two years ago a hurricane knocked out the major manufacturing plant of IV fluids in the USA. it supplied 60% of what we all use here.

It took many months for the supply line to stabilize and during that time, many IV fluid pharmacies just closed down instead of waiting.

#IVShortage

oh wait actually

the last shipment from this new place was mt favorite bags
they have this like
silicone or rubber cap that doesn’t hurt so much to take off

so maybe they get different bags still.

that started happening more in the #IVShortage.

oh i am glad

my #IVShortage struggles are over
i have a new
pharmacy

i like them. they care and they help

and they have higher quality hubs and better boxing with stickers
idk

i like

i’m so tired

there was an #IVShortage in september bc Hurricane Helene damaged the manufacturing plant of 60% of USA IV fluids.

early this year, my pharmacy dropped me as a patient because they couldn’t price gouge my insurance anymore. they asked $1,000 for $10 worth of supplies and only got “reimbursed” $200

and after the insurance goes through then i can get more ask for additional supplies and all

but they gave me 6 weeks to start so, i have 12 and i can use them and not suffer so much and just

oh my god
oh my god

i have it j have them

baxter brand

oh oh
oh

#IVShortage struggle is ending for me

my heart is aching literallt bc i got too excited for saline coming

omg everything is looking up pumpkin today
after the last horrible weeks

my home will be clean and i have food and i could donate more bc of the work prize and i’m getting SALINE!!

eee!!

take that
#IVShortage

i feel AWFUL

and it’s like
it’s not bad it’s not danger it’s not hospital

it’s the #IVShortage problem and the
just
my inevitability the
it’s

i’m so tired and this sucks and maybe in some hours i feeling human again
but it sucks now and it’s gonna suck tomorrow
and the day after and forever

i need to either find a magical pharmacy that has IV saline after most places near me literally closed down or stopped offering saline bc of the september 2024 hurricane #IVShortage

or find the strength to repeat all the steps i already did to ask them to do their jobs better

or idk. keep this up

“Due to the IV fluid shortage we will be collecting staff tears. please use a sterile cup” hand painted sign with a lil guy holding a cup in the corner.

#IVShortage sign i saw on pinterest hehe

i need so many things to stay alive now the tariffs are going to suck so hard

the supplements, medications, food i’m not allergic to, just everything

and stuff like the #IVShortage took like six months to fix and it’s still a problem.

my quality of life is gonna go way down

#NEISvoid

i used to think all of my exhaustion was #MECFS

but it turns out that a huge amount was #POTS related. specifically because of my low blood volume.

finally getting proper fluids then enduring the #IVShortage and medical shenanigans let me realize this

sharing in case it helps others!

#NEISvoid

also this is ridiculous because want to eat food i want food so bad and i’m basically forced to do TPN because of the darn #IVShortage plus cruel IV pharmacies and other problems

like maybe with proper fluids i’d be able to microwave meals again since i’ve been doing so well

but i’m

just

i can’t do any of that now

i hear about protests after they happen

too sick to keep up or do much
too stuck on several structural issues ago - like this ongoing #IVShortage and related issues

this isn’t enough of a reason for any of my doctors or the ER to help me
and i already know that

my life is slowly degrading every time i can’t get my hands on more IV packs independently and no doctor or medical facility cares

#IVShortage
#NEISvoid

the darn #IVShortage means the ER doesn’t give fluids

and i don’t
wel i have one right now but i’m saving it for the if i have to get to the doctor next and don’t get more

this sucks

IV saline as treatment for POTS is the number one treatment that decreased my fatigue and improved my quality of life

that’s why i’ve gotten it through unofficial means whenever i have been able to during this #IVShortage

someone at work asked me how to fix the iv shortage

how would i know

i cannot fix it lol if i could have i would have

the factory is fixed so idk what the problem is but i still don’t have proper fluids

#IVShortage

i don’t know why i asked people to fix the IV shortage

i don’t know why

i know it wouldn’t work
if they wanted to they would

but shouting to the void wasn’t enough
i wanted to shout it to the people who could change it and choose not to

so i did.

it won’t fix anything.

#IVShortage
#NEISvoid

lactated ringer

basically low key poisoning myself

because the alternative is zero IV fluids and that sucks more? or so i thought

but this isn’t that great either

i am not a fan of needing to pick my poisons so literally as well as metaphorically

#NEISvoid
#IVShortage

but when i wake up, i need to handle that minor dehydration. pre #IVShortage i would open the IV line when i woke up or swap bags or turn the flow way up. whatever i needed.

today i really needed that. but from waking and moving i had no fluids at all. and that made it worse a bit

i might bolus the rest of this IV to give my body a bit of a break of the constant mild dehydration

it’s been bad and it makes everything harder

half a bag bolus this morning really helped but i still feel weak and dehydrated

this #IVshortage sucks.

my nutritionist T found saline for me in texas

nutritionist T is amazing

nutritionist T is getting a nice card or something when i get my fluids

been slow at checking things bc of shortage he sent the email a few days ago
i’m so glad

#IVShortage

i’m glad i feel i can get out of this crash but also this all just sucks and i’m still in a fragile state and dangerous zone

things keep happening bc of the darn #IVShortage here in usa. it keeps making my health bad

i’m too sick to handle it well

haha i’m too sick to know war games are violent

i’m ok just tired
and exhausted of all the emergencies the darn #IVShortage has caused me

like all of my problems these past months are bc of dehydration or the extra work of getting IV fluids or the stress of it all and being denied and not helped

i am ok just tired from it all

all these emergencies in a row are really not good
most of them are bc of the #IVShortage which sucks

i think that being in the hospital is a good reason to officially take tomorrow off?

lol i do not like how i think stuff like that
or that i have to actually consider it

i should not be needing to work hahah my body is so broken

and healing! until this darn #IVShortage

i hooked up lactated ringer
because i need fluids

now i feel better from the blood volume and sick because of the ringer’s lactate

choices, choices

#IVShortage

i have to do several unadviseable things today and i’m just so frustrated about it

it shouldn’t need to be this hard

i’m so lucky my body has been healing and i’m strong enough to do this today
it’s several bad decisions strung together

#IVShortage

my friend my IV friend is telling me stuff and he’s been helping me out more than i knew 🥹

also i hate the #IVShortage so much so very much

-rages at the #IVShortage-

#NEISvoid