I wasn’t sure this would be possible anymore. After 20+ years with Crohn’s disease, surgeries & a spinal injury…I’m hiking Machu Picchu with Team Challenge to raise funds for a cure⛰️🥾
This climb isn’t just mine.
🎯 Goal: $10,000
👉🏼 Donate / share: bit.ly/RocioHikesMa...
Contáctanos: bit.ly/3PgXNis
If you know someone living with IBD who prefers a Spanish speaking support group, we offer a safe space to connect, share & feel understood.
Living w/ #IBD can feel isolating. Vivir con la enfermedad de #Crohn o #colitisulcerosa no siempre es fácil-uno se puede sentir muy solo. Por eso existe un #grupodeapoyo virtual en #español para la #EII Si tú, o alguien que quieres, vive con la EII, te invitamos a acompañarnos👇🏼
Today, I joined a #CMS #roundtable as part of the #Medicare Drug Price Negotiation Program, where my lived experience as a patient will help shape decisions that impact millions 💰 This is yet another way of what #IBD #patient #advocacy looks like behind the scenes 👊🏼
In spaces led by #science I bring lived #IBD #patient experience. As a #Crohns patient for 20+ yrs, it’s an honor to serve as a @crohnscolitisfdn.bsky.social Grants Committee Stakeholder reviewer helping evaluate what #research moves forward & why it matters because this work changes lives👊🏼
#AprilFoolsDay is for jokes.
#IBD isn't one 😏
Because 💩 isn't funny when it's a disease...
#IBDAwareness
El cáncer colorrectal no tiene idioma 🗣️Ni cultura. Ni fronteras. Es global. 🌍
Este 31 de marzo 🗓️
Hazte el chequeo 🥼🩺
No esperes 🙅🏻♀️
Colorectal cancer has no language 🗣️No borders. No boundaries. It’s global. 🌍
Get screened 🥼🩺
Don’t wait 🙅🏻♀️
#ColorectalCancerAwareness
Today, March 30th, is #NationalDoctorsDay 🥼but the gratitude lives far beyond ☝🏼 day. Living w/ #IBD has shown me what it truly means to be cared for by a team. None of them treated just a disease. They treated me. To every doctor who has carried me through this life…
THANK YOU 🙏🏼
My dad knew he needed a #colonoscopy He scheduled it. And canceled😞That decision changed everything. We lost him to #liver & #colorectal #cancer 😢
I live with #Crohns so I don’t skip mine.
If you’ve been putting it off, this is your reminder. #ScreeningSavesLives
#CRC
At the @crohnscolitisfdn.bsky.social #MyIBDLearning #OrangeCounty conference, we heard from #IBD experts from @ucihealth.bsky.social @ibdcedarssinai26.bsky.social , Hoag and CHOC 🏥
✨Managing Flares & New Technologies
✨How To Live Happy & Healthy w/IBD
✨Surgical Management
✨Mental Health & IBD
On this #InternationalWomensDay we celebrate the women of the #IBD community
👊🏼Patients living the reality of IBD
👊🏽Clinicians & researchers working to improve care
👊🏾Advocates & caregivers strengthening this community
Each plays a role in the future of IBD care
#IWD2026
In Jan, while battling COVID & Influenza A, I ended up in the ED & learned I was experiencing symptomatic #gallstones
As someone w/ #Crohns (and prior ileal resection), we’re at higher risk 😱
Patients: Have you discussed w/your GI?
HCPs: Are you discussing w/your patients?
On Sat, 3/21, our #IBD community is coming together in #OC for a full day of #education I’ll be moderating a special session: MyIBD Connections for the #Hispanic & #Latino Community
📍: Courtyard Marriott Irvine Spectrum
📅: Sat, 3/21
⏰: 9 AM–2 PM
🔗 bit.ly/MyIBDLearnin...
Moments of representation matter-on a global stage & in #healthcare Seeing culture celebrated openly is a reminder of how important #language #identity & feeling understood are. That’s why our virtual Spanish-language #IBD #supportgroup exists👇🏼 Please share!
For more info: bit.ly/3PgXNis
@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social
Reflecting on my time at #CCCongress26 in Las Vegas💙As a #patient #advocate & someone living w/ #IBD it’s a privilege I don’t take lightly🥹To witness cutting-edge research🔬emerging treatments🧬 & the commitment of clinicians & researchers who care about patients is powerful💥
As a #fistula patient myself, I know all too well the trauma that #IBD patients go through when living w/ #perianal disease. So valuable for the patient perspective & mental health recommendations to be shared & discussed at #CCCongress26
@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social
So insightful to hear Dr. Marla Dubinsky summarize the the right drug at the right time in #IBD So many considerations for patients & clinicians #CCCongress26
@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social
Grateful for Dr. Larry Kim’s leadership of the @amergastroassn.bsky.social 🎉 Beyond appreciative of the @crohnscolitisfdn.bsky.social incredible commitment to #IBD patients. Thank you Dr. Alan Moss (Chief Scientific Officer) for leading IBD scientific advancements at the Foundation🥹 #CCCongress26
Key summaries of all of the latest advancements in treatment for both #CD and #UC at #CCCongress26 at #IBD 101, including bone marrow transplant success for CD (in Europe)🎉
@amergastroassn.bsky.social
@crohnscolitisfdn.bsky.social
Patient voices in #IBD #research matter. Both @ownyourcrohns.bsky.social
& @voiceforibd.bsky.social had the honor to contribute to a @bmj.com State of the Art Review on IBD medical mgmt, written for clinicians & including a patient perspective section to ground PROs👇🏼
🔗 bit.ly/MedicalMgmtO...
This Saltado de Vegetales is personal-a Peruvian dish I grew up with🇵🇪adapted to be gut-friendly👏🏼 Proud to see it featured on the @crohnscolitisfdn.bsky.social
Gut Friendly Recipes, a 🆓 dietitian-reviewed resource expanding cultural representation🌎#IBD #Nutrition
🔗 bit.ly/SaltadoDeVeg...
Flavor doesn’t have to disappear when living with IBD. Here’s how to add it back…safely👇🏼
🌿Green herbs & milder spices during flares
🌿Wider range of spices & flavors when in remission
📉Turmeric & ginger may offer anti-inflammatory properties
☕️Decaf herbal teas are a flavorful, gut-friendly option
IBD looks like strength, resilience & HOPE💛IBD looks like all of us…showing up, speaking up & believing in what’s possible. Hope lives here. And we’re just getting started. La esperanza también vive aquí y lo mejor todavía está por venir #IBDLooksLike #CCAwarenessWeek
@crohnscolitisfdn.bsky.social
#IBDLooksLike advocacy📣 Because raising our voices is how we create change - for ourselves, for our communities & for the future of IBD care👊🏼 Watch below to see what my advocacy looks like 👇🏼 @crohnscolitisfdn.bsky.social
IBD looks like community. Because none of us should navigate this disease alone. On day 4 of Crohn’s & Colitis Awareness Week, I’m sharing glimpses into the power of #IBD community in my journey. #IBDLooksLike community…together we are stronger 💪🏼 🤍
@crohnscolitisfdn.bsky.social
#IBD looks like more than anyone realizes 👀 It’s the complications that show up beyond the digestive system or #extraintestinal manifestations😔This Awareness Week, I’m sharing what #IBDLooksLike so more patients feel seen & clinicians understand the full picture #EIMs
@crohnscolitisfdn.bsky.social
IBD Looks Like Strength You Don’t See. Most people don’t see what living with IBD really looks like. We carry so much…quietly😔 #IBD looks like me🙋🏻♀️It looks like you🫵🏼 It looks like millions of us doing our best every single day🙌🏼
🔗Awareness Week: bit.ly/CrohnsColiti...
@crohnscolitisfdn.bsky.social
