How to support Crips for eSIMs for Gaza, which is STILL sending eSIMs and has seen a big increase in requests due to the criminal situation in the north:

🔗 bit.ly/eSimsRUs
USD : bit.ly/venmo4esims
GBP : www.paypal.com/donate/?host...

cc: @pipagaopoetry.bsky.social @sfdirewolf.bsky.social

Crips for eSims for Gaza Crips for eSims for Gaza is a collaboration between Jane Shi, Leah Lakshmi Piepzna-Samarasinha, and Alice Wong.

one of my contacts in G has been profusely thanking me for our diligent support because we've been keeping their eSim active since last summer. we are almost at 3 million CAD!

anyway this is what i've been thinking about rather than charlie kirk.

bit.ly/eSimsRUs

Pacing and Management Guides Find #MEAction's original Pacing Guide and Pediatric Pacing and Management Guide for ME/CFS and Long COVID, with translations.

The collab recommends exercise for people with #LongCOVID without PEM.

However, this presumes the average physician knows what PEM is and can explain to a patient how it differs from fatigue. (Unlikely.)

PEM & pacing, for the curious: www.meaction.net/resource/pac...

Experts call new Canadian Long COVID guidelines “contradictory” and “deeply concerning” - The Sick Times Guidelines recommend exercise and therapy as treatments, following attempted influence from Paul Garner.

I gave feedback on the McMaster/Cochrane Canada #LongCOVID guidelines (Canadian Guidelines for Post-COVID Condition (CAN-PCC)) and therefore thought this news was more of the same.

Well, there's a bit more and also I have Thoughts about consensus & credentialism 🧪

thesicktimes.org/2025/07/08/e...

Tweet from Brian Fog @useless_priest People with severe ME, a condition practically no one is really aware of, live in permanent solitary confinement and in physical and mental torture. He’s quoting a post from Feran @immathatkokujin • Jul 9 What's a fact that sounds fake but is 100% true?

The UN defines solitary confinement as torture when it exceeds 22 hours a day for more than 15 days.

Many people with severe ME are years or even decades into that level of isolation.

It’s a humanitarian crisis.

Jonathan Toews set for NHL comeback with Jets after long COVID YouTube video by CBC News: The National

Think long COVID can't affect you or your family?
It affected Jonathon Toews, an elite hockey player.
This is why I continue to try and protect myself against infection
www.youtube.com/watch?v=KGRi...

Buried Alive by Government “Experts” The Betrayal of the Worldwide Health Institutes’ Passivity in Erasing a Deadly Plight

I’ve lost so many people to #SevereME and #VerySevereME

Will remember you, Bridget 💙🕯️

Please read this last piece from Bridget about how governments have failed MECFS and Long Covid patients

Please take the fury we feel into your heart and use it to help us 2/2 open.substack.com/pub/bridgeto...

Bridget O'Shea Obituary - Chicago, IL Celebrate the life of Bridget O'Shea, leave a kind word or memory and get funeral service information care of Drake & Son Funeral Home.

Very sad to report that longtime mutual journalist and author Bridget O’Shea of ME/CFS Evolving Awareness on Substack and a longtime Twitter mutual passed away July 16 after a heart attack following a years-long struggle suffering from #MECFS

www.dignitymemorial.com/obituaries/c... 1/2

SPECIAL: “But my therapist said…” COVID-Informed Therapists Chat — Public Health is Dead Three mental health professionals speak on collective care and the importance of being informed about COVID as a practitioner.

Special episode dropping soon: “But my therapist said”— 3 mental health professionals chat about the importance of being informed about COVID as a practitioner & how “COVID anxiety” is a tool used to dismiss legitimate concerns about a damaging virus

www.publichealthisdead.com/episodes/spe...

Round butter cookie with royal icing decoration in colors of the Trans flag and BLM. Icing text: "Black Trans Lives Matter" in BLM font, yellow icing on black background. "Say their Names" black text on white background

Round butter cookie with royal icing decoration of the Pride flag with the Palestinian flag incorporated in the middle. Black text in Geneva font, "Free Palestine"

Cloud shaped butter cookie with royal icing decoration to look like a sheep. Body of sheep in Trans flag colors with a black sheep face icing transfer in the middle

Round butter cookie with royal icing decoration of white base background with Pride color rainbow horizontal thin stripes above and below black text, "Queer Enough"

cookie art to feed your queer dreaming & resistance 🌈✊🏼❣️
Sam Nordquist Tahiry Broom Sumaya Dalmar Chevranna Abdi Marsha P. Johnson

That sounds like a cool version of a heart?! Very underground art gallery-esque "Notice Shine's unique style: the Slimer lines juxtaposed against soft, seemingly accidental detail..."

Thank you! I did! I had a reference photo, but yeah free hand 🤗

White sketchpad w three pencil sketches colored in marker. Top image is a brain in a cage. Middle image is an anatomical heart w booster cables attached to a battery. Lightning around the heart indicates electricity. Images on the battery show a depleting charge w red lines and a neuron. Bottom image is a mitochondrion w a dagger stabbed through it, dripping blood into a puddle below.

Closeup of sketchpad w marker colored pencil sketch of a pink brain in a black metal cage.

Closeup of sketchpad w marker colored pencil sketch of an anatomical heart w booster cables attached to a battery. Lightning around the heart indicates electricity. Images on the battery show a depleting charge w red lines and a neuron.

Closeup of a sketchpad w marker colored pencil sketch of a mitochondrion w a dagger stabbed through it, dripping blood into a puddle below.

Illustrated illness experiences for Myalgic Encephalomyelitis (ME) Awareness Day, May 12th

#MillionsMissing #MECFSAwarenessDay #pwME #MyalgicE #MyalgicEncephalomyelitis #LongCovid #ChronicIllness #Disability

"We do things because they're right not because they're easy" - PM Mark Carney He also said he'll make mistakes and commits to admitting & correcting them.

Demand he keep his word! Canada must cease support of genocide, incl forced famine. Don't let up the pressure!

#FreePalestine #CdnPoli

A long COVID researcher continues to search for answers | Harvard T.H. Chan School of Public Health Postdoctoral research fellow Beth Stelson, a long COVID researcher, and herself a patient, discusses her research and the ramifications of the closure of a federal office focused on long COVID researc...

PLRC member Beth Stelson spoke with @hsph.harvard.edu about her work and the HHS LC Office's closure:

“#LongCovid is very much a real public health concern today, as it was at the very beginning. It affects hundreds of millions of people around the world.” hsph.harvard.edu/news/a-long-...

Trump admin anti-trans snitch site targeted Canadian doctors ⋆ The Breach Canadian jurisdictions were included on a U.S. ‘whistleblower’ form targetting trans care providers—and then were quietly removed after media enquiries

The U.S. government encouraged people to report on doctors in Canada who provide gender-affirming care to children—signalling a chilling new cross-border reach in its anti-trans agenda

breachmedia.ca/trump-admin-...

We’re calling it: a white male will be the next Prime Minister of Canada

This surgery fuses people’s skulls to their spines to treat a condition overlapping with myalgic encephalomyelitis - The Sick Times A growing number of doctors agree that a minority of people with severe ME are like Brea: Some of their symptoms are caused by cranio-cervical instability linked to connective tissue disorders. Viruse...

Terrific #MEspine article in @thesicktimes.bsky.social !

Craniocervical instability is such a complex topic (literally: neurosurgery!), and I’m so grateful to the whole TST team for their work to give such a nuanced account.

"I am 36. I am 12. I am one entire bruise."
-from the novel Pomegranate by Helen Elaine Lee

Such powerful prose in this book from start to finish!

#BookSky 💙📚

#HigherEd #AcademicSky: with news of proposed registries and work camps for ADHD and autistic folks, are we ready to release the accommodations model of disability? Like for real? Not a rhetorical question!

Now if only we as a society could move from the “study it even further” phase to the “actually implementing UBI” phase instead of commissioning yet more studies to add to the massive trove of data we already have that shows UBI is a critical component of a truly healthy and equitable society

And now that paperwork will be inherently used to target and harm disabled students. We should have moved beyond the legal accommodation compliance process years ago. Now it is more important than ever to do so. 3/3 #Academia #Disability

When I talk about the importance of granting students accommodations WITHOUT relying on formal paperwork this is why it matters. It is DANGEROUS for some people to have diagnoses on their medical records. 1/3

"Jesus is the Palestinian who is killed again and again, but who rises up again and again...Jesus was not a silent receiver of oppression and injustice. He was a liberator." - @letstalkpalestine.bsky.social

#Easter

www.instagram.com/p/DIocNdgtQM...

When we stop talking about COVID-19, policymakers can stop caring Calling COVID-19 “over” is factually incorrect and a form of gaslighting when about 15 per cent of infections lead to long COVID.

"A society seeing itself as democratic needs to talk about COVID-19 because not doing so risks harming the levels of democracy already under attack by fascist and neo-liberal influences."

By: @teachrprecarity.bsky.social

The final four paintings of the passion series by late deaf Korean artist Kim Ki-Chang, reimagining Jesus in the Joseon era. Painted in 1953 while Kim was grieving the Korean War.

Shown: the eclipse over the cross, the carrying of his body, the emptied tomb, & ascending home.

#Easter #resurrection

From left to right are Shannon W. Lucid, Margaret Rhea Seddon, Kathryn D. Sullivan, Judith A. Resnik, Anna L. Fisher, and Sally K. Ride. NASA selected all six women as their first female astronaut candidates in January 1978.

Maybe we should honor the women who were real astronauts.

From left to right are Shannon W. Lucid, Margaret Rhea Seddon, Kathryn D. Sullivan, Judith A. Resnik, Anna L. Fisher, and Sally K. Ride. NASA selected all six women as their first female astronaut candidates in January 1978.

Fatigue level: mega, melting, being swallowed by the couch

Did I:
a) hike for 8hrs?
b) run 21km?
c) sit in the hot sun and socialize? 🫠

#LongCovid #disability #chronicillness #pwME #POTS

GIVE HAITI THEIR MONEY BACK!!!!!!!!!!!!!!!!!!