Lost in the Story Recently, we started watching Stranger Things. For most families, that means settling into the couch, grabbing snacks, and diving into the next episode. For us, it means something different. In between episodes, I have to remind him of what happened last time—who the characters are, what they’re trying to do, how the story left off. Even when we watched it the day before.

Lost in the story isn’t just about TV shows. It’s about wondering how much your child knows they’re struggling to keep up. I wrote about pausing, explaining, and meeting my son where he is.

#epilepsydad #epilepsyawareness #epilepsy #specialneeds #memory #story

Another Year I Didn’t Think I’d Get Every year, my son has a birthday that I didn't think I'd get. Since the age of five, he's never gone more than a day or two without a seizure. There were times when he wouldn't go an hour without one. And there were times when he was in status, and he wouldn't stop seizing at all. The first few years were especially scary.

Every year my son has a birthday I didn’t think I’d see. Sixteen years of seizures, worry, and sleepless nights—but also laughter, love, and gratitude. 💛 Read more on the blog. #EpilepsyDad #EpilepsyAwareness #CaregiverLife #Parenting

The Brave Face As caregivers, we become skilled at putting on a brave face. Every weekend, I play tennis at a club near our house. I've been playing there for a few years, and a group of us have become friendly. We ask about each other's lives and families, even though many of us have never met their families. A few, though, met my wife and son when we first became members, including a few who happen to be doctors and know of my son's epilepsy.

We show up to work, the grocery store, the tennis court—wearing a brave face. But behind it is a life few people see. New post on EpilepsyDad.com: The Brave Face.

#epilepsy #epilepsyawareness #epilepsydad #parenting #specialneeds #fatherhood

Here We Go Again Here we go againSame old stuff againMarching down the avenueSix more weeks and we'll be throughI'll be glad and so will youU.S. Army Marching and Running Cadence I was never much of a runner. I had the look of one. Tall and skinny, with long legs that should have made running easier. I was even a fast sprinter.

When I was 10, I made a mistake that haunted me for years. Now, as a parent, I try to respond differently—to lead with love instead of shame. 💔💙

New post on the blog: Shame, Consequences, and Leading with Love.

#ParentingWithLove #Parenting #EpilepsyDad #EpilepsyAwareness #Epilepsy

Embracing the Bittersweet Life with epilepsy, like life itself, is never just happy or sad. It's bittersweet. Every milestone, every setback, every quiet moment holds a mixture of both. Joy is sweeter because of the battles we fought to reach it. Sorrow runs deeper because it reminds us of what we love most. The deeper that sorrow carves into your being, the more joy you can contain.

Bittersweet. That’s the word I keep coming back to.

Life with epilepsy isn’t all sorrow or all joy — it’s both, often at the same time.

This post is about learning to hold space for both. About hope, heartbreak, and everything in between.

#epilepsy #epilepsyawareness #epilepsydad

Who I Am Meant to Be Parenting a child with special needs comes with challenges that can either paralyze you or push you to grow. In this personal reflection, I share my journey from fear and disconnection to learning how to be present, vulnerable, and truly seen

Fear once kept me from being fully present, but showing up is a choice. Every day, I’m working to be Who I Am Meant to Be. 💜

Read more at epilepsydad.com.

#BePresent #ParentingJourney #CaregiverLife #WhoIAmMeantToBe #EpilepsyAwareness #epilepsy #epilepsydad