In case you missed the 2026 curve for e.g., F awards because it's completely flatlined, here's a big fat arrow showing where we are. Curves for T and K awards are just as bad.

some data on the shrinkage

We want to talk to anyone in prison who thinks they may have Long COVID, and would appreciate readers sharing this call for sources with any loved ones, friends, or contacts. People in prison have limited access to information, so they may not know much about what Long COVID is. Rather than just asking if someone has Long COVID, you may need to explain that a person might have it if they got COVID-19 and never felt they really got all the way better or if an old health issue got a lot worse after COVID-19. Anyone with ideas for sources should contact reporter October Krausch by May 31 at rebelprof@proton.me If writing from the prison: The Sick Times Attn: October Krausch PO Box 331009 Brooklyn, NY 11233

Reporter @octoberk.bsky.social is working with The Sick Times on an investigation about the experience of #LongCOVID in prison, which will also highlight how people outside of prisons can advocate on this issue.

I'm working on a story for @thesicktimes.org about RECOVER clinical trial results that have been shared so far (from the VITAL, NEURO, and AUTONOMIC studies), and am looking for people in the #LongCOVID and IACC communities to share what they think of the findings. DM or email me!

2. ✉️ Email your Senators with the same ask using this handy LCC email tool tinyurl.com/LongCOVIDEmail which provides an email template & sends directly to your 2 Senators asking them to sign on to the Dear Colleague Letter and #FundLongCOVID in 2027 Appropriations. 5/x

Drawn image of the U.S. Capitol dome, with the words underneath: Long COVID patients have waited too long for TESTS, TRIALS & TREATMENTS. #FundLongCOVID

📣U.S. Action Item: #pwLC #POTS #pwME #NEISVoid we need your help! Will you contact your Senators & ask them to sign on to the FY27 Senate “Dear Colleague” Letter for over $210 million to #FundLongCOVID in 2027 Appropriations using our EASY low-spoons call/email tool?🧵

The Paradox of Modern Medicine Testing has become so advanced that doctors now miss important elements of diagnosis.

A new piece from me at @atlantic: Modern medicine has diagnosis crisis, which isn't just about rare diseases — a huge number of people with #longCOVID, #MECFS, & more go needlessly undiagnosed b/c patients aren't listened to, as Alexandra Sifferlin shows: www.theatlantic.com/books/2026/0...

The Paradox of Modern Medicine Testing has become so advanced that doctors now miss important elements of diagnosis.

The Atlantic: 'How to Fix A Diagnosis Crisis'

By Meghan O’Rourke

'Today, millions of people live with poorly understood chronic illnesses—myalgic encephalomyelitis..long COVID—that don’t fit cleanly into established categories or show up on tests..'

www.theatlantic.com/books/2026/0...

CTN Lite Patient & Caregiver Survey: Shaping the Priorities of OMF's Clinical Trials Network Open Medicine Foundation (OMF) has launched CTN Lite — a new decentralized clinical trials program designed to bring meaningful treatment research directly to patients, faster and more accessibly than...

@openmedf.bsky.social is collecting community input on ME/CFS clinical trial priorities. I encourage folks affected by ME to share their thoughts:
docs.google.com/forms/d/e/1F...

A collage graphic shows an image of a Black woman wearing a KN95 mask and headscarf, against a background with images of the coronavirus and the ocean. The text reads, “The Sick Times. Long COVID is significantly underreported across the globe. Researchers and advocates are trying to change that. By Jamie Ducharme.”

"We are not treating [Long COVID] with as much seriousness as we should be treating it. And when that doesn’t happen, then people don’t open up." - Sourya Sidhhartha Dash, Long COVID advocate in India

Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries. bit.ly/4dQALNd

Long COVID is significantly underreported across the globe - The Sick Times Long COVID, which has affected more than 400 million people around the world, is often underreported, particularly in low- and middle-income countries (LMICs).

“We are not treating [Long COVID] with as much seriousness as we should be treating it. And when that doesn’t happen, then people don’t open up.”

New feature by Jamie Ducharme about #LongCOVID's unreported toll across the globe.

thesicktimes.org/2026/04/14/l...

Interview with Julie Rehmeyer about her NY Times' Modern Love piece YouTube video by David M Tuller

Big thanks to David Tuller for this interview about my Modern Love piece about Beth Mazur. www.youtube.com/watch?v=DXeR...

The essay itself is here: www.nytimes.com/2026/04/03/s...

TRAILER: Buried Alive with M.E.

I’ve spent the last months making a film for M.E. Kills, an online exhibition by A Quiet Storm.

People with ME die every week. Many more are left to rot in dark rooms without care, disbelieved and dismissed. It’s a living death.

#pwme #millionsmissing #severeME

1/

Genomics of GLP-1 drug response and side effects
With genomic and demographic data it's possible to predict magnitude of weight loss response
@23andme23.bsky.social
nature.com/articles/s41...

Long COVID disability burden in US adults - Communications Medicine Bonuck et al. quantified the disability burden of Long COVID in U.S. adults using years lived with disability and compared its NIH funding to that of 68 other conditions by sex predominance. Long COVI...

"Long COVID received 14% of its disability commensurate funding...
ME/CFS is the most under-funded condition, receiving <1% of its YLD [years lived with disability] proportionate funding."

Plus the LC disability weight of 0.21 likely underestimates its burden.

www.nature.com/articles/s43...

We make a proposal: we believe that *routine* patient review for *all* manuscripts on Long COVID would create a clear incentive for institutional researchers to preemptively consult with and integrate feedback from patient researchers. 6/

THE LANCET Infectious Diseases COMMENT • Online first, March 31, 2026 The case for routine patient review in long COVID research Letícia Soares . CH Romatowski . Gina Assaf . Chloé de Canson

Many Long COVID scientists fail to meaningfully draw on the insights of patient-researchers. In our Comment for @thelancetinfdis.bsky.social, we propose a solution: make all Long COVID papers undergo pre-publication patient review. 1/

“I think it’s incredibly important to do whole genome sequencing for outbreaks,” Andersen said, “but we shouldn’t need to do this for measles in the first place, because we have an extremely effective and safe vaccine.”

Long COVID and risk of incident cardiovascular disease: a prospective cohort study using the Multimorbidity Integrated Registry Across Care Levels in Stockholm (MIRACLE-S) cohort Long COVID is associated with increased risk of incident cardiovascular disease, particularly cardiac arrhythmias, heart failure, and coronary artery disease. These findings underscore the need for sy...

The incidence of cardiovascular disease in people with #LongCovid is elevated, as seen in a prospective study of >1.2 million individuals in Sweden, specifically coronary artery disease, arrhythmias, and heart failure
www.thelancet.com/journals/ecl...

There have been no federal funding opportunities in the infectious disease space for close to 1.5 years.

A while back, a few "forecasted" opportunities popped up, however, all of those just went the way of the dodo 👇

Good read on what's happening here: elizabethginexi.substack.com/p/inside-the...

If FDA does this, which is likely succumbing to pressure from RFK Jr, it crosses a new red line and, as far as I know, unprecedented. Lifting a ban on drugs that are injected into the bloodstream without data for safety or efficacy, so they can be compounded and further promoted to Americans.

If I magically woke up 100% better tomorrow I would still be extremely not OK. I would still have lost my whole life & my ability to relate to or trust most humans. Getting my body back would bring the potential of rebuilding a life, but I’d be doing it from scratch & from a place of enormous trauma

Mifepristone Could Treat Endometriosis, Some Cancers, Depression and Chronic Illness—If Politics Didn’t Interfere Across a range of conditions that disproportionately affect women, research into mifepristone's potential has been slowed, defunded or blocked altogether. Nowhere is that clearer than in the treatment...

Ms. Magazine: Mifepristone Could Treat Endometriosis, Some Cancers, Depression & Chronic Illness—If Politics Didn’t Interfere

“We’re using mifepristone..to reboot..adrenal axis.." Klimas says

"She also sees potential..to treat chronic fatigue syndrome, long COVID.."

msmagazine.com/2026/01/21/m...

I look forward to understanding biological differences between pwME and/or LC who feel better in pregnancy vs worse,
1) to help people make decisions about how high risk pregnancy might be for them &
2) in hopes the findings give us clues re: how to help people pwME/LC feel better in general.

2/2

Grateful to see coverage of pregnancy with LC and/or ME!

When I asked an OB/GYN (years ago) about what to consider re: pregnancy with ME & LC, I was told
"It's just a matter of how tired you're willing to be."

It's SO much more.

1/2

Transferring IgG antibodies from patients with #LongCovid to mice recapitulates many symptoms
www.sciencedirect.com/science/arti...

"ME patients can sometimes short-term push outside our energy envelope,
but as one physician said, if you do that it’s like borrowing money from the mob –
you will pay and then some.
This is most often how people with ME worsen and die.
...
Don’t let bias and prejudice steal your hope."

Reporter, Nature Job Title: Reporter, Nature Location: Washington DC or New York (Hybrid Working Model) Application Deadline: March 20, 2026 About Springer Nature Springer Nature is one of the leading publishers of re...

🚨 Want to work at @nature.com with me? We have an ultra-rare opening on my team of reporters.

This reporter, based in NYC or DC, would cover physical sciences, energy, environment, Al and policy.

You'd get to work with some of the most talented editors in the biz! DM w/ any Qs.

Apply by March 20!

If you were/are in the healthcare field and are living with Long Covid, please fill out this survey (to help out a grad student): twu.qualtrics.com/jfe/form/SV_...

150,000 undercounted deaths in the 1st yr of the COVID-19 pandemic.

Disproprotionately represented were Black, Latine/o/x, Indigenous, Asian ppl, ppl w/ less than a H.S. education, ppl w/ lower household incomes & worse preexisting health.

Thus, underestimating the extent of COVID19 inequities