"...the aim of this study is to determine the relationship between #mood and #HRQOL and [social-care related] #QOL among patients with advanced #MultipleSclerosis. First, we examine the association between HRQOL and SCRQOL. Second, we assess whether mood is associated...."
doi.org/10.7224/1537...

Map displaying EQ-5D value sets in Africa, including those developed in partnership with KEMRI. Different colours represent the status and type of Adult and Youth EQ-5D value sets.

We’re proud to support research that builds evidence and local capacity in EuroQol instruments across LMICs 💡


We’re working with KEMRI–Wellcome Trust to support EQ-5D data use and develop new EQ-5D value sets in different African countries.

#GlobalHealth #HRQoL #HealthcareResearch

Screenshot of text and a table. Chen et al., “The most common patient-centred outcomes were quality of life, satisfaction or patient experience, self-management or self-care, depression or mental health, physical function or exercise capacity, cost-effectiveness, cognitive function, adherence, empowerment and hospitalisations.” The table then presents the outcomes from the core outcome sets and the number of studies in Chen et al. (2026) that report this outcome (max. n=25) (Health-related) Quality of Life 9 Mental Health 4 Mortality Adverse Events 1 Development of New Comorbidity 0 Health-risk Behaviour 0 Adherence to Treatment 2 Health-care Cost (out of pocket) 4 Number of studies based on those reported in Chen et al. (Tables 2 & 3), so it may be that some of the less usual outcomes such as health-care cost were not extracted by the team of the systematic review. On the other hand, “cost” is coded inclusively as not all studies assessed out-of-pocket cost (not relevant in all health care systems). The table also codes which outcomes are drawn from which core outcome set, which was unfortunately difficult to describe - here are the references to the sets: 1 Smith et al. (2018). The Annals of Family Medicine, 16, 132–138. 2 “Intervention” in Vidyasagaran et al. (2024). BMJ Global Health, 9, Article e015120. 3 “Prevention” in Vidyasagaran et al. (2024). BMJ Global Health, 9, Article e015120.

A #SysReview exploring impacts of community-based interventions for adults with #multimorbidity on clinical and patient-reported outcomes (25 studies):
bmjpublichealth.bmj.com/content/4/1/...

Quick comparison of identified outcomes with the two central #CoreOutcomeSets 👇

#HRQOL #Psychometrics

Routine HRQoL assessments in hematology are revealing what overall QoL scores can miss: many patients with NHL & CLL face real functional + psychosocial burdens.
Findings reinforce why POSEC and Dr. Tom Atkinson’s work to integrate PROs into AMC trials is so critical.
#PROs #HRQoL #POSEC #AMCTrials

Routine HRQoL Screening Can Identify Functional Decline in CLL and NHL Functional well-being emerged as the most impaired HRQoL domain in NHL and CLL, despite overall moderate global scores.

Routine integration of #HRQoL assessment into #Hematology practice may identify clinically meaningful deficits in functional well-being among patients with #NHL and #CLL, even when overall quality of life appears acceptable.

Read more: https://bit.ly/3N5Lusb

#RareDisease #Oncology

Ich stelle vor: Unsere neue Studie "MEQLI"!

Wir freuen uns, wenn Ihr dem Studienaccount @meqli-prom.bsky.social zahlreich folgt - dort gibt es regelmäßige Updates.

Euer Feedback wird im Verlauf überaus wertvoll sein, da bin ich mir jetzt schon sicher!

#hrqol #MEcfs #PROMs

Prehabilitation Equally Beneficial in Nonsurgical Cancer Treatment Regimens - Oncology Nurse Advisor Prehabilitation improves outcomes for patients undergoing surgical treatment for cancer, but this study explored its benefits for those undergoing nonsurgical treatments.

Prehabilitation improves outcomes for non-surgical #cancer patients:

• 25% less treatment toxicity • Better #HRQoL • Enhanced physical function

Read the review: https://bit.ly/4bbN2df

#Oncology #Prehab #CancerCare #Nursing #EvidenceBased

🔔 Now's the time, don't miss the extended deadline!

Deadline for abstracts for the 1st EuroQol Central & Eastern Europe Regional Meeting 2026 has been extended to Monday 2 March 2026, (23:59 CET).

Learn more and submit 👉 bit.ly/4pQnk2i

#CEE #HRQoL #HealthEconomics

Patients as partners in a research advisory council role: describing the APERSU Patient Engagement Network - Journal of Patient-Reported Outcomes Journal of Patient-Reported Outcomes - Patient and public involvement and engagement (PPIE) is crucial for developing patient-centered healthcare research and improving health outcomes. While...

The Alberta PROMs and #EQ5D Research and Support Unit operates across the health system. Read about the development of its engagement network, that aims to connect those whose experiences reflect the broad scope of PROMs use in Alberta
link.springer.com/article/10.1...

#PPIE #PatientCentered #HRQOL

Resistance Exercise Aids Physical and Mental Health Following COVID-19 Infection A personalized 3-month resistance exercise program improved walking distance and HRQOL in adults with persistent COVID-19 symptoms.

A 3-month resistance exercise intervention improves walking distance, #HRQOL, symptoms of anxiety and depression, and grip strength among adults with lingering symptoms following #COVID19 infection. Published in @jamanetworkopen.com and @infectiousdisease.bsky.social.

https://bit.ly/45yr2q2

Initial Strategy for the Future of DSM | American Journal of Psychiatry PsychiatryOnline.org is the platform for all American Psychiatric Association Publishing journals, DSM, and bestselling textbooks, as well as APA Practice Guidelines, and continuing medical education.

Important note in this report by the Future #DSM Strategic Committee:
Acknowledgement of the importance of functioning and quality of life, and tasking a sub-committee w finding assessments that align with recovery-oriented care
psychiatryonline.org/doi/10.1176/...

#HRQL #HRQoL #MentalIllness #DSM5

Questionnaire Assesses Issues Relevant to Adolescents/Young Adults With Cancer Researchers developed a 30-item questionnaire to measure health-related quality of life of adolescent and young adult patients with cancer. Researchers developed a 30-item questionnaire to measure health-related quality of life of adolescent and young a...

A specially designed, age-appropriate, cross-cultural questionnaire can be useful in assessing the health-related quality of life in adolescents and young adults with #cancer. Published in @jamanetworkopen.com.

https://bit.ly/4qL0vOM

#HRQOL #AYACancer

Graphic promotes the 1st EuroQol Central and Eastern Europe Regional Meeting in Warsaw, Poland set for May 25-26, 2026. Background displays the Warsaw skyline at dusk.

1st EuroQol Central & Eastern Europe Regional Meeting takes place 25–26 May 2026 in Warsaw, Poland 🇵🇱

For this in-person event, expect expert-led discussions, regional insights on EQ-5D research, and opportunities for learning and exchange.

More info coming soon 👀

#CEE #HRQoL

NIEUWE PUBLICATIE van Kusters et al., in Journal of Psychosomatic research, over latente patronen in het herstel van de (gezondheidsgerelateerde) kwaliteit van leven bij patiënten met bekkenfracturen.  

Lees het artikel via: https://doi.org/10.1016/j.jpsychores.2025.112504 

#bekkenfracturen #HRQoL

✨ Adolescents & young adults with cancer face unique challenges – education, careers, relationships, finances & life goals.

This new @eortc.org #HRQoL questionnaire was developed to better capture these realities 👇

www.eortc.org/blog/2026/01...

#GivingVoice2Patients
@sotonhsciences.bsky.social

Among survivors of #CardiacArrest, poorer health-related quality of life at 3–6 months was linked to lower long-term survival, particularly after in-hospital cardiac arrest, suggesting #HRQOL assessment may aid prognosis. ja.ma/49m3sxM

I don't know a single old person who actually wants to undress and be cleaned by young people.
But particularly for people with skin diseases, good routines are the most important part for #HRQOL, health related quality of life.
A robot will be able to wait patiently while a salve takes effect.
3/3

Valuing Child Health: An EQ-5D-Y-3L Value Set for the United States To develop a United States EuroQol 5-Dimension Youth version, 3-Level (EQ-5D-Y-3L) value set for measuring pediatric health-related quality of life based on preferences elicited from both adults and a...

8. 'Valuing child health: an EQ-5D-Y-3L value set for the United States.' Pickard et al.
📘 bit.ly/4sroVxR

#HRQoL #HealthEconomics

9/9

The comprehensibility continuum: a novel method for analysing comprehensibility of patient reported outcome measures - Quality of Life Research Purpose Evidence of comprehensibility is frequently required during the development of patient reported outcome measures (PROMs); the respondent’s interpretation of PROM items needs to align with inte...

Publication proposing a 'Comprehensibility Continuum' method to demonstrate #PatientReported outcome measure comprehensibility systematically and consistently from interview data:
link.springer.com/article/10.1...

#PatientCentered #Psychometrics #ScaleDevelopment #HRQOL

Patients with primary #ITP who received treatment with efgartigimod experienced sustained improvements in #HRQoL measures. Presented at #ASH25.

https://bit.ly/3XGSRYT

AL #amyloidosis trial S2213 compares autologous transplant to Dara-VCD consolidation. Also compares post-consolidation #PatientReportedOutcomes for physical function and other #HRQoL measures.
QoL/PRO Co-PI: Terri Parker, MD Yale Cancer Center
SWOG.org/clinical-trials/S2213

10th UK Patient Reported Outcome Measures (PROMs) Research Conference We are delighted to announce that the 10th UK Patient Reported Outcome Measures (PROMs) Conference will be hosted in Sheffield on Tuesday 23 June 2026.Now in its tenth year, the UK PROMs Conference br...

Webpage live for the

10th UK Patient Reported Outcome Measures Research Conference
sheffield.ac.uk/smph/events/...

An opportunity to reflect on progress, to explore the future of PROMs, and going back to where it all began in 2016:
Sheffield #SCHARR
23rd June 2026

#HRQOL #PatientCentered #ISOQOL

impact on the patients’ HRQoL. In conclusion, the EQ-5D-3L-based #HRQoL of ME/CFS is significantly lower than the population mean. In fact, the ME/CFS HRQoL in this study was the lowest of all the compared conditions in both the unadjusted analysis and in the adjusted regression analysis. The

Text: ‘Paper Thursday - Differences in rating of health related quality of life on the EQ-5D-5L between ethnic groups. by Virdis, J, M. Anselmi, L. Sutton, M. (2025).' The background is a gradient blue with overlaid images of books and the world map.

New insights from Virdis et al. on how different ethnic groups report their health 👇

- White respondents chose more mid-severity levels
- Asian & Black respondents reported fewer issues in Anxiety/Depression & Usual Activities.

💡 https://bit.ly/4r7LQh2

#HRQoL

Journal of Patient-Reported Outcomes The Journal of Patient-Reported Outcomes (JPRO) is an international, open-access, fully peer-reviewed multi-disciplinary journal publishing original ...

Three calls for papers from JPRO:
jpro.springeropen.com/articles/col...

Translation and Validation of Patient-Reported Outcome (PRO) Measures

PROs in Clinical Registries

Patient-Reported Outcome Measures (PROMs) in Telehealth

#PatientCentered #HRQOL #HealthEconomics #CrossCultural

Family dermatology life quality index (F-DLQI): German validation and applicability to parents of infants and toddlers with dermatological conditions - European Journal of Pediatrics Parents of children with skin conditions face an additional caregiving burden and significant health-related quality of life (HRQoL) impairments. This study aimed to (1) test the psychometric properti...

🎯 We validated the German version of the Family Dermatology Life Quality Index (F-DLQI):
It is a reliable and valid tool that advances our understanding of how parents are affected by their children’s skin diseases.

🔗👉 link.springer.com/article/10.1...
#Dermatology #ParentCare #HRQoL #Pediatrics

How effectively do the EQ-TIPS-3L and PedsQL instruments capture health-related quality of life in infants and toddlers aged 0–4 years? New study explores the performance of these measures. #HEOR #HRQoL #pediatrics

Quality of Life Research “Quality of Life Research is an international, multidisciplinary journal of original research, theoretical articles, and methodological reports related to the ...

The new paper is part of the ongoing #CallForPapers by the journal "Quality of Life Research"

"Quality of life in people with #MentalDisorder – beyond global scores"
link.springer.com/journal/1113...

Linked editorial:
rdcu.be/eNtXG

#HRQOL #Psychometrics #MentalHealth #MentalIllness

A systematic review of quality of life and health‐related quality of life as outcomes in substance and behavioural addictions Issues Consideration of an individual's quality of life (QoL) can benefit assessment and treatment of addictive disorders, however, uncertainty remains over operationalisation of the construct as an.....

We investigated how QoL/ #HRQoL instruments were used in substance and behavioural addictions. We found similar issues as this team:
variety of measures, lack of theory, and issues around methodological quality:
onlinelibrary.wiley.com/doi/10.1111/...

#SysReview #Psychometrics
@ptoner.bsky.social

Quality of life measures in treatment for active substance misuse: a scoping review - Quality of Life Research Purpose Unlike previous reviews on quality of life (QoL) and substance use disorders (SUD), this scoping review focuses on QoL within the context of SUD treatment and active substance misuse. This rev...

A #ScopingReview of quality of life measures in treatment for substance misuse:
link.springer.com/article/10.1...

Urgent:
Culturally adapted measures, intersecting identities in QoL experience, impacts of stigma, and the roles of socioeconomic factors and cooccurring conditions.
#SDH

#HRQOL