disabled.social A place for people who are chronically ill, mentally ill, disabled, and friends/families/allies to come together, meet, share knowledge and random banter, and just about anything else.

If you'd like to join me on Mastodon, but aren't interested in being on Mas.to, come join me on disabled.social !

Being a Mastodon Moderator People ask me what it’s like to be a moderator. Our discussions reveal that a lot of what we do is a mystery. So, I’m gonna lay it out ...

Here is an article about being a moderator on Mastodon, an independent social media network: markwrites.io/being-a-mast...

There are some difficult topics touched upon (guess what generally gets reported!) but it's a good window into what social media moderators deal with.

Lilya has until end of day today to get $600 for June and July's storage fees or all items they own go to auction.

Between medical emergency and a hotel for a medical trip canceling and delaying refund, they are out of money until their next SSI payment.

venmo: @WHolifield
paypal.me/WHolifield

I'm so sorry you're going through this.

Potential study for those with pre-Covid #MECFS and cognitive impairment.

They’re looking for feedback on the study design.

Took me less than 3 mins to fill out.

#pwME

Anna the mouse with her nametag. Her birthday is listed as July 8 2025. She is white, with big round ears, brown knots for eyes, a pink knot for a nose, and a curly pink tail that is not visible here.

A top view of Anna the mouse

A side view of Anna the mouse

(Fern:) Another few pictures from Sunday's photoshoot! This is Anna the mouse. Her birthday is July 8, 2025 (we finished her pretty recently).

She can be adopted here (US shipping only for now): rainbowravels.mayhem.my/store/detail...

#Amigurumi #Mouse #Knitting

Thank you so much. <3 I appreciate it.

"Vacation Mode You are unfortunately not on vacation right now."

I laughed out loud 😆

(This is mayhem.my )

Ugh. Bodily functions should be exempt from causing crashes.

#MEcfs

Simple graphic with blue background showing two people on mobile phones. Text above: Reminder: Defend Medicaid call party and Text below: Tomorrow, March 12th at 3 pm ET and 6 pm ET.

REMINDER! Tomorrow, March 12, #MEAction has two virtual Defend Medicaid Call Parties that you are welcome to join!
There are two calls- one at 3 pm & one at 6 pm.

RSVP 3 pm ET: us06web.zoom.us/meeting/regi...

RSVP 6 pm ET: us06web.zoom.us/meeting/regi...

#pwME #ProtectMedicaid #MECFS

For whoever needs to hear this:
Use that cane. Get that rollator or walker. Take the elevator. Use the electric scooter carts in grocery stores.

You are ‘disabled enough’ for it.

(And yes, I needed to hear this a few years ago. It has made things SO much better for me.)

#NEISVoid #DisabledSky

Graphic with this text: Physically disabled plural system needs meds and masks Syskaleido (in Eugene, off River Road) is asking for help purchasing over-the-counter meds and KN95 masks. The total is $28.66 USD. If you can chip in, either with money or by donating KN95s, it would be very appreciated! Venmo: syskaleido PayPal: multiplicitycrystal CashApp: robodabs The graphic also has clipart of a mask and a supplements bottle.

(Fern:) I'm posting this on behalf of a friend, who needs help with meds and masks. I'm hoping Bluesky can step up and help!

$0/28.66 USD

#MutualAid #MutualAidRequest #DisabledMutualAid #EugeneOR

(Fern:) Are there #Salem #SalemOregon people on here?

We got an email asking us to send in comments for the livability levy to save the library!

Tl;dr:
1. Send in comments before January 21
2. Send your email to cityrecorder@cityofsalem.net with a CC to citycouncil@cityofsalem.net

(1/3)

A bar graph comparing ME/CFS to many other illnesses, like depression, lung cancer, and diabetes type 2. ME/CFS is listed first, then there’s a dramatic increase in quality of life between it and the second listing, Depression. Other illnesses like lung cancer and diabetes have significantly better qualities of life.

Whoa, this quality of life study comparing ME/CFS to other illnesses...

Source: journals.plos.org/plosone/arti...

#MEcfs

People with #MEcfs have a very low quality of life. It leaves your health and life in pieces on every level. It breaks you. So this piece I call ‘Fragmented’.

Quality of Life Study- tinyurl.com/ybnfwvg3

#pwME #pwLC #MyalgicEncephalomyelitis #longcovid #MEawareness
#art #BMS #BrentMichaelStudios

Currently running a 15% HOLIDAY DISCOUNT on all shop items! Use this link or the code HAPPYHOLIDAYS. Expires 12/31. ko-fi.com/crippledcomm...

A hand knitted black sweater with a purple crow silhouette pattern on the front, displayed on a mannequin. The crow has its wings outstretched in flight

A pair of knitted socks laid flat on a white blanket. The body color is purple and the heels and toes are in a bright green.

A black and red knitted rib scarf displayed on a mannequin

Two knitted beanies with "It/Its" written in curly letters. The stripes are in shades of grey, pink, and blue.

I'm finally in a good position to RE-OPEN MY KNITTING COMMS! #CommsOpen #CommissionsOpen #BSNM 🧶

In this thread I'll show all the options you can choose from!

ko-fi.com/crippledcomm...

Congratulations!! And good wishes!

Resources so far:

Marion County Public Health Clinic
Marion County Health and Human Services

Oregon Health Authority Public Health Division
211
stacks.cdc.gov/view/cdc/119... (which lists a bunch of resources)

Thank you all!!

Thank you! Someone else suggested (a resource that led to) that a little earlier on Mastodon. I've emailed, and I'll ask someone to help call later if they don't answer.

Does anyone know if it's possible to get #Covid and flu vaccinations in your home in #SalemOregon? I'm 98% bedbound with Very Severe ME/CFS and definitely can't get to a pharmacy without a bad crash.

My case manager said she couldn't find any mobile vaccine places here. I've also tried googling.

Clothing sizes should be standardized. 😭

I'm so sorry. Mentally beaming strength and support your way. <3

NIH headquarters blurred in the background with a red overlay. Text is overlaid in white over the image: "Demand NIH Fund the ME/CFS Research Roadmap." #MEAction logo and "#FundMEroadmap" are at the bottom of image.

#MEAction is sending an urgent letter to NIH Director Dr. Monica Bertagnolli, urging the NIH to fund the ME/CFS Research Roadmap.

If you are in the US, sign onto the letter here: win.newmode.net/fundmeroadmap

All other countries, sign here: airtable.com/appls0UcwWjm...

#FundMERoadmap #pwME

Copied over from my Mastodon reply:

Exactly. My headmates and I are getting better at knowing what we can do, but it's taken so much of our energy to learn those boundaries even vaguely.

6/
Simon McGrath, a close friend of mine who has lived with ME & written about it for 20 years, tells me
I never know how much it is safe for me to do. It’s like I’m surrounded by an electric fence that will trigger a bad day if I touch it. But the fence is invisible, & moves every day.
#PwME #mecfs

Thank you! Followed!

Thank you for sharing. I feel like this too. I think you did well with drawing it!