This site have completed 22 Sampling Visits already this year, and we would like to thank everyone involved for their commitment to Huntington's disease research!
#HuntingtonsResearch #SantPau #HDClarity
0
1
1
0
Hashtag
#HDClarity
Advertisement · 728 × 90
CSF quality – what is it, why does it matter, how do we ensure it, and how it is checked? 🧵 #Huntingtonsdisease #HDClarity
1
0
1
0
Repeat Sampling – what is it, when is it done, and why is it useful 🧵 #HDClarity #Huntingtonsdisease
1
0
1
0
Recruitment updates for the first half of 2025! 🧵 #HDClarity #Huntingtonsdisease
0
0
1
1
One of the most promising clinical trials currently in HD research is the UniQure, AMT-130 therapeutic trial. Assays used in this trial were developed from knowledge generated from HDClarity CSF samples #HDClarity
0
0
1
0
Clinical trials in HD 🧵
There are currently many exciting clinical trials underway with an aim of preventing or slowing down the progression of Huntington's disease #Huntingtonsdisease #HDClarity
1
0
1
0
Publications & Presentations powered by HDClarity 🧵 #Huntingtonsdisease #HDClarity
Samples from the HDClarity study are widely used in publications and presentations surrounding Huntington’s disease.
1
0
1
0
What are common side effects of having a lumbar puncture and how we reduce the chances of these occurring in the HDClarity study? 🧵 #Huntingtonsdisease #HDClarity
1
0
1
0
What happens at the sampling visit? #HDClarity
Participants who meet the eligibility requirements can return for the annual sampling visit where up to 20ml of CSF is collected via lumbar puncture and approximately 50ml of blood is collected.
0
0
1
0
How does HDClarity work - and what is a lumbar puncture? 🧵 #Huntingtonsdisease #HDClarity
1
1
1
0
Assays have been developed from research conducted on the samples collected in #HDClarity to inform clinical trial development in Huntington’s disease, for example, the UniQure gene therapy study. www.uniqure.com/programs-pip...
0
0
1
0
Relevance to the #HDClarity study:
HDClarity, which follows participants longitudinally at annual visits, is therefore contributing to our understanding of the disease and how biomarkers in the brain change through disease progression.
0
0
1
0