🇲🇾 Going to #WFH2026? Bleeding Disorders: Care & Practice's Editor-in-Chief, Maria Santaella, will be there. You can connect with Maria to find out more about the journal via the conference app.
#BDCP #bleedingdisorders #Haemnet
#HemeSky @medsky.social
If you have a bleeding disorder but no diagnosis, how can you access the care & treatment you need? Over 75% of people with bleeding disorders globally aren't diagnosed. On #WorldHemophiliaDay, we're joining the call to improve diagnostic capacity. https://loom.ly/ZKyP0To
#WHD2026 #HemeSky #MedSky
‘Diagnosis – First step to care’ is the #WHD2026 theme. Morris Okello was diagnosed with #haemophilia as a teenager. Ahead of #WorldHemophiliaDay on 17 April, find out what diagnosis meant for him: https://loom.ly/5AMZ2xE
#HemeSky
@medsky.social
We're wishing goodbye & good luck to Mike Holland, who steps down as Haemnet CEO after 13 years. Thank you to Mike for his vision & dedication. We'll continue to work for the benefit of everyone in the #bleedingdisorders community, led by @katekhair.bsky.social
New on #Haemcast: members of #LFWBD discuss talking to their children about their #bleedingdisorder — and how their concerns aren't always what you might expect.
On podcast platforms, YouTube & here:
https://loom.ly/uvvmvQk
#haemophilia #families #children #podcast
#HemeSky #MedSky
The Haemnet team is taking a short break over Easter.
Wishing our clients, colleagues and friends a happy springtime holiday.
New episode of #Haemcast out now! Hannah, Mark and Jackie discuss how they talk to their children about their bleeding disorder. In collaboration with Local families with bleeding disorders.
🔗 https://loom.ly/_Pr-GBk
#LFWBD #bleedingdisorders #haemophilia #families #podcast
#HemeSky #MedSky
Ahead of #WHD2026, we’ve been thinking about its theme: ‘Diagnosis – First step to care’. It put us in mind of our Ugandan friend, Morris Okello, who was diagnosed with haemophilia as a teenager. Find out more about his story here: https://loom.ly/5AMZ2xE
#WorldHemophiliaDay
#HemeSky #MedSky
Did you tune in to #Haemcast's 'Veins, verse and voices'? Chair of Local families with bleeding disorders, Lisa Steadman, explains more about the poems collected in Bleeding and Belonging, on our blog: https://loom.ly/8ZBL_9s
#LFWBD #bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
Presenting the Bleeding Disorders: Care & Practice top 10 articles for February. Patient experience & quality of life continue to feature prominently.
Why not explore our archives here: https://loom.ly/uIXcNF8
#BDCP #bleedingdisorders #research #livedexperience #haemophilia
#HemeSky #MedSky
The new season of #Haemcast has started! In episode 1, members of Local families with bleeding disorders discuss how poetry helped them explore their experiences, hopes, expectations and worries.
🎧 https://loom.ly/d6YUipg
#LFWBD #bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
Thank you, @kirstygrainger.bsky.social
On #InternationalWomensDay 2026, we want to give visibility and a voice to women and girls affected by a #BleedingDisorder. Read our #IWD blog here: https://loom.ly/lujMOIw
#GiveToGain #March8 #BleedingDisorders #GenderEquality #ParityOfCare #HemeSky #MedSky
Out today: the first new #Haemcast, in collaboration with Local families with bleeding disorders! Hear about the poetry workshops that helped #LFWBD members explore their experiences, hopes and fears:
🎧 https://loom.ly/d6YUipg
#bleedingdisorders #families #poetry #podcast
#HemeSky #MedSky
The new season of #Haemcast is about to launch! We'll be exploring the ups, downs, ins and outs of family life with a rare bleeding disorder in collaboration with Local families with bleeding disorders.
https://loom.ly/ADEZ6qQ
#podcast #LFWBD #bleedingdisorders #families
#HemeSky #MedSky
1 March is #GlanzmannThrombasthenia Awareness Day. Our GT360 study explored the experience of almost 120 people living with or caring for people with Glanzmann's. Our short video explains more: https://loom.ly/WDVzGRk
If you live with Glanzmann's, what do you want people to know?
#HemeSky #MedSky
On #RareDiseaseDay 2026, we're shining a light on #UltraRare #BleedingDisorders — factor deficiencies, #GlanzmannThrombasthenia, #BernardSoulierSyndrom, #Afibrinogenemia... Our #RDD blog highlights the experience of Helen, who lives with #FactorV deficiency: https://loom.ly/hcPNBXE
#HemeSky #MedSky
The top 10 #BDCP articles for January 2026 explore aspects of treatment experience, women & haemophilia, parent experiences, and nursing. Read more in Bleeding Disorders: Care & Practice: https://loom.ly/uIXcNF8
#bleedingdisorders #research #haemophilia #Haemnet #HemeSky #MedSky
Introducing the new editor of Bleeding Disorders: Care & Practice, Maria Santaella, Vice President of Research Strategy at the National Bleeding Disorders Foundation (NBDF)
https://loom.ly/Z_wuqf8
#BDCP #research #Haemnet #NBDF #HemeSky #MedSky
Ready for another day at #EAHAD2026!
#EAHADCongress #bleedingdisorders #research #Haemnet #HemeSky #MedSky
If you're attending #EAHAD2026, don't forget to come and say hello at this evening's welcome and poster reception!
Wednesday 4 February, 6.30-7.30pm
#EAHADCongress #vonWillebrandDisease #FactorVII #women #bleedingdisorders #research #Haemnet #HemeSky #MedSky
Day 2 of #EAHAD2026 congress! Join us this evening at the welcome reception & poster presentations. Our posters present results from our FVIID 360, VWD 360 and Cinderella studies.
#FactorVII #vonWillebrandDisease #women #bleedingdisorders #research #Haemnet
#HemeSky #MedSky
We've arrived!
#EAHAD2026 #EAHADCongress #bleedingdisorders #Haemnet
Haemnet team is at the #EAHAD2026 Congress in Dublin this week, with posters on #FactorVII deficiency, #vonWillebrandDisease & #bleedingdisorders in women. Come & say hello!
#EAHADCongress #Haemnet #bleedingdisorders #vonWillebrandDisease #FactorVII #research #MedSky #HemeSky
Only a week until EAHAD 2026! We're looking forward to catching up with clients, colleagues and friends, and hearing about the latest developments in #bleedingdisorders #research. See you there?
#EAHAD2026 #EAHADCongress #Haemnet #HemeSky #MedSky
For Haemcast's 2026 series, we're collaborating with Local Families with Bleeding Disorders to talk about family life with a rare bleeding disorder. Stay tuned — it's coming soon! https://loom.ly/ADEZ6qQ
#podcast #Haemcast #LFWBD #bleedingdisorders #families #HemeSky #MedSky
Our journal's top 10 online articles for December 2025 have been revealed! You can read these and more on the new Bleeding Disorders: Care & Practice platform: https://loom.ly/Z_wuqf8
#bdcpjournal #bleedingdisorders #hemophilia #research #MedSky #HemeSky
Our journal is dedicated to the full spectrum of #bleedingdisorders – and we’re changing our name to reflect that. Introducing Bleeding Disorders: Care & Practice – the new name for The Journal of Haemophilia Practice
www.bdcpjournal.com
#BDCPjournal #haemophilia #VWD
#HemeSky #MedSky #BloodSky
We're winding down for the holidays and looking forward to the new year to come. Wishing a very Merry Christmas and Happy Holidays to all our clients, colleagues and friends in the bleeding disorders community. See you in 2026!
#bleedingdisorders #research #livedexperience #Haemnet #HemeSky #MedSky
