We must reach out to help fight the health disparities found in these communities. As part of #TeachMETreatME initiative, a Midwest Tribal ECHO focused on ME/CFS & Long COVID. Thanks to the Native American Community Clinic in Minneapolis for collaborating with #MEAction MN!
ow.ly/CXAQ50Xt6Kk
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Baseball-style 3/4 length sleeve tee that says, "Teach ME Treat ME with a stethoscope turning into a heart monitor line that ends in a wee #MEAction logo. The body is gray and the sleeves are a vivid red.
Still love the #TeachMETreatME stuff. If you participated in our clinical outreach initiative and never got a souvenir, it's not too late ❤️
I like the baseball style for this b/c it has that university vibe, but there are hoodies and tees at the link, too:
www.bonfire.com/teach-me-tre...
This is you refusing to do the same level of due diligence you’ve been attacking Kelly over for 5 days, now.
#GreatestMEdicalScandal #pwME #VerySevereME #TeachMETreatME #DisabilitySOS #MillionsMissing
#ME #pwME #MECFS #SevereME #VerySevereME #LongCovid #EndMEcfs #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #StillTheSaME #StandByMEcfs #StillSickStillFighting #NotRecovered #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #BerlinBuyers #IACC #MEKills #DontLetMEDie
YET MORE stress & no answers to our questions from East Sussex NHS; & update on Karen Gordon’s Hospital Stay chng.it/k6752MwWTg via #UKChange
#ME #MECFS #LongCovid #SevereME #VerySevereME #MillionsMissing #MEAction #TeachMETreatME #GreatestMEdicalScandal #ThereForME #DontLetMEDie #MEawareness
4)Prevalence of reduced range of motion of the limbs and spine in adolescents with ME/CFS
5)Neurogenic TOS as a contributor to ME/CFS symptoms
#pwME #pediatric #MedEd #MECFS #MyalgicEncephalomyelitis #LongCovid #MillionsMissing @meactnet.bsky.social
#TeachMETreatME
Is there anyone in the #MECFS community that you think could be honoured? Link to submissions below 👇
#StillSickStillFighting #ME #pwME #LongCovid #SevereME #VerySevereME #MEawareness #DisabilitySOS #MEAction #MillionsMissing #TeachMETreatME #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME
Please sign to help Karen Gordon, a very severe ME patient who needs our help! 💙
www.change.org/p/save-karen...
#ME #MECFS #LongCovid #SevereME #VerySevereME #MillionsMissing #MEAction #TeachMETreatME #GreatestMEdicalScandal #JohnVsJonVsME #ThereForME #DontLetMEDie #MEawareness #MEawarenessmonth
Picture of a woman with severe ME whose legs are extremely bony and skinny due to muscle wasting
🚨 TW 🚨
I used to hike miles. Now my legs look like this due to #SevereME. I lost over 20% of my body weight in the last year despite eating 1000kcals more than I use daily. I fear I’m quite literally wasting away.
#May12 #WorldMEDay #MillionsMissing #MECFS #LongCovid #DontLetMEDie #TeachMETreatME
A floral print chair with a red blanket folded on the top that says: #MEAction Still Here Still Sick.
World ME Day - May 12, 2025
We need good health care, up-to-date medical education and immediate research funding!
I have suffered from ME/CFS since 2009.
#StandByMEcfs #StillSickStillFighting #MEcfs #EndMEcfs
#MEAction #MillionsMissing #TeachMETreatME #pwME
World ME Day
May 12, 2025
Learn more about ME/CFS:
MEAction Network (meaction.net),
Bateman Horne Center (batemanhornecenter.org),
Open Medicine Foundation (omf.ngo),
Solve M.E. (solvecfs.org)
World ME Alliance (www.worldmealliance.org).
#StandByMEcfs #TeachMETreatME
#EndMEcfs #GlobalVoiceForME
Pedro Pascal as ME research infographics Neural consequences of Post-Exertional Malaise in Myalgic Encephalomyelitis Brain Behav Immol., 2017 This study provides objective evidence that PEM affects cognition, having widespread effects on brain regions associated with attention, working memory & executive function. ME/CFS patients responded opposite to controls post-exercise: greater brain activity (suggests more neural resources needed to complete tasks), reduced cognitive performance (greater errors) & increased symptoms. These results emphasize the strong negative impact that PEM can have on the central nervous system.
#PedroPascalPapers Day 2
#MEAwarenessMonth
#MillionsMissing #PostExertionalMalaise #MEdEd #TeachMETreatME #GreatestMEdicalScandal
On a light red background, text that reads: "When I talk about social abandonment in M.E., I don’t mean the loss of contact and support from many friends and relatives (though that is also a part of the story, as with perhaps all chronic illnesses and even acute ones.) I mean that Myalgic Encephalomyelitis is a devastating and neglected neuroimmune illness with no FDA-approved treatments for which almost nobody but the most affected advocate for progress in research and care. People with M.E. don’t die quickly, but M.E. destroys lives, destroys the possibility of engaging with the world, and eventually #MEkills. Will you join MEAction, World ME Alliance, and other M.E. and IACC orgs in their calls for action on May 12, World M.E. Day? The #MillionsMissing need healthy allies to recognize this is a global health and human rights scandal and join the fight for change."
Friends, please follow @meactnet.bsky.social and other #MyalgicEncephalomyelitis #MECFS #LongCovid #IACC orgs and join in #WorldMEDay #MillionsMissing actions in May and beyond ❤️.
#GreatestMEdicalScandal #TeachMETreatME #pwME #SevereME #MEKills #DontLetMEDie #JohnVsJonVsME
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Stand By ME/CFS!
Please take a look at my Stand By ME/CFS video: youtu.be/s9cMmFDI4rk
And become an ally in 2025!
With gratitude, Cynthia 💛
#StandByMEcfs #GlobalVoiceForME #TeachMETreatME
#StillSickStillFighting #MillionsMissing #ForgetMEnot #MEcfs #MyalgicEncephalomyelitis #EndMEcfs
Photo description: A hand with End ME/CFS blue bands on wrist. Photo credit: Cynthia Johnson (who has suffered from ME/CFS since 2009).
You are not forgotten
I see your faces,
I know your names,
I remember your stories.
#StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #GlobalVoiceForME #EndMEcfs
💯
It was because of the patient community that I learned better, not my doctors.
@meactnet.bsky.social has been doing a lot of work around this with their #TeachMETreatME campaign.
They announced medical flash cards for med students today
Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono
Want to give a holiday shout out to all who also suffer from ME/CFS and the people that love us!
To learn more:
MEAction Network (meaction.net),
Bateman Horne Center (batemanhornecenter.org),
Open Medicine Foundation (omf.ngo) and
Solve M.E (solvecfs.org).
#StandByMEcfs #TeachMETreatME
Educational programs for providers has been the focus for @meactnet.bsky.social in 2024, continuing into 2025. The #TeachMETreatME events have taken place throughout the country. Some are seen here in the end of year highlights.
bsky.app/profile/meac...
Description:
A white Mexican woman wears an ice hat & @meactnet.bsky.social red t-shirt with the message #TeachMETreatME & speaks to the camera in front of a wall that’s half solid white half brick facade. At one point she holds up a plate with a lemon & lime & later bites into a lemon slice
This year @meactnet.bsky.social focused heavily on ME/CFS education, including events by my home state group, MEAction GA. #TeachMETreatME events took place throughout the country. Check the accomplishments in the article and, if you choose to donate to keep these actions going, there is a link.
Resources that come to mind are BHC @openmedf.bsky.social @solveme.bsky.social MedEd & specifically recent webinars on #SevereME.
Also @meactnet.bsky.social #TeachMETreatME campaign & specifically the Mayo Clinical Proceedings article by @exceedhergrasp1.bsky.social & @grachstephanie.bsky.social
#wishtreeforyokoono Wish by Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs
Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS.
Please lend your voice!
#StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono
Please submit questions to: maryland@meaction.net
#pwME #pediatric #MedEd #MECFS #MyalgicEncephalomyelitis #LongCovid #MillionsMissing @meactnet.bsky.social #TeachMETreatME
4/4
Hoy dedico este Mixtape de #GreatestMEdicalScandal a @exceedhergrasp1.bsky.social, no solo por su trabajo con @meactnet.bsky.social #TeachMETreatME #MECFS, sino porque finalmente me convenció de asomarme más a esta plataforma de Cielo Azul 🌞.
@meactnet.bsky.social :
“Dear Doctors” written by Jes Gordon & performed by #MEAction Georgia who created this powerful video and they also have a #TeachMETreatME event coming up Sept.18 at 4 pm ET.
The target is nursing students & medical professionals but all are welcome!
#MEcfs #CFS #PwME
People with severe presentation have starved to death b/c clinicians delayed giving parenteral nutrition. ME is a high-morbidity, low-mortality disease, so these are especially tragic stories of harm that could have been averted with proper care. It's vital we #TeachMETreatME.
#SevereMEDay
