General Assembly Jan '26
Patient Report from the NMCB General Assembly
Opening of the NMCB General Assembly
The General Assembly of the Netherlands ME/CFS Cohort and Biobank Consortium (NMCB) on January 13, 2026, was opened by Jos Bosch, project leader of the consortium. In his introduction, he outlined how NMCB has developed since its inception from a relatively compact research program into a broad, national collaboration that now encompasses thirteen research projects.
Bosch discussed the infrastructure that forms the core of the consortium. NMCB connects all seven university medical centers in the Netherlands, supplemented by universities, research institutes such as TNO, clinical partners, and patient organizations. This shared infrastructure consists of a comprehensive patient registry, multiple biobanks (blood, muscle tissue, brain material), and a broad testing program including MRI, EEG, cognitive tests, and autonomic function measurements.
A key point in his opening remarks was the accessibility of the research. Bosch emphasized that NMCB explicitly focuses on the participation of seriously ill and homebound patients, including through home measurements, mobile measurement setups, and adapted protocols. This group is often overlooked in research, even though it is there that the most pronounced biological signals are potentially visible.
Exciting to read about the ME/CFS research studies planned in the Netherlands
Millions of euros of taxpayers' money is supporting biomedical research
Google English translation:
nmcb-eu.translate.goog/general-asse...
#MEcfs #CFS #PwME #MyalgicEncephalomyelitis #ChronicFatigueSyndrome #MEcvs #CVS
