#GreatestMEdicalScandal #JohnVsJonVsME
@lastweektonight.com @weeklyshowpodcast.bsky.social @johngreensbluesky.bsky.social @hankgreen.bsky.social

I’m not here anymore (saving or redirecting limited ATP), but leaving the account open to keep advocacy and especially #GreatestMEdicalScandal #JohnVsJonVsME records.

#GreatestMEdicalScandal
@lastweektonight.com @weeklyshowpodcast.bsky.social

#JohnVsJonVsME
@johnvsjonvsme.bsky.social

The casual ableism & willful ignorance after we hoped so hard you would learn about the horrors of infection associated chronic conditions & #GreatestMEdicalScandal & devote just a bit of airtime to educating the public… Kinda heartbroken, really

#JohnVsJonVsME
@weeklyshowpodcast.bsky.social

I do think there are exceptions:

- People who have the wrong idea, ofc explain to them
- People who are deep in the weeds and need to know why things are this way (so why is there so little funding, etc)
- Potential news hooks where it could be played as a scandal, like #JohnVsJonVsME

2/

Please check out this thread @lastweektonight.com
and @johnvsjonvsme.bsky.social
#JohnVsJonVsME #GreatestMEdicalScandal

Folks w #SevereME have suffered for DECADES in dark silent rooms & this is what's offered.

@johngreensbluesky.bsky.social @hankgreen.bsky.social @markruffalo.bsky.social

Please check out this thread/homage @lastweektonight.com
and @johnvsjonvsme.bsky.social
#JohnVsJonVsME #GreatestMEdicalScandal

The levels of grift 😭

@johngreensbluesky.bsky.social @hankgreen.bsky.social @markruffalo.bsky.social

Please check out this thread/homage @lastweektonight.com
and @johnvsjonvsme.bsky.social
#JohnVsJonVsME #GreatestMEdicalScandal

Dismally low quality of life for millions of people globally and yet immensely neglected

@johngreensbluesky.bsky.social @hankgreen.bsky.social @markruffalo.bsky.social

Yes please check out this amazing thread by @exceedhergrasp1.bsky.social, @lastweektonight.com !

#JohnVsJonVsME @johnvsjonvsme.bsky.social

Also tagging @johngreensbluesky.bsky.social @hankgreen.bsky.social @markruffalo.bsky.social for a glimpse of the absurdity & abuse of #GreatestMEdicalScandal

#JohnVsJonVsME MEme that shows a town on a cliff covered by a virus and people with Long Covid POTS ME etc rock climbing on the cliff

A #JohnVsJonVsME @johnvsjonvsme.bsky.social #GreatestMEdicalScandal #Halloween MEme I made last year about this ignored horror (and how it’s my villain origin story) @juliadoubleday.bsky.social @ryankenacts.bsky.social @johngreensbluesky.bsky.social @markruffalo.bsky.social
My spirit is tired 😭

Great thread from the British journalist who coined the phrase #GreatestMEdicalScandal referring to myalgic encephelomyelitis or ME/CFS. #JohnVsJonVsME

Still dreaming of #GreatestMEdicalScandal & Wessely malfeasance coverage
#JohnVsJonVsME @johnvsjonvsme.bsky.social
I’ve kept deteriorating through this pandemic & am doing less advocacy work, but please see
www.johnvsjon.com
@ryankenacts.bsky.social @lastweektonight.com @markruffalo.bsky.social

Still dreaming Jon Stewart will look into Wessely’s malfeasance @weeklyshowpodcast.bsky.social. The @georgemonbiot.bsky.social thread on #GreatestMEdicalScandal this is responding to is excellent. #JohnVsJonVsME @johnvsjonvsme.bsky.social
www.johnvsjon.com

awareness, research, and funding. The Solve ME researchers have given us a ton of promising leads to build upon and begin correct this egregious injustice.

Please use this news peg to cover #GreatestMEdicalScandal #JohnVsJonVsME

@lastweektonight.com @thedailyshow.com

There’s yet another extremely compelling (this time hopeful!) news peg for journalists to cover ME/CFS and the #GreatestMEdicalScandal. The disease that was dismissed, wrongly, as psychological has significant genetic predisposition, just announced after a massive study.
#JohnVsJonVsME

Buried Alive by Government “Experts” — Bridget O'Shea At first, I’d been on a plane, in a window seat, grounded and waiting to deboard. I thought this for a long time. Now, though, the scene takes me to the backseat of a car – my parent’s car – on the hi...

Here’s Bridget in her own words on the #GreatestMEdicalScandal. How many more kind and brilliant souls do we have to lose before this gets the compassion, help, NEWS COVERAGE, and treatment patients deserve?
#JohnVsJonVsME
2/

bridgetoshea.com/blog/buried-...

The #GreatestMEdicalScandal has taken another person who should have been in the prime of their brilliant life. She spent so much of her last years howling for better understanding & treatment of this neglected disease. 1/
#JohnVsJonVsME

www.dignitymemorial.com/obituaries/c...

CW: death

Every day it seems I learn of another pwME who’s died. Advocates in their 60s, 40s, 20s. And those are just the folks on my radar, pals who’ve also been howling into the void for ages. When’s the #GreatestMEdicalScandal inflection pt?
#JohnvsJonVsME
@johncusack.bsky.social

Can I get an ETA on most media headlines going from “Mysterious malady isn’t all in your head” to the decades-overdue “The neglect & abuse of #pwME is a global health & human rights scandal”?

#GreatestMEdicalScandal #ExposeMENow #MEKills #MillionsMissing #JohnVsJonVsME #ME

#ME #pwME #MECFS #SevereME #VerySevereME #LongCovid #EndMEcfs #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #StillTheSaME #StandByMEcfs #StillSickStillFighting #NotRecovered #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #BerlinBuyers #IACC #MEKills #DontLetMEDie

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jenny Hagel for this” in red text. On left side, an image of Jenny Hagel as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @jennyhagel.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Amber Ruffin for this” in red text. On left side, an image of Amber Ruffin as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @amberruffin.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Ronny Chieng for this” in red text. On left side, an image of Ronny Chieng as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @ronnychieng.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Grace Kulenschmidt for this” in red text. On left side, an image of Grace Kulenschmidt as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @GKuhlenschmidt.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟
Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Jordan Klepper for this” in red text. On left side, an image of Jordan Klepper as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @jordanklepper.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟
Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Michael Kosta for this” in red text. On left side, an image of Michael Kosta as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @michaelkosta.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

A Lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Josh Johnson for this” in red text. On left side, an image of Josh Johnson as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @JoshJohnsonComedy.bsky.social!Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

Is there anyone in the #MECFS community that you think could be honoured? Link to submissions below 👇

#StillSickStillFighting #ME #pwME #LongCovid #SevereME #VerySevereME #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME

Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Naomi Klein for this” in red text. On left side, an image of Naomi Klein as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @naomiaklein.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth

Alt. Text: A lifeguard safety MEme. At the top, “We need a whole team of lifeguards to sound the alarm” in black text. Below the top, “#GreatestMEdicalScandal #MillionsMissing #DisabilitySOS” in red text. On right side, “I nominate Chen Chen for this” in red text. On left side, an image of Chen Chen as a lifeguard holding a red and white safety floatation ring. The background is a photograph of an enormous ocean wave crashing near the shoreline. At the bottom, “#JohnVsJonVsME” in black text.

We’re sending out a #DisabilitySOS to @chenchenwrites.bsky.social! Will you help us raise awareness about #GreatestMEdicalScandal & bring #MillionsMissing back to safety (and life)? 🙏🛟 Learn more at johnvsjon.com #JohnVsJonVsME #MyalgicEncephalomyelitis #MEAwarenessMonth