Hey, fellow #hEDS and #HSD zebras with unstable wrist, hand, and finger joints: thoughts on those rectangular flappy topped veggie choppers. (I don't have the spoons to hand chop veggies anymore.)
#EhlersDanlosSyndrome #HypermobilitySpectrumDisorder #hypermobileEDS #HypermobilityNeeds

Dr. Clair Francomano explains the clinical examination process and diagnostic criteria for identifying hypermobile Ehlers-Danlos syndrome (hEDS) youtu.be/a9nLUwZNdbY?...

#hypermobility #hypermobileeds #EhlersDanlosSyndrome

Exciting New Research Sheds Light on hEDS Biology - The Ehlers Danlos Society We are excited to share a new paper published yesterday: Proteomic discoveries in hypermobile Ehlers–Danlos syndrome reveal insights into disease pathophysiology by Griggs M, Gensemer C, et al. (Immun...

New research into #hypermobileEDS! www.ehlers-danlos.com/exciting-new...

Giraffe with a bent/wonky neck. Greenery and blue sky as the background.

I know we’re normally “zebras”, but in this case, I may be a giraffe? 🦒🦓😂😭 #hEDS #EDS #EhlersDanlosSyndrome #Hypermobile #HypermobileEDS #RareDisease

see and in doing so i’ve found what may be the cause of my worst symptoms this past year and other lifelong symptoms! that no doctor has brought up as a possible comorbidity to the main big concern! because there are so fucking many! #ehlersdanlossyndrome #ohmygod #hypermobile #hypermobileeds

It's Ehlers Danlos Syndrome Awareness month.
This illness makes me feel like I'm rotting from the inside out sometimes.
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Ignore these:
#art #artist #digitalart #digitalartist #disabledartist #ehlersdanlossyndrome #hypermobileeds #artwork
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Pink see through slime person with short slime hair facing forwards, looking worried. Their hand is on their thigh and they're stood unstable-y. They're wearing a white T-shirt and pink trousers with cuffed ankles. You can see their knee dislocating in an X-ray view.

I'm uhhhh not made well
#myart #illustration #chronicpain #hypermobileeds #elhersdanlossyndrome

Common symptoms of EDS.
#heds #hypermobileeds #chronicpain #chronicillness #chronicpain

Incurable does not mean untreatable❣️

If anyone in the hypermobile/heds/hsd/other connective tissue disorders involving hypermobile connective tissues club sees this lmk (it feels so lonely on here 🥲). Also if you could teach me how to use this app that would be great😆

#hypermobileeds #hsd

Dangerous EDS and HSD Myths Debunked by EDS Experts Are you frustrated by the amount of misinformation spreading like wildfire across the internet about Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorders?  We are too.  This is precisely why D...

Quick 5 minute read by Dr Cortney Gensemer & Linda Bluestein, M.D. debunking myths around EDS & HSD
#hEDS #hypermobilityspectrumdisorder #EDS #HSD #elhersdanlossyndrome #hypermobileEDS #chronicillness #lindabluestein #CortneyGensemer

www.hypermobilitymd.com/post/dangero...

Connective Tissue Disorders Your body’s connective tissues, like tendons and ligaments, help your joints move. They also give structure and flexibility to skin, blood vessels, and more. But connective tissues disorders can cause...

Interesting News in Health article on connective tissue disorders including a note on research into potential treatments

#elhersdanlossyndrome #hypermobileEDS #hEDS #MarfanSyndrome #marfans #chronicillness

newsinhealth.nih.gov/2024/09/conn...

Dr Francomano on the challenges & potential reasons behind the lack of a genetic marker for hEDS
#elhersdanlossyndrome #hEDS #HypermobileEDS #DrClairFrancomano #chronicillness