April is FND Awareness Month! I acquired functional neurological disorder a few years ago as a result of COVID infection. I experience intermittent paralysis, muscle weakness, brain fog, tremors, and non-epileptic seizures as a result.
#FNDAware #FND #disability #covid
fndhope.org/fndaware/
Our founder Eamon, and #FND peer support volunteer Charis were delighted to attend the NAI briefing hosted by Colm Burke TD on the NAI report highlighting the critical gaps in neurology services in Leinster House today. Well done to everyone who contributed to the report. 💚🧡
@fndportal.bsky.social
In collaborate with the American Neuropsychiatric Association #FND Significant Interest Group, #JNCN has published a curated collection of 10 articles in Functional Neurological Disorder - spanning 1994-2025. Check them out! @fndsociety.bsky.social
psychiatryonline.org/doi/10.1176/...
We had our first #FNDIreland peer support meeting in Waterford last Friday for #FNDAwarenessMonth. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Delighted to hear many of those present will be supporting our '5K for FND' challenge. 💚🧡
You haven’t lost yourself.
FND didn’t take you out of the story.
It changed the angle you’re seeing it from.
Different perspective. Different pace.
Still you. Still here.
That counts.
#FND #FNDaware
Our founder, Eamon joined teenager Molly on @ssns.bsky.social to raise awareness of #FND this #FNDAwarenessMonth.
Molly will speak in Leinster House on April 30th on the challenges of being diagnosed with FND at the age of 13.
www.youtube.com/watch?v=l5pw... 💚🧡
@fndportal.bsky.social @efna.net
We had our #FNDIreland peer support meeting in Dublin last weekend for #FNDAwarenessMonth. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Delighted to hear many of those present will be supporting our '5K for FND' challenge. 💚🧡
@fndportal.bsky.social
www.abc.net.au/news/2026-04-18/function...
More and more we learn about how flu and other common viruses impact the brain long term:
Influenza and Alzheimer's.
Epstein Barr and Multiple Sclerosis.
Chickenpox and Shingles.
With so many […]
We had our #FNDIreland peer support meeting in Kildare at the weekend for #FNDAwarenessMonth. A big THANK YOU to all those who attended and shared their experience of living with #FND.
Delighted to hear so many of those present will be supporting our '5K for FND' challenge.💚🧡
@fndportal.bsky.social
Research on functional neurological disorder (FND) has made significant advances in neurological practice and research over the past 25 years. Our special collection reflects the current diversity and rigour of studies in modern FND research 👉 buff.ly/uC3mq3N
#FND #neuroscience #braincommunications
Our founder, Eamon was delighted to join Rachael Scanlon from Sligo on Ocean FM to raise awareness of #FND this #FNDAwarenessMonth.
Rachael shared how she acquired sudden on set FND & how she reached out to #FNDIreland for support. 💚🧡 www.oceanfm.ie/northwest-to...
@fndportal.bsky.social @efna.net
We had our #FNDIreland peer support meeting in Louth on Saturday this #FNDAwarenessMonth. A big THANK YOU to all those who attended and shared their experience of living with #FND
Great to hear from those taking on our '5K for FND' challenge. Please follow this link idonate.ie/event/5kforF...
💚🧡
Heat map shows technology sector thriving with green indicators, while consumer and financial sectors decline, highlighted by red.
Let's look at today's heat map.
Oh, shocker, tech is green (again) and pretty much everything else is red (again).
AI infrastructure names like #CRDO #ORCL #CRWV #NBIS #ALAB #FORM #DELL #SNDK all up >5%.
Meanwhile, in consumerville, #BROS #ANF #GAP #FND #PVH #LEVI #CCL all down >3%.
Our founder Eamon, shares why he is taking on our 5k for FND challenge in 8 counties this #FNDAwarenessMonth!
If you would like to challenge yourself to raise awareness of #FND and raise vital funds for #FNDIreland please scan the QR code or click here idonate.ie/event/5kforF...
Thank you! 💚🧡
#MedCase - #FND was initially considered in this 10-year-old patient presenting with refractory vomiting and subsequent functional-neurological episodes, however serological investigations instead confirmed a far more unusual diagnosis.
👉 buff.ly/F0PQ4Iv
#NeuroSky
After #FNDAwareness, there are common questions among therapists and MDs:
What do I say?
What should we do during episodes?
How do we support school participation and recovery?
We created this pediatric FND diagnosis packet to help:
canva.link/0k20pyusne3o...
#Neurology #RehabMedicine #FND
Looking forward to continuing to raise awareness of #FND during #FNDAwarenessMonth with our presentation to Oireachtas members in Leinster House on April 30th. Thanks
Dr Martin Daly for hosting our event. Please reach out to your local TD or Senator to ask them to attend. 💚🧡
@fndportal.bsky.social
And thank YOU for spreading the word. Hope it is helpful to providers interested in offering evidence based #FND care without needing to reinvent the wheel.
Providing a new patient packet for those diagnosed with #FND can help providers and families alike. Here is one adapted by the FNDSociety pediatric SIG that gives simple explanations and first steps: canva.link/0k20pyusne3o...
Providers can print these out and share as we do at TCH and CHOP.
"My #body moves in ways I can’t #control —or it refuses to move at all. It aches quietly, collapses without warning & spasms for no reason. It hides things from me, keeps its secrets & exposes me in the worst ways.": buff.ly/dYHn7jO
by @serenebutterfly.bsky.social
#ChronicIllness #FND #disability
Join our FND Awareness Ambassador Jane this April in our 5k for FND Challenge for #FNDAwarenessMonth.
Not only will you challenge yourself, but your participation will raise vital funds to help us expand our services. Please scan the QR code to take part or donate. 💚🧡
#FND #FNDIreland
Editorial by @gnielsenphysio.bsky.social and I on the Keatley et al., #JNCN systematic review and meta-analysis on rehabilitation interventions in #FND found below (@apapsychiatric.bsky.social):
psychiatryonline.org/doi/10.1176/...
Interested in #placebo #hypnosis #suggestion #nocebo and/or #FND? (all of the above?) This conference in Nancy, France in October is likely to be excellent. Abstract submission deadline: 27 April. www.phfd-conf.org/en/
FND, explained simply:
Your brain sends signals like
“move,” “speak,” “stand.”
With FND, the signal gets scrambled
on the way.
The body isn’t broken.
The message just doesn’t land.
It’s not imagined.
It’s neurological.
#FND #FNDaware
Spent today editing and uploading a video for WheelyHappyDays — Sha shaving her head. Hair's been thinning for months due to FND, ME/CFS, fibromyalgia, menopause, and stress. She decided to take control of it rather than keep watching it go.
The blog post is up with the full story. Worth a read […]
Sha Taylor — The Wheely Happy Aardvark — sitting on a grey sofa, smiling directly at the camera with her newly shaved head. She's resting her chin on her hand, showing off a gold stacked ring, and wearing a grey off-shoulder knit top over a navy cami. Her eyes are bright and her smile is wide. She looks completely at ease and, honestly, absolutely radiant. 💜
A side profile shot of Sha, head freshly shaved, laughing and looking off to one side. The soft light from the window catches her face beautifully. She looks relaxed, confident, and genuinely happy — someone who made a decision on her own terms and is entirely at peace with it. 💜
This afternoon has been occupied, and a little unusual.
MrsVark made a big decision today. I think it's turned out well. I just wish I was a better photographer.
#ShavedHead #FND #ChronicIllness
There's so much in this essay that is close to my heart. I have no difficulty with doctors saying I don't know, I can't see any physical cause for your physical symptoms. But I do when they make ridiculous leaps and invent diagnoses that are useless and unhelpful.
#FND #Psychosomatic #MECFS
"It got to the stage where my body couldn't tolerate being on any form of equipment apart from my #hospital bed. I was bedridden for 3 years and I felt trapped inside my own #body, and uncertain about my future.": buff.ly/gsNVauL
#FunctionalNeurologicalDisorder #FND #RareDisease #disability
Happy Easter from all the team at #FNDIreland. Enjoy the Easter eggs! 💚🧡
#HappyEaster #FND #FunctionalNeurologicalDisorder #FNDAwarenessMonth
