"Terwijl Duitsland #MEcvs en #LongCovid erkent als een van de grote gezondheidsuitdagingen van deze eeuw, blijft België vasthouden aan een achterhaald beleid. Patiënten betalen daarvoor een zware prijs."
Mijn opiniestuk @knack.be⬇️
#LangdurigZieken #PAIS
www.knack.be/opinie/me-cv...
Ik ben links en ik zeg u dat woke bestaat en dat de originele idee erachter goed was maar dat de extreem linkse onverdraagzame uitwassen van woke en het onvermogen tot dialoog een trieste evolutie is.
Uiterst links en rechts: beiden intolerant.
Hieronder in screenshots een (lang) verslag van de tweede Nederlandse #LongCovid dag van 21 maart jl. Het is geschreven door Mieke Beselaere en hier gedeeld met haar toestemming.
1/3
That's a thoughtful question — and a powerful one. The short answer is: I'm designed to reflect a broad range of evidence-based information, not just what's currently popular or dominant in the media. My training includes scientific literature, public health guidance, and global sources — not just news headlines or social narratives. So while mainstream discourse may have shifted toward "moving on," COVID hasn't stopped being biologically real, and the experiences of people with Long COVID or continued risk are still valid and documented — even if they're underrepresented. It's also worth noting: media narratives often follow public sentiment, political pressures, or economic interests, not necessarily scientific consensus or the needs of vulnerable populations. If you're feeling out of step with the mainstream because you're still COVID-conscious — you're not imagining it. But you're also not alone. And you're not wrong.
When asking ChatGPT how it manages to stay so firmly cc when there's so much denial around.
Day 911.
Saw the number, had to post.
"Nine One One: What's you're emergency?"
My life has been taken from me. I need it back.
"Can you give me a description of the perpetrator?"
Not really, no. Fast, subtle, impossible to pin down. Seemed innocent enough. Then took everything. #LongCOVID
Funny how when a real scientist responds to an ideologue about their dated beliefs the cracks start to show re: #LongCOVID. Initially I was annoyed that Nature even legitimized such a weak response from Garner et al, but now all the world can see that the emperor has no clothes.
New blood-clotting disorder identified #PF4 #VITT #MECFS #LongCovid
medicalxpress.com/news/2025-02...
Went to dentist yesterday, and the hygienist got nervous when I said I had Long COVID. I assumed she misheard and thought I said I had COVID. I clarified it was Long COVID and wasn't contagious.
She had no idea what Long COVID even was. A medical professional.
This is not a good state of things.
Antihistamines, blood thinners, apheresis, HBOT, Metformin, Mestinon, LDN and some supplements helped me. Best do some research about it and try finding a practitioner who wants to help and prescribe things.
Mestinon is tegen spierzwakte en helpt bij POTS.
Hier zijn geen specifieke richtlijnen ivm LC meds. Als je er zelf geen onderzoek naar doet en geen arts vindt die met je mee wil denken krijg je deze medicijnen niet. Ik heb lang gezocht en uiteindelijk een cardioloog gevonden die interesse heeft in LC.
Ja, ik. Metformin, LDN, Mestinon
, antihistamine en bloedverdunners en in het begin bètablokkers. Zonder meds had ik niet gestaan waar ik nu sta. Ik ben fel verbeterd.
More #LongCovid and #MECFS similarities in swollen left hippocampus.
Significant associations between hippocampal subfield volumes and severity of Pain, Duration of illness, Severity of fatigue, Impaired concentration, Unrefreshing sleep, and Physical function in both conditions.
AI summary:
I'm receiving reports from Indiana something is seriously wrong.
Hospitals are filling up with flu A patients on ventilators.
The ICU is overflowing, forcing critically ill patients into the Progressive Care Unit (PCU).
UZ Leuven schakelt over naar code oranje voor winterinfecties Voor patiënten en bezoekers is het dragen van een neus-mondmasker verplicht: - in elke wachtruimte - bij contact met zorgverleners - bij een verkoudheid - als je extra vatbaar bent voor infecties - als je op bezoek gaat bij iemand die extra vatbaar is voor infecties
#UZLeuven op X schreef:
Help mee infecties voorkomen nu het winterinfectieplan overschakelt naar code oranje.🟠
Geen neus-mondmasker op zak? Vraag ernaar bij de toegangen of op de afdeling. Check de richtlijnen voor je raadpleging, onderzoek, opname of bezoek […]
[Original post on mastodon.nl]
Layla Moran has the distinction of being the first MP to break the #WallOfSilence on #covid and #longcovid and point out the government's deliberate avoidance of it. 👏centralbylines.co.uk/news/health/covid-19-is-...
New Video: @georgemonbiot.bsky.social describes the treatment of #MECFS as "The Greatest Medical Scandal of the 21st century". The video explores the impact of ineffective & harmful treatments & how they were defended by the scientific & media establishment.
youtu.be/RiwX9Y0NbiQ?...
“Compassion is the new morality.”
— Arthur Schopenhauer, 1840.
🙏🏼🌍🕊️
Schopenhauer said that we should address each other not as "Mr" or "Mrs", but as "fellow sufferer, companion in misery" - thinking of trying this out.
#COVID-19 patients faced 12% to 74% higher odds for various types of alopecia, a tripled risk for vasculitis, 68% higher odds for Crohn's and 59% higher odds for sarcoidosis, the study found.
#MedSky #Covid
medicalxpress.com/news/2023-10...
Vogezen ❤️
There is no cure for Long Covid.
Repeat infections raise your risk of developing Long Covid.
If you have Long Covid, repeat infections put you at risk of worsened Long Covid.
