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Prof. Richard Gilbertson chaired the "Pediatric Brain Tumors: Biology to Therapy" symposium at @theaacr.bsky.social San Diego and presented Elizabeth Cooper’s work on reversing brain tumour immunotolerance in childhood brain tumours
#AACR26 #BrainTumor #PediatricCancer #CancerResearch #Immunotherapy

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Membership Levels | Metastasis Research

🗓 Mark your calendars: June 28 – July 1, 2026
📍 Location: Salt Lake City, Utah
👉 Join the MRS community: metastasis-research.org/membership-a...
#MRS2026 #GelarehZadeh #NeuroOncology #BrainTumor #LiquidBiopsy #PrecisionMedicine #Metastasis #WomenInMedicine

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Multi-Class Brain Tumor Type Classification Using Convolutional Autoencoder (CAE) With CNN-VGG19: An Experimental Study - Premier Science Autoencoder, brain tumor, convolutional autoencoder, convolutional neural network, CNN with VGG19, deep learning, image processing.

doi.org/10.70389/PJS...

#braintumor #braincancer #CNNVGG29

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Preliminary #usability Assessment of a Rule-Based Digital Self-Monitoring Platform for Patients With Brain Tumors Toward Digital Early Warning Systems: Pilot #feasibility Study Background: Postoperative follow-up after brain tumor surgery is typically limited to intermittent clinic visits, leaving subtle neurological or general deterioration between visits underrecognized. Digital self-monitoring platforms may help fill this gap, but evidence in neuro-oncology is scarce, particularly regarding how patient-reported symptom trajectories can feed into future data-driven early warning systems. Objective: This study aimed to evaluate the #feasibility, use patterns, and preliminary #usability of a smartphone or web-based self-monitoring system for patients after brain tumor surgery and to explore simple rule-based digital alerts as a first step toward an advanced digital early warning framework. Methods: We conducted a single-center prospective pilot study including adults discharged after brain tumor surgery who had access to a smartphone and could use a web app. Participants completed brief symptom surveys consisting of 51 binary items across 7 symptom domains, with an automatically calculated daily total score and score history visualization. #feasibility was assessed by enrollment, retention, submission counts, and submission rates. A total of 4 interpretable alert rules based on current score, short-term worsening, new-onset symptom combinations, and persistence across domains were evaluated using each patient’s last 3 submissions as the analytic unit. Clinical deterioration was defined a priori as objective decline in performance status, new neurological deficit, radiologic progression, or clinically significant laboratory changes. Rule performance metrics and bootstrap CIs were computed. #usability and acceptability were evaluated using the System #usability Scale and additional adherence-related items. Results: Of 64 enrolled patients, 30 (47%) with ≥3 submissions formed the analysis cohort (median age 57, IQR 47.2–64.5 years; n=12.9, 43% malignant tumors); 6 (20%) experienced clinical deterioration during follow-up. Patients contributed a median of 8.5 submissions (mean 19.03, SD 30.12) at 1.7 surveys per week on average, indicating sustained but heterogeneous engagement. The best-performing rule, based on net short-term score increase, achieved an area under the receiver operating characteristic of 0.88, with sensitivity 0.83, specificity 0.92, and accuracy 0.90 on the last-window dataset, outperforming rules based solely on current score or multidomain persistence. Among 23 app users who completed the System #usability Scale, the mean score was 84.0, reflecting high perceived #usability; higher-frequency users reported stronger perceived usefulness and habit-driven use. Conclusions: This pilot study demonstrates that a smartphone or web-based self-monitoring platform for patients with brain tumor is feasible and well accepted and that simple, transparent rules applied to longitudinal symptom scores show potential to capture early signals of clinical deterioration. However, given the small sample size, these predictive metrics are preliminary and require rigorous validation in larger, independent cohorts. These findings support further development of integrated digital early warning systems that combine patient-reported trajectories with clinical and physiological data to enhance postoperative neurosurgical care.

JMIR Formative Res: Preliminary #usability Assessment of a Rule-Based Digital Self-Monitoring Platform for Patients With Brain Tumors Toward Digital Early Warning Systems: Pilot #feasibility Study #DigitalHealth #HealthTech #NeuroOncology #PatientMonitoring #BrainTumor

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Create Your Own Event - National Brain Tumor Society Whether you want to quickly set up a donation page for your fundraiser, sell tickets to your event, or have teams register for your event, we have website options for all event types! If you don’t…

🍔🍻🏸⚾️ Turn your passion into progress for #BTAM by hosting a Gray Gathering, a Gray Game, or fundraising ✨ your way ✨ this May for #braintumor research and patient support.

Learn more: BrainTumor.org/FYW

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Fundraising for #braintumor research isn’t one-size-fits-all.

It’s about turning your favorite hobby, your milestone, or your toughest challenge into a real-world impact to spark the breakthroughs of tomorrow.

Learn how to get started: https://bit.ly/4eqftGo

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Today is #NationalHealthCareDecisionsDay — a day to encourage individuals to express their health care wishes through #advancecareplanning.

Learn how to get started as a member of the #braintumor community: braintumor.org/news/advance-care-planni...

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🧪 𝗡𝗼𝘄 𝗼𝗽𝗲𝗻: #𝗘𝗔𝗡𝗢 𝗘𝗹𝗲𝗰𝘁𝗶𝗼𝗻𝘀 Be part of the Scientific Committee and help drive innovation and collaboration in the field. Submit your application by May 28, 2026 and get involved. Learn more 👉 www.eano.eu #NeuroOncology #braintumor #btsm

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The Wisconsin Brain Tumor Walk & Race is more than just a 5K — it’s a morning of unity, remembrance, and hope.

Join us on July 11, 2026, to honor loved ones, support the #braintumor community, and fuel groundbreaking research: BrainTumor.org/Wisconsin

#WIBTWalkRace

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Looks like an ancient runic writing but it's just a innocent scar from taking out the #braintumor 😂 Some people might think I'm one of those shitty nazis 😬

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What’s it like facing a #braintumor in your 30s?

For #AYACancerAwarenessWeek, Nick shares his #astrocytoma story — a look at the challenges of young adulthood and the research and community that sustain him.

Read more: braintumor.org/news/reclaim...

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Uncovering the driving force behind lethal infant brain tumor The findings have potential clinical implications as they suggest future targeted treatment strategies.

More boys than girls are affected by this pediatric #brainTumor - M Taylor, J. Zhang, @claudiakleinman.bsky.social, K.A. Michealraj et al discovered why. @bcmhouston.bsky.social, @mcgillumedia.bsky.social, @pittdeptofmed.bsky.social @nature.com blogs.bcm.edu/2026/04/07/f...

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Two sisters. Two coasts. One unforgettable mission to honor their mom, who passed from #glioblastoma.

Last Mother’s Day weekend, Jaime and Lesley-Anne participated in NBTS events on opposite coasts to raise money for #braintumor research.

Read their story: https://bit.ly/4tsLAd2

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Today — Mon 4/6 — is the deadline to register for Head to the Hill, 5/3-5/5 in D.C.!

Sign up by midnight to join us: BrainTumor.Org/HeadtotheHill

In 2025, hundreds of #braintumor advocates from across the country showed up strong.

This year, let’s ensure that every state is represented.

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Today — Mon 4/6 — is the deadline to register for Head to the Hill, 5/3-5/5 in D.C.!

Sign up by midnight to join us: BrainTumor.Org/HeadtotheHill

In 2025, hundreds of #braintumor advocates from across the country showed up strong.

This year, let’s ensure that every state is represented.

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Ready to make an impact beyond the office?

Learn how NBTS can help your company find the right #GrayNationEndurance opportunity to empower employees like Dianna and Shelby in the year ahead: https://bit.ly/4mbyXR5

#CorporateSocialResponsibility #braintumor

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Register now to join us for Race For Hope DC on Sun. May 3: CureBrainTumors.org

At this family-friendly event, we’ll gather in our nation’s capital to raise funds & awareness for the #braintumor community during #BrainTumorAwarenessMonth

🌟 Your community is here

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After his #braintumor diagnosis, Daniel engaged with research and quickly saw that progress depends on federal funding.

Now he advocates with NBTS at #Head2Hill

🏛️ Join us May 3–5 in D.C. & urge Congress to fund lifesaving research.

🙋 Register now: BrainTumor.org/HeadToTheHill

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Testosterone promotes growth of a type of brain tumour in young boys A type of childhood brain tumour called ependymoma is more common in boys than in girls. The reason for this difference turns out to be sex hormones such as testosterone.

News & Views article comments on M Taylor, J. Zhang, @claudiakleinman.bsky.social, K.A. Michealraj et al paper about a pediatric #BrainTumor affecting more boys than girls. @bcmhouston.bsky.social, #TexasChildrens, @mcgill.ca @pittdeptofmed.bsky.social @nature.com www.nature.com/articles/d41...

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Luci joining in for #WearAHatDay
an annual event that encourages people to wear hats to raise awareness for brain tumor research. Organized by #BrainTumourAwarenessMonth Participants are encouraged to make a donation & share photos
#braintumor #englishbulldogs

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Join us on Thurs., Apr. 2nd at 7 p.m. for Grief Support Conversations.

The group welcomes anyone who has lost a loved one to a #braintumor & provides the resources, space, & community to support individuals through their grieving process: braintumor.org/support-services/support-groups/grief-support

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ZR fusion protein sways normal brain cell development toward cancer growth A team of researchers at Baylor College of Medicine, St. Jude Children’s Research Hospital, Texas Children’s Hospital and collaborating institutions...

Team at @bcmhouston.bsky.social, @stjuderesearch.bsky.social et al reveals driver of the third most common pediatric #brainTumor. #ependymoma B Deneen, @alishakardian.bsky.social S. Mack @bcmneurosurgery.bsky.social #BCMGradSchool #BCMCancerCenter #TexasChildrens www.bcm.edu/news/zr-fusi...

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Dominant clones leverage developmental epigenomic states to drive ependymoma - Nature Single-nucleus chromatin and RNA sequencing identifies epigenetic chromatin domains that confer vulnerability to paediatric brain tumours such as ependymomas, providing insight into the development of...

Read the full paper, published in @nature.com: tinyurl.com/bdcr3bx4

#BrainTumor | #BrainTumorResearch | #Research

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New Found Glory’s Chad Gilbert Had Three Brain Tumors Removed Last Month: The guitarist said his “recovery has been bumpy at times,” but he’s “feeling much better now and getting stronger by the day” #ChadGilbert #NewFoundGlory #BrainTumor #RecoveryJourney #MusicNews

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Can’t join us at Head to the Hill this year? Advocate from anywhere in under 10 mins — email, call, and/or contact your reps in Congress on social media.

🗓️ Save the date: May 5 will be a national Day of Action for the #braintumor community.

🙋 Sign up today: braintumor.org/advocacy/act...

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🌟 Head to the Hill is May 3–5, 2026, in Washington, D.C.

🔗 Register by April 6: BrainTumor.org/HeadToTheHill

Join NBTS and other patients & caregivers to share your story with Congress and urge lawmakers to fund research & support policies that serve the #braintumor community.

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Even one voice from your local #braintumor community can make a difference!

Join advocates like Amanda from across the U.S. and urge Congress to fund research + support policies that serve patients & caregivers.

🧠 May 3–5 in D.C.

Register 👉 BrainTumor.org/HeadToTheHill

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At 5, Georgie was diagnosed with a brain tumor.

Today, she advocates with and for the #braintumor community.

Join her at Head to the Hill, May 3-5, to urge Congress to fund research and policies for better treatments: BrainTumor.org/HeadtotheHill

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This #CreativeArtsTherapyWeek, we’re celebrating creativity as a source of strength for the #braintumor community. 🎨✨

From painting to woodworking, art offers comfort and connection.

Learn more: https://bit.ly/4aUGqjC

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🏛️ Sun, May 3 - Tue, May 5: At Head to the Hill, meet with Congress to share your story + urge lawmakers to fund research & support policies that serve the #braintumor community.

👉 Register by April 6: BrainTumor.org/HeadtotheHill

#Head2Hill

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