Dorothy is 93 and could be forced out of her care home if her Reform-led council moves forward with cruel proposals to close it. Please help share her story – it’s easy and only takes 90 seconds:
www.facebook.com/reel/9215920...
Beautifully put.
And is there any worse anguish than knowing and witnessing that fun, life, adventures are being had, but unable to also have them yourself because of a body that's broken...
#MyalgicEncephalomyelitis #pwME #MECFS
Britain’s shadow workforce is paid as little as 65p an hour. Who cares for the carers?
@francesryan.bsky.social
www.theguardian.com/commentisfre...
I had one of those darker days today where I felt like throwing in that very ragged towel. But, as you say, somehow we manage to carry on, despite (in spite of?) it all...
#MyalgicEncephalomyelitis #pwME #MECFS
Thank you.
I honestly couldn't reveal what my 'f' word is! (It is not pleasant at all.)
Can I do this if I'm in the UK, or is it for those in the US only, please?
Photo of my very cute Border Collie cuddling up with me on the settee...
It's the small pleasures in life that can have the biggest impact on a dark day...
#dogs #bordercollie #joy #joyfulliving #happiness #brighterdays #dogsaregreat
"Those with ME have experienced years of being treated unjustly. Sometimes, it feels endless and irreversible. But remember this: getting things done in parliament starts with having MPs on your side." Tessa Munt MP. New #ThereForME Substack post.
We're delighted to share today's #ThereForME blog from friend of the campaign @tessamunt.bsky.social.
In her blog, Tessa lays out the case for change and how to get involved.
Link in next post 👇
A quote from 2024, but sadly still urgently relevant today:
"Care for ME needs a complete overhaul worldwide if we are to care for ME patients the way we care for patients with any other health condition." — Whitney Dafoe @whitneydafoe.bsky.social
#MyalgicEncephalomyelitis #pwME #MECFS
"NHS England is rolling out software to run our health records from Palantir – a US spy-tech firm that has supported mass deportation in the US and enabled genocide in Gaza."
Please fight back now via this super-easy click and send objection route:
notopalantir.goodlawproject.org/email-to-tar...
Another life lost to #MyalgicEncephalomyelitis. RIP, Samuel...
'Unhinged' doesn't even come close to describing the delusions of this hideous man-baby Trump.
39 years of repeating..
"No"
"No, sorry, I can't do that
"No, sorry, I can't do that, because I have #ME
"No, it wouldn't 'do me good', thanks
"No, there's still no treatment for #ME
"No, Drs still aren't medically qualified to treat #pwME
"Yes, #ME can be fatal"
🤦♀️😫
Thankful to Sonya and Action for ME, but you've got to ask where on earth is that thing called 'duty of care' from the NHS..? Abhorrent treatment of a vulnerable patient in need of proper and sustained care.
News Release 27-Jan-2026
Altered brain connection found in people with ME/CFS and Long COVID
People with #MyalgicEncephalomyelitis/ #ChronicFatigueSyndrome & #LongCOVID experience a disruption to their brain connectivity during a mentally demanding task.
www.eurekalert.org/news-release...
#PwME
🚨Now closing on 60,000 signatures! Let’s keep going!
petition.parliament.uk/petitions/73...
Please help to declare August as Severe ME Awareness Month — sign this petition here — thank you in advance: c.org/DTcvjvX4mN
#SevereMEAwareness #pwME #myalgicE #MyalgicEncephalomyelitis #MEcfs #SevereME
M.E. is not the same as CFS:
www.facebook.com/groups/10637...
[SOURCE: fb group, The Nightingale Continuum— offering reliable #MyalgicE info on the acclaimed work of Dr. Byron Hyde & others. Fully documented, from 1950s/1980s to the present.]
#MyalgicEncephalomyelitis #MEcfs #pwME
Photo of a man in a scarf in a polaroid-style frame on a starry background, marked with a bright star labelled ‘17’. Text says: ‘Thank you for being #ThereForME, George Monbiot!’ and ‘Advent Calendar 2025’.
Graphic of a letter on a starry blue background. The letter says “Dear George, Your writing, your videos and your interest in the plight of ME sufferers is unsurpassed. You have all the facts coupled with understanding and humanity that makes us all feel really seen and safer with your backing. Thank you. ” Hashtag #ThereForME at the bottom.
December 17th. Thank you for being #ThereForME, @georgemonbiot.bsky.social!
George is a well-known journalist who has focused on uncovering the reality of the “greatest medical scandal of the 21st Century”. Nominated by Carole B @cabruce.bsky.social. ✨
“The treatment of today’s ME/CFS patients is comparable to that of lobotomy patients decades ago. When the full history of ME/CFS is written one day, we will all be ashamed of ourselves.”
Prof. Dr. Ola Didrik Saugstad, Professor of Pediatrics, WHO Advisor, Norway.
1) Moving paper by young ME/CFS researcher Katherine Cheston. She was aware of the great disability it causes but "encountering the reality of this suffering first-hand was still shocking and deeply saddening."
She gives examples of patients who do not get appropriate care.
Redwings video re fireworks and horses c.org/YKJfrwdXjJ via @ukchange.bsky.social
This 'MYALGIC ENCEPHALOMYELITIS – Adult & Paediatric:
International Consensus Primer for Medical Practitioners' from @investinmeresearch.bsky.social has some very useful information (and especially for your GP!):
tinyurl.com/MEconsensus
#MyalgicEncephalomyelitis #MECFS
Photo of a smiling man with a white goatee and glasses in a polaroid-style frame on a starry background, marked with a bright star labelled ‘5’. Text says: ‘Thank you for being #ThereForME, Tony White!’ and ‘Advent Calendar 2025’.
Graphic of a letter on a starry blue background. The letter says “Tony, I honestly can't express just how grateful I am to have you by my side, and for everything you do and have done for me. Life with M.E. is more than difficult, and I know I can be, too — so thank you for your ongoing patience, care and love. Xx”’. Hashtag #ThereForME at the bottom.
December 5th. Thank you for being #ThereForME, Tony White!
Nominated by Tracey @traceydooley.bsky.social. ✨
Done. Please do take a few moments to help #pwME.
This is happening everyday, everywhere.
Read the story of Rosie and Alice.
Everyone who has been hospitalised with ME, knows it.
"Hospitals should be places of healing – but for people with severe ME, they are often sources of harm".
#GreatestMEdicalScandal
www.thereforme.uk/p/sensory-he...
