**inclusion not exclusion

It’s not a matter of “pleasing” some, it’s an issue of ableist discrimination. The tech exists to add Alt text via speech to text software if typing/thinking it through may be overwhelming. AI would be a further option. Asking for full exclusion should not be deemed a complaint by the privileged.

A real honour to have contributed to @lsereviewofbooks.bsky.social on the important and prescient issue of the social care crisis via this review. #DisabilityHistoryMonth #disability #chronicillness #socialcare

Such an honour! Thank you so much 😌

💕 Thank you @fullhouselitmag.bsky.social for supporting this piece.

Thank you! 😅 I very much needed to hear this today 😌

A female figure within a seascape of pink, purple and blue colours with a ship at full sail behind.

My second #Ekphrasis piece inspired by AshleyCook’s art and my lived experience of #chronicillness #ME is now live on the wonderful #DisabledTales. Involving the myth of the siren, Wolf Larsen and even a Beatles reference! 😌 www.disabledtales.co.uk/essays/the-l...
#pwme #lyrics #greekmyths

So honoured to have contributed to @the-polyphony.bsky.social In Practice series. Thank you so much @alyfixit.bsky.social for your support of this piece 😌
#writing #medicalhumanities #pwme #chronicillness #art #photography

So sad to see this happening.

@itslauracasey.bsky.social 🤩💕

It looked as if Zelensky was again trying to explain the facts to someone incapable of listening. I felt so sad for Zelenskyy, Ukraine and the world when I saw this earlier - Trump is pro Putin only, and for Zelensky it must be horrendous to have to sit with this individual and face a wall of lies.

True facts are true

I’ve been curious to know - will you be working on recall etc or is it still too soon? She’s doing so well, but of course, I imagine there’s so much still to do behind the scenes. Best wishes, from a huge admirer of Sophie and her team ☺️

Photomontage of depression era America, with Jeff Bezos and the crew of his latest multi million dollar Blue Origin space-jizz

A german charity is planning on building a social housing project for people with severe ME. Tailored vis à vis noise/light reduction, 24hr assistance etc.

Location: Neunkirchen-Seelscheid

They need 5 people interested. So please share. (Requirement to be on German Welfare)

So happy that my little musing on the effort of meditation has been chosen as prose of the day by the wonderful Ink, Sweat and Tears inksweatandtears.co.uk/arlene-jacks...
#flashfiction #writing #meditation #inksweatandtears

Figure 1 NHS experience and specialist visits. This figure presents responses regarding NHS experiences and access to specialist care for individuals with ME/CFS and long COVID. It categorises overall satisfaction with NHS services (very poor, poor, mixed, good, excellent) and illustrates the frequency of specialist visits, highlighting challenges in accessing specialised care. ME/CFS, myalgic encephalomyelitis/chronic fatigue syndrome; NHS, National Health Service.

A huge amount of dissatisfaction and not much satisfaction regarding "NHS experience and specialist visits" from people with ME/CFS and to a slightly lesser extent people with long Covid in the UK

From:
bmjopen.bmj.com/content/15/4...

#MEcfs #LongCovid

😂

It turns out that saying 'this is not austerity' while simultaneously making and defending spending cuts... does not work.

Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it? | Frances Ryan Five years after the first lockdown, millions of lives are still being ruined by this debilitating disease. You wouldn’t know it, says Guardian columnist Frances Ryan

“Long Covid is the pandemic’s dark shadow. Why does no one in power in Britain want to talk about it?”

My col. for the people who are still in their own personal lockdown - and those in power who must finally help them. www.theguardian.com/commentisfre...

Thank you to @sensecharity.bsky.social for providing an accessible campaign template, enabling me to write to my MP @gordonmckee.bsky.social re #disabiltycuts more swiftly than I would otherwise be able. The fact we have to do this at all is shameful.

The government is planning to cut disability benefits. This could have a devastating impact on disabled people.

We need as many MPs as possible to speak out against disability benefits cuts before they're announced as early as Monday.

Ask your MP now: action.sense.org.uk/page/167765/...

Reminds me of my assessment for a stairlift. SW quoting policy: “if you’re not going out to work or education then why do you need to get downstairs?” 🤦‍♀️ it took a long campaign to get the stairlift to, you know - see the downstairs of my house, my garden. unnecessary luxuries apparently

😢

Saw an exhibition of Linda’s work at Kelvingrove a few years ago and it was fantastic - especially the photos of their rural life in Campbeltown

There's still time to book your free ticket for tomorrow's Story Café.

From awe-inspiring adventures to tales of love and longing, wonder and wanderlust, our Story Café is the perfect way to relax over lunchtime.

Book here:
womenslibrary.org.uk/event/story-...

Congratulations! 🙌 💕

Two women in reflective vests stand in front of the National Covid Memorial Wall, which is adorned with numerous red hearts. The wall displays the title "THE NATIONAL COVID MEMORIAL WALL" above them. The image captures a moment of reflection as they appear to engage in conversation, highlighting the ongoing impact of COVID-19. The text overlay discusses the long-term effects of the pandemic on society, education, and finances, emphasizing the experiences of those who continue to mourn.

🗞️ Article in @theguardian.com -includes section on #LongCovid

“People don’t want to be reminded of what happened, which I understand,” said Jade. “But we are not postpandemic, we’re post-precautions. Covid is still here.”

Full article: tinyurl.com/2u6xe8jx

There is a shameful tradition of demonising disabled people. Why is Labour reigniting it? | Frances Ryan Ministers run away from a wealth tax and then concoct a punitive benefits system. They have made that choice and it’s immoral, says Guardian columnist Frances Ryan

“Every time you see a headline on “the cost of the benefits bill”, what you are really reading is “the cost of disabled people”. 

My col. on Labour’s reported benefit cuts and the toxic narrative of the “moral” virtue of work. www.theguardian.com/commentisfre...