What a beautiful day for a meetup in Leicester, NC! Thanks to those who attended.
Stay tuned to our socials/newsletter/Heylo when and where the next meetup will be for Western NC
Where would you like us to have a meetup at?
#HDreach #ReachForHope #raredisease #huntingtonsdisease
Western North Carolina!
Come out to our first meetup back THIS Saturday, March 28th, at 11am in Leicester, NC.
Pizza WILL be provided, and we have some incredibly special speakers!
Register here:
heylo.com/invite/KZmRL...
#hdreach #huntingtonsdisease #meetup
RDU TONIGHT!! Walk-ins are welcome but please register if you can. If there are no signups, the event will be cancelled. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
Erika and Hailey are chatting about all the upcoming HD Reach events for 2026 over some rounds of Fortnite! Come hang out in chat and watch Erika’s terrible skills in action!
www.twitch.tv/hdreachgameo...
#hdreachgameoverhd #hdreach #huntingtonsdisease #advocacy #livestream
HDYO Camp is STILL accepting applications! Learn what the application process entails and contact HDYO with any questions.
Apply here: hdyo.org/a/881-hdyo-camp
#HDREACHGAMEOVERHD #huntingtonsdisease #fyp #golfwithyourfriends #hdyo
We Need Volunteers for Education Day 2026! 💙💜 Learn more and sign up to volunteer: www.signupgenius.com/go/8050945AC...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd
National HD Gratitude Day 💙 Grateful for the strength and love in the #Huntingtonsdisease community.#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
A look back at CHDI’s HD Therapeutics Conference, where our CSO Nicole Datson, PhD, CMO Scott Schobel, MD, and Associate Director Lodewijk Toonen presented data on VO659, our allele-preferential ASO targeting CAG repeat expansion in polyQ diseases.
#HuntingtonsDisease #RNAtherapeutics
Today is #hdgratitudeday ❤️
We are proud to stand with the global #HuntingtonsDisease community in recognising the unique and ongoing collaboration between HD families, clinicians, and scientists.
Jokes aside- we had a BLAST with Executive Director of HDYO, Jenna Heilman, playing #golfwithyourfriends and chatting about HDYO Camp for those ages 16-25 impacted by #Huntingtonsdisease
We will be there...will you?
Apply at hdyo.org
#HDREACHGAMEOVERHD #fyp #streamer #twitch #hdyo #advocacy #funny
WINSTON-SALEM: Anyone craving pizza for lunch 🍕 Come join this wonderful, community led meetup. 💙💜 Sign up here: www.hdreach.org/community/ev... 💙💜 Walkins are welcome, however please register if you can. #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
Brain balance depends on timing. A review published in Frontiers in Cellular Neuroscience highlights striatal PV interneurons as key regulators of striatal circuits, with evidence of dysfunction in #Huntingtonsdisease and #autism spectrum disorder. #Neuroscience #NeuralCircuits
📰 buff.ly/aDQATDZ
Meetup Reminders for TOMORROW & NEXT WEEK. www.hdreach.org/community/ev... 💙💜 #HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
We are LIVE! Watch Brandon play Resident Evil Requiem on Insanity Mode! Will he crash out?! Twitch.tv/hdreachgameoverhd
#livestream #hdreachgameoverhd #huntingtonsdisease #residentevil #live
"Beyond the Frame, Within the Journey: Documenting Life with Movement Disorders" invites all to share visual stories about the human side of living with movement disorders.
thatdisorder.org
#BeyondTheFrame #PhotographyContest #MovementDisorders #HuntingtonsDisease
We’re excited to share a sneak peek of the high-level agenda for Education Day on April 17–18 in Cary, NC! 💙 www.hdreach.org/conference/2...
#HDReach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons #letstalkabouthd
Jeanette Margot Harbourne, nee Barkel, pictured in 1998 with our son James.
Jeanette died 17 years ago, 12 March 2009. I dreamt about her last night. I expect I always will. #HuntingtonsDisease
Imagine a routine blood draw telling you what's going on in your brain before #HuntingtonsDisease symptoms start? Join our webinar "What Your Blood Tells Us: The Science Behind HD Biomarkers" Tues, 3/24, 12-1pm ET, with Q&A.
Register: tinyurl.com/Mar-2026-web...
#researchspotlightwebinars #curehd
WS & CLT: We hope to see you tonight. Brandi and the WS group are having a theme night- wear your favorite band tee! Erika will be hosting the CLT crew.
Sign up here: www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease
We're thrilled to announce that Nancy Wexler's memoir, "My Life, My Science: Pursuing a Cure for #Huntingtonsdisease" is now available! Purchase from the publisher: tinyurl.com/NW-book-CSHL or on Amazon . #nancywexlermemoir #bookrelease #wexlermemoir #coldspringharborlaboratory #curehd
WILMINGTON: We hope to see you tonight! Walkins are welcome, however please register if you can. If there are no signups, the event will be cancelled.
www.hdreach.org/community/ev...
💙💜
#HDreach #ReachForHope #ReachingForHope #curehd #curejhd #raredisease #huntingtonsdisease #hd #jhd #huntingtons
Meet Banaz, an inspiring ambassador for HDYO from the Kurdistan region in Iraq! She's bravely sharing her journey with Huntington's Disease and making a difference in the Middle East. #whatishappening #huntingtonsdisease #hope #impact
WE ARE #LIVE with #kingdomhearts3
Come hang!
Twitch.tv/hdreachgameoverhd
YouTube.com/@hdreachgameoverhd
#twitch #youtube #hdreachgameoverhd #huntingtonsdisease #curehd #advocacy
Did you know we are now using Heylo for our North Carolina Meetups?
See our meetup events across the state, register, get reminders, stay connected in chat with your local HD community!
Join today:
heylo.group/hdreach
#HDreach #ReachForHope #curehd #curejhd #raredisease #huntingtonsdisease
Ahead of #IWD2026, we’re featuring Professor Sarah Tabrizi - a leader in #HuntingtonsDisease research and a long-standing BNA member.
In this 8-minute interview, she speaks about resilience, collaboration, patient connection, and advice for early-career neuroscientists.
youtu.be/SPQ5a4Qn7CM
Make sure to follow us on #Twitch and #YouTube to catch our lives (use linktree below)
Impacted by #Huntingtonsdisease, 18+, and want to be apart of an incredible gaming community?
apply: linktr.ee/hdreachgameoverhd 💙🎮
All set for an exciting day at Biocapital Europe in Amsterdam #Inverna #BioCapital2026 #Biotech #RNA #SpliceModulation #Neurodegeneration #ParkinsonsDisease #HuntingtonsDisease #PrecisionMedicine #BiotechInvesting #Partnering
Our latest issue of EHDN News brings a wealth of updates from across EHDN and the wider #HDcommunity. Highlights include the Path4HD-ISS2 initiative and the latest developments from EHDN-endorsed studies as well as Enroll-HD and HDClarity: ehdn.org/wp-content/u...
#HuntingtonsDisease
#Research
Once again… Feb 28 is Rare Diseases Day ( www.rarediseaseday.org ). A bit over 15 years ago, my lab got involved in research into the mechanisms behind one such disease: #huntingtonsdisease. Indeed, almost exactly 15 years ago (March 2011) we published our first article from this research line …
