Chargers defensive tackle, Tony Savage via My Faulty Gene.
Watch here: familygeneshare.org/T3140

#FamilyGeneShare #BRCA #ItsNotJustPink #MaleBreastCancer #SanDiegoChargers #MustWatch #HereditaryCancer #MensHealth

4 months ago 1 0 0 0
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Focus on HRT Why I’m Excited HRT Is Finally Getting Attention  Author Georgia Hurst  Georgia Hurst is a fierce patient advocate for those with Lynch syn...

thebrcaresponder.blogspot.com/2025/11/focu...
#BRCA #hereditarycancer #blogpost Hormone Replacement Therapy - HRT #HRT

5 months ago 1 0 0 0
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Asking For a Friend: How I Found Strength While Facing Breast Cancer — Twice How I Found Strength While Facing Breast Cancer — Twice

Asking For a Friend: How I Found Strength While Facing #BRCA related #BreastCancer — Twice

#hereditarycancer #bcsm #patientexperience #womenshealth #genetics #medsky

5 months ago 1 1 0 0
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Treatment of infertility and risk of breast cancer among women with a BRCA pathogenic variant: a matched case-control study - BMC Cancer Background The global trend toward delayed childbearing has led to an increased use of fertility treatment, including in vitro fertilization (IVF) and hormonal medications. Concerns regarding the pote...

Treatment of #infertility & risk of #breastcancer among women with a #BRCA pathogenic variant: An international matched case-control study.

#bcsm #hereditarycancer #womenshealth #genetics #camcerresearch #medsky

5 months ago 1 1 0 1
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We're in @usweeklymag.bsky.social!! 🤩 Check out the exclusive interview with our very own Jaime King 💗👏

www.usmagazine.com/entertainmen...

#USWeekly #LoveDanielleFilm #Exclusive

5 months ago 1 1 0 0
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#BRCA
Facts First

@lovedaniellefilm.bsky.social

5 months ago 1 1 0 0
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#BRCA
Facts First

@lovedaniellefilm.bsky.social

5 months ago 1 1 1 0
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Meet Ellen Matloff, a certified genetic counselor and Co-Founder and CEO of @mygenecounsel.bsky.social 🩷

#BRCA #LoveDanielleFilm #LoveYourself #Previvor

6 months ago 2 1 0 0
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Love, Danielle is proud to have Nightbirde's song, "It's OK", as the end credit song of our film. 🎶🩷

#ItsOK #Nightbirde #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness

6 months ago 2 1 0 0
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This Men's Breast Cancer Awareness Week, Meet Raymond Cruz, "Stan" in Love, Danielle 🩷

#BRCA #LoveDanielleFilm #LoveYourself #Previvor

6 months ago 1 1 0 0
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Meet Lesley Ann Warren, "Candie" in Love, Danielle 🩷

#BRCA #LoveDanielleFilm #LoveYourself #Previvor

6 months ago 3 1 1 0
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October is Breast Cancer Awareness Month - a reminder to honor previvors, survivors, and support those with metastatic disease. 💗

#BreastCancerAwarenessMonth #LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness

6 months ago 1 2 0 0
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LOVE, DANIELLE - Fri. Oct. 17 - 7pm

Award-winning hereditary cancer feature film.
A patient-eye view of the “before” that connects genomic discovery to real world decision-making.

Learn more, watch the movie trailer, and RSVP
via conference schedule/mobile app.

#ASHG25 #LoveDanielleFilm #BRCA

6 months ago 1 0 0 0
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#ASHG2025

LOVE, DANIELLE screens Friday, Oct 17, 7:00pm

Learn more, watch the movie trailer, and RSVP
via the conference schedule or mobile app.

#ASHG #HumanGenetics #LoveDanielleFilm #BRCA #hereditarycancer

6 months ago 0 0 0 0
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Stress may increase cancer risk in people with inherited cancer genes Stress may increase cancer risk in people with inherited cancer genes

These findings show that the stress hormone cortisol increases the risk of #breastcancer and #prostatecancer in people with #BRCA mutations @icr.ac.uk

#hereditarycancer #genetics #bcsm #medsky #menshealth #cancerresearch #womenshealth

6 months ago 4 1 0 0
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It's been 7 days since Love, Danielle has been available to watch! 😍

Here are 7 reasons as to why YOU should watch Love, Danielle! 💗

#LoveDanielleFilm #BRCA #Previvor #ThanksALotDNA #BreastCancerAwareness

6 months ago 2 1 0 0