It's CLOVES Syndrome Awareness Day! My daughter has CLOVES Syndrome, which is an ultra-rare genetic condition that results from a random mutation in a gene called PIK3CA. I don't post pics of my kids online, but trust me when I say she's smart, beautiful, and so funny. #CLOVESSyndrome #PIK3CA

🫶🏼 [Sensibilisation]
3 août,journée de sensibilisation au syndrome CLOVES. Une maladie génétique 🧬 rare de la famille des syndromes hypertrophiques liés au gène PIK3CA.
👉 bit.ly/45jbe9A

#maladiesrares #cloves #CLOVESsyndrome #clovessyndromeawarenessday #clovessyndromeawareness

Putting you in the heart of the rare community - CLOVES Syndrome Community The top three unmet needs and main asks of industry come from Lauren Beauregard, executive director of Syndrome Community.

The Cloves Syndrome Community is more than advocacy—it’s connection, research, and resilience. Exec. Director Lauren Beauregard shows how a small team drives big change. rarerevolutionmagazine.com/rare-insider... #RareDisease #CLOVESsyndrome #PatientAdvocacy #PROS #CommunityDriven #RAREInsider