Laughs, friendships, a touch of seriousness, pizza 🍕, and the cutest 🐶 ever (who snarls when he likes you). Thank you so much to Landis Wiedner for being such a great host, and Wilson Kukla and Ivana Garcia for being equally splendid.
#chicago #pizza #epilepsy
Chicago, IL
In prep for the UCB EpilepSEE conference in Chicago! We start tomorrow, with some incredible global collaborators - the start of a new project to improve the lives of those affected by epilepsy. Global experts inc. Prof. Reetta Kalviainen, Landis Wiedner, Alison Kukla, & Ivana Garcia.
#epilepsy
Thank you so much!
Thank you to the Epilepsy Foundation 🧠🇺🇸 for the Research Ambassador Keynote Speaker award. I'm honoured.
Not possible without EF leaders Jacqueline French, Caitlin Grzeskowiak, Renisha Jones, and Eva Childers. More is coming. Stay tuned y'all....
#epilepsy #neurology
Thank you to such a cool audience for being with me for a 55min keynote talk about how they can become involved/leaders in #epilepsy research - using their Epilepsy Experience Expertise. Thank you to Prof. Jacqueline French and Caitlin Grzeskowiak of the Epilepsy Foundation for the invitation.
Tremendous presentation about medtech devices used to help try and control epileptic seizures (they often have other benefits too though) - by star scientist Benjamin H Brinkmann PhD, FACNS FAES - at the Epilepsy Foundation Research Ambassador Program 🇺🇸!
#epilepsy #medtech #eeg #neurology
Delta A330-900 LHR-MSP
See you soon Epilepsy Foundation of America - in Minneapolis 🇺🇸.
I'll be sharing some pics of my talks - and those of others - over the next few days.
Beautiful Delta Air Lines A330-900 LHR-MSP. ✈️
#epilepsy
🥳 New, fun podcast episode! Epilepsy; it's just not sexy, is it?! Hear how we need to improve education and marketing for epilepsy so that we can get greater acceptance and funding for research! All with intellectual disability nurse Jay Price 🤩🇬🇧! 👇🏻
🎬 youtu.be/-pMjMXnYKKM
#epilepsy #purpleday
@sophieadlerwagstyl.bsky.social
Want to hear something exciting? 🥳
In this week's podcast, @konradwagstyl.bsky.social shares how he is using AI & datasets to identify previously unidentifyable (on MRI) brain lesions!! 🧠 Watch! 👇🏻
youtu.be/3qj5If0RdqM
Presented in partnership with EASEE®Epilepsie, by PRECISIS GmbH.
#epilepsy #MRI
🥳 Speaking to MedTech about #epilepsy, #depression, #Parkinsons & #Alzheimers and our #PPIE work at the international Advanced Research & Invention Agency (ARIA) neurotech summit with tremendous colleagues Jon Nelson, Kuhan Pushparatnam, and Trevor Salomon 🤩🤩🤩!
At the National Space Centre! 🚀
Podcast! Mental health illnesses are symptoms of epilepsy and they can even precede seizure onset! 😯
Hear from global lead epileptologist Dr. Andres Kanner 🤩 🇺🇸 Watch/listen👇🏻
🎬 youtu.be/2BZaqboYIpQ
This episode is presented in partnership with EASEE® by Precisis GmbH.
#epilepsy #mentalhealth #adhd
Addressing inequalities in access to epilepsy care! It’s the Epilepsy Sparks Insights podcast with Prof. Nicola Specchio 🤩🇮🇹 who speaks of:
• delays to diagnosis
• earlier interventions
• improve standards
• precision medicine, biomarkers & neuroimaging
Watch here: youtu.be/eWXWNjL2FGw
#epilepsy
New paper “Epilepsy and mental health disorders: current challenges and potential solutions”.
“Seizure control alone doesn’t equal quality of life...”
Writing about this isn’t easy when you draw on lived experience, but it’s worth it. 👇🏻
www.cambridge.org/core/journal... #epilepsy #mentalhealrth
🩸🧠 The Blood-Brain Barrier can influence/cause epilepsy! 😱 In this week’s @epilepsysparks.bsky.social Insights podcast, we hear about what happens when this barrier leaks! What gets through?!
Hear all about it from our brill guests Dr. Claire Behan and Dr. Chris Greene! 👇🏻
🎬 youtu.be/rBpI_-daWjw
🧠 Absolute pleasure presenting at the 3rd Advanced Course on the Pharmacological Treatment of Drug-Resistant Epilepsies (DRE) in Palma 🇪🇸!
Topics: QoL, mood, cognition, interictal behaviour, language & labels, med efficacy vs tolerability, psychiatric morbidities, social & environmental determinants!
🌍 Fab symposium: the Brain Health Innovation Summit Thinking about Cognition and the Future of Care 🇮🇹!
Discussions with those working in #psychiatry, #neuropsychiatry, #neurology, covering #epilepsy, #cognition, #ALS, #dementia, #psychosis, #physicalfitness, #AI, & #digitalinnovation!
😲 I was shocked! On Epilepsy Sparks Insights I chat with Dr Ewan Nurse 🤩🇦🇺 about #seizure diaries 📝.
How accurate are they really? Many seizures go unrecognised or misreported - even with a witness! That has a huge impact on treatment & quality of life.
Watch here 👉🏻 shorturl.at/SJLxN
#Epilepsy
Chatting with neurologist Dr Phillip Pearl 🤩🇺🇸 from Boston Children’s Hospital re:
〰️ Metabolic epilepsies & the future
〰️ Patients we can’t yet help 😞
〰️ Advocacy, gene therapy, SUDEP & mental health
Listen/watch, here 👇🏻!
🎙️ shorturl.at/LbjyF
🎬 shorturl.at/z7VzU
#epilepsy #neurology #podcast
The fabulous Prof Georgia Ramantani and I meet again! At the #IEC2025 conference! Georgia’s podcast episodes were:
- Slicing a Brain In Half to Treat Epilepsy”(!) 🧠🔪, and;
- The Sacrifices & Benefits of a Hemispherectomy”.
Check them out here 👇🏻!
youtu.be/u6Sjsh5TuDo
😃 Did you know about metabolic epilepsies? Did you know that a lack of vitamin B6 💊 can lead to an #epilepsy 😱?! Hear from Dr Phillip Pearl 🤩🇺🇸 from Boston Children's Hospital & Harvard Medical School about inherited #metabolic epilepsies! 👇🏻
🎙️ Podcast shorturl.at/5entK
🎬 YouTube shorturl.at/ghltc
Check him out! The cool neurologist (and upcoming podcast guest 🥳) Ching Soong Khoo from Malaysia 🇲🇾 - at the International Epilepsy Congress in Lisbon 🇵🇹!
And yes, in case you hadn’t noticed 😁 - CS’s pic is right there on the stand!
#epilepsy #neurology #IEC2025
Meeting in person really makes a difference! 😀 I meet our Epilepsy Sparks Insights podcast guest Consultant Neurologist Elisabeth Doran 🤩 🇮🇪 face to face for the first time! 😀😀 Along with upcoming guest Claire Behan 🇮🇪! All the at International Epilepsy Congress in Lisbon 🇵🇹!
#IEC2025 #epilepsy
Had an absolute blast chatting with Asst. Prof. Simona Balestrini 🤩🌍🇬🇧 🇮🇹 for the latest episode of Epilepsy Sparks Insights!
Learn about Transcranial Magnetic Stimulation here 👇🏻 and its potential as a future epilepsy treatment!
Watch here 🎬 youtu.be/hyLxVtc6ud8
🤩 Our team at the International Epilepsy Congress 2025 in Lisbon 🇵🇹! It was such fun, with laughs and great questions from the audience! It was in interactive 1.5 hour session with topics including sex, SUDEP, suicide, and more!
#epilepsy #suicide #neurology #SUDEP #mentalhealth #sex #psychology
Lisbon icons - at sunset! 🌅:
🏰 Castelo de São Jorge
🗽 The Cristo Rei statue
🌉 The Ponte 25 de Abril suspension bridge
🌅 Lovely sunset
#lisbon #castle #portugal
Gorgeous, utterly fresh seafood 🐟🐙 in Lisbon! Fish doesn’t smell fishy - because it’s FRESH!
#lisbon #seafood #Portugal #foodlover #foodgasm #fish
Day 2 at the International Epilepsy Congress in Lisbon!
Tomorrow I’m part of a fun talk “From Awkward to Empowered: Having truly 'patient-centered' conversations in epilepsy care and research” with Milena Gandy, Heidi Munger Clary, Lucas Orellana, & Brad Kamitaki!
Join us!!
#epilepsy #iec2025
👏🏻 Honestly, a fab talk by Reeta Kälviäinen, Manuel Toledo, and Lawrence Hirsch at the Satellite Symposium - Medscape: “The Clock Is Ticking: Optimizing Ongoing Seizure Response!”
Topics: #statusepilepticus, prolonged seizures, seizure clusters, & Rapid Early Seizure Termination (REST)!
#epilepsy