Published to accompany #ISOQOL21, maybe worth a read for #ISOQOL22, our #SpecialIssue on "Feedback Systems":
Our editorial (w @claudia_ruthers) raised fundamental challenges for advancing this research-practice frontier:
#HRQL
Interested to see the results of this scoping review of the use of patient-reported outcomes in adult #SocialCare:
Preliminary results presented at #ISOQOL21 suggested limited use beyond evaluation contexts/ study endpoints.
#HRQoL
I often hear that research funders are not willing to support & adequately resource patient engagement activities. This also comes up in a number of presentations at #ISOQOL21.
Is there any systematic work on this, eg. collating such accounts? Analyses of funding contracts?
#PPI
Last days of #ISOQOL21!
Very interesting first results of an #RCT investigating among people living w HIV whether providing feedback on health outcomes affects number & specificity of #SelfManagement goals.
Protocol:
(111.6 @smaryammozafari)
#TextMining
Read @LoriBethFrank's blog:
[[inclusion of the patient voice was changing to mean working w patients, the patient community & w other non-researchers, to hear what we hadn’t heard & to learn to see things from different perspectives.]]
#HRQoL #ISOQOL21
After being interviewed earlier this year by @ISOQOL's New Investigator Special Interest Group, I am looking forward to tomorrow's "Meet the Editors" (w @RSkolaskyScD) with #ISOQOL_NewInvestigators!
#ISOQOL21
🔥Hot off the press🔥
Special issue, 22 papers focusing on databased #Feedback mechanisms to enhance quality & experience of care:
Big thanks to all contributors! 🙇
Editorial summary:
#ISOQOL21 #PatientCentered
@SpringerPBH
#SysReview of all registered RCTs (2007-2020) in ClinicalTrials & EudraCT including children and adolescents (≤21 years) w cancer shows that only 8.2% used PROs as end-points; .6% as the primary end-point:
#ISOQOL21 #PatientCentered
@MariaRothmund
Additional reading for the #ISOQOL21 weeks:
The "Quality of Life Research" special issue on "Feedback Systems" will be out any day & you can read our (w @claudia_ruthers) overview/editorial here:
5 observations summarised below👇
@SpringerPBH
@ISOQOL
Not yet published as a supplement, but already available, the Book of Abstracts for #ISOQOL21:
@ISOQOL
#QOL #HRQOL #HealthEconomics
Preparing for #ISOQOL21?
Discussing measuring change in #PROs is a good ice breaker!😉
Prep w papers from Quality of Life Research's Oct issue:
Issue:
🔥🔥🔥 Submission deadline for #ISOQOL21 presentation uploads! Today! 🗓️
Presentation 107.1 has been finished and uploaded 'in time': today & also under 12min 😉😅
Looking forward to having a central virtual place for a month to meet #QOL #HRQOL #HealthEconomics colleagues!
🔥Just one week until ABSTRACT SUBMISSIONS for #ISOQOL21 close!
➡️📅16.04.
The conference theme is:
Making valid decisions: Learning from Patient Reported Outcomes
#Virtual
#HRQoL #HealthEconomics #PatientCentered
@ISOQOL @JPRO_ISOQOL
#ISOQOL21 will come as a virtual event & ABSTRACT SUBMISSIONS are still open!
➡️📅16.04.
The conference theme is:
Making valid decisions: Learning from Patient Reported Outcomes
#HRQoL #HealthEconomics #PatientCentered
@ISOQOL @JPRO_ISOQOL
