Meet #MelanieGaydos, a striking #model who has made the most of her rare #GeneticDisorder zorz.it/UKxGD | #AdelaideRoss #UniqueLook #EctodermalDysplasia #StrikingFeatures #ModelingIndustry #BeautyStandard #StunningPhotos #CaptivatingPictures

Today on #EctodermalDysplasia Awareness Day, we share how Genomenon’s founder & CSO turned his diagnosis into Mastermind—a genomic intelligence platform now used by 2k+ labs to improve rare disease diagnosis 📖 Read more: www.genomenon.com/blog/the-sto... #RareDiseaseDay #Blog

My 14yo son has a genetic condition called #ectodermaldysplasia. Because of this he is missing 16 permanent teeth. We are traveling 2000 miles in March to visit his oral surgeon to start planning bone grafts in his jaw. I can’t begin to explain the insurance nightmare this is. #denydefenddepose

This series features a boy with ectodermal dysplasia. Very positive books for readers 13 to 113. Used books, foster cats, foster kids, small-town setting, book mysteries, family love. www.amazon.com/Shelve-Under... #cats #catbooks #familyfriendly #ectodermaldysplasia #adoption #adoptdontshop