@uoftcovidrehab.bsky.social
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We call on all those working with young people with #LongCOVID to facilitate young people’s alternative networks of care, and take inspiration from young people’s forms of everyday activism to proliferate the tangible, everyday, forms of support needed by those living with #LongCOVID
We also draw on theories of Disability Justice and everyday activism to describe the ways in which young people with Long Covid bend, alter, and evade formal infrastructures of care to make life more livable for themselves and others
Hannah Cowan at the #COVIDRehab forum:
How young people living with Long COVID actively build,navigate and maintain alternative networks of care in response to struggles in accessing fragmented formal care infrastructures in health,education,work and social welfare settings
� An intervention logic model that maps inputs, activities and outputs (outcomes and impacts) informed by lived experience is critical to the interpretation of complex intervention trials
� Burden, process flexibility and accommodating the needs of participants are a key trial design consideration given the episodic and fluctuating symptoms experienced by people living
with #LongCOVID
Monica Busse-Morris at the #COVIDRehab forum:
� We must integrate equity from inception through dissemination;it must be foundational to how we design,conduct and interpret rehabilitation research for conditions that disproportionately affect marginalized communities
@uoftcovidrehab.bsky.social
Mark Faghy speaking at the #COVIDRehab forum:
� Exercise triggers microclot fragmentation in people with #LongCOVID
� Microclot fragmentation correlates with inflammation and vascular injury markers
� Physiological performance worsens after repeated exertion
@uoftcovidrehab.bsky.social
Competencies need to be developed around infection-associated chronic conditions content to help guide consistent curriculum
Lisa Caldana from the #COVIDRehab forum talking about gaps in knowledge translation appear to exist with respect to #LongCOVID and infection-association chronic conditions across all three rehabilitation professions (PT, OT, and SLP)
@uoftcovidrehab.bsky.social
The training of future rehabilitation professionals should include education on providing culturally safe care (e.g., traumainformed care)
Future interventions for Indigenous adults with Long COVID should address the needs of family caregivers
Meera Premnazeer from the #COVIDRehab forum talking about how BrooksCleator et al. (2018)’s model of cultural safety should guide the development of rehabilitation interventions for Indigenous adults with #LongCOVID
@uoftcovidrehab.bsky.social
They also describe healthcare journeys shaped by intersecting identities and
circumstances, and offer practical recommendations to improve access,
accommodations, and coordination of care
Behdin Nowrouzi-Kia at the #COVIDRehab forum talking about young adults with #LongCOVID report functional limitations that disrupt daily activities (e.g., work, school, social roles)
@uoftcovidrehab.bsky.social
@uoftcovidrehab.bsky.social
Navigating life with Long Covid not only focuses on biographical adaptations but also on
‘reworlding’; practices in which young people work at ‘remaking’ their social and material worlds,
including ways which invite us to better understand what ‘recovery’ might mean
Living experiences of Long Covid are made up of ‘looping effects’ which entangle together the
physical as well as social impacts of illness over time, including the ongoing effects of the
pandemic and of struggles accessing care
Supporting participation in Long COVID requires attention to the quality of everyday
experiences, not only activity levels or symptom reduction.
Tim Rhodes talking at the #COVIDRehab forum about a qualitative longitud study among young people navigating #LongCOVID in the UK to explore how young people’s biographies of self and future as well as social worlds alter in relation to experiences of LongCOVID
@uoftcovidrehab.bsky.social
Shlomit Rottenberg talking at the #COVIDRehab forum about the type of activity people engage in explains more variation in how activities are
experienced than symptoms or environmental conditions alone
@uoftcovidrehab.bsky.social
S. Rottenberg talking at the #COVIDRehab forum about experiences of daily activities like energy restoration,social connection,pleasure,interest,productivity and competence,fluctuate across the day in people with #longCOVID with
the greatest variability seen in energy restoration
An insightful panel "Caregiving for Persons Living with #LongCOVID" at #COVIDRehab
�Caregiving is a journey that changes over time
�There is a partnership between person with LC and their families and a good partnership is key
� The caregiver also needs to be supported
@uoftcovidrehab.bsky.social
RobWust speaking at the #COVIDForum
� Exercise intolerance and post-exertional malaise in #longCOVID and ME/CFS reflect intrinsic
biological dysfunction, not simple deconditioning.
� Skeletal muscle and autonomic dysfunction are central drivers of PEM
@uoftcovidrehab.bsky.social
@kellyobrien25.bsky.social @drjillcameron.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @breathewellphysio.bsky.social
@drjillcameron.bsky.social @kellyobrien25.bsky.social @physiocan.bsky.social @longcovidphysio.bsky.social @longcovidkids.bsky.social @icancmeresearch.bsky.social @longcovidsupport.bsky.social @lcaireland.bsky.social @patientled.bsky.social @fisiocamera.bsky.social @apresj20.bsky.social
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