#GlobalVoiceForME hashtag - Bluesky

@minetodo.bsky.social

5 months ago

Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!

Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!

#StandByMEcfs #StillSickStillFighting #MEcfs #pwME
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono

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@dgspsoa.eurosky.social

10 months ago

Bild. Ersteller unbekannt. Zu sehen ist eine Fassade, rechts zu sehen ist ein aufgemalter Mann mit Pinsel und Eimer ind den Händen und 2 Rollen (Tapete?) unterm Arm. Links steht mit grauschwarzer Pinselschrift: 'FOLLOW YOUR DREAMS' Der Spruch wurde mit einem Stempel mit Aufschrift 'CANCELLED' überstrichen (roter Block mit weißer Schrift und minimaler schwarzer Umrandung) darunter steht in PC-Schrift: 'because of #mecfs'

#LongCOVID
#PAIS
#MEcfs
#MEAwareness
#HealthEquity #MillionsMissing #WorldMEDay #GlobalVoiceForME #ChangeTheFuture4ME
#STOPtheHarm #FUNDtheResearch #STARTtheTreatment

Creator Unknown. Please tag for credit.

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Giada Da Ros

@giadadaros.bsky.social

10 months ago

#CFSME #MECFS #MEAwareness #WorldMEDay #MEawarenessmonth #MillionsMissing #facts #factoftheday #GlobalVoiceForME

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Cynthia Johnson

@minetodo.bsky.social

10 months ago

Home - World ME Alliance

World ME Day
May 12, 2025

Learn more about ME/CFS:
MEAction Network (meaction.net),
Bateman Horne Center (batemanhornecenter.org),
Open Medicine Foundation (omf.ngo),
Solve M.E. (solvecfs.org)
World ME Alliance (www.worldmealliance.org).
#StandByMEcfs #TeachMETreatME
#EndMEcfs #GlobalVoiceForME

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Cynthia Johnson

@minetodo.bsky.social

11 months ago

Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate

As you are able today, please give to this GoFundMe! 💛
You can donate a one time gift or use the monthly recurring gift option. Every gift helps and I am very grateful to all who have given so far!

#StandByMEcfs #StillSickStillFighting
#GlobalVoiceForME #EndMEcfs
www.gofundme.com/f/financial-...

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Cynthia Johnson

@minetodo.bsky.social

11 months ago

Donate to Financial Stability for Chronically-Ill Advocate, organized by Shane Johnson This is a humble request for financial help for my mother, Cynthia John… Shane Johnson needs your support for Financial Stability for Chronically-Ill Advocate

Please lend a hand today by giving to this GoFundMe! 💛
You can donate a one time gift or use the monthly recurring gift option. Every gift helps and I am very grateful to all who have given so far!

#StandByMEcfs #StillSickStillFighting
#GlobalVoiceForME #EndMEcfs
www.gofundme.com/f/financial-...

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Cynthia Johnson

@minetodo.bsky.social

11 months ago

Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!

Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!

#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono

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Cynthia Johnson

@minetodo.bsky.social

11 months ago

Stand By ME/CFS | Cynthia Johnson, Edge Prize 2023 YouTube video by The Edge Prize

Stand By ME/CFS!
Please take a look at my Stand By ME/CFS video: youtu.be/s9cMmFDI4rk
And become an ally in 2025!
With gratitude, Cynthia 💛

#StandByMEcfs #GlobalVoiceForME #TeachMETreatME
#StillSickStillFighting #MillionsMissing #ForgetMEnot #MEcfs #MyalgicEncephalomyelitis #EndMEcfs

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Cynthia Johnson

@minetodo.bsky.social

1 year ago

Photo description: A hand with End ME/CFS blue bands on wrist. Photo credit: Cynthia Johnson (who has suffered from ME/CFS since 2009).

You are not forgotten

I see your faces,
I know your names,
I remember your stories.

#StandByMEcfs #StillSickStillFighting #MillionsMissing #TeachMETreatME #GlobalVoiceForME #EndMEcfs

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Cynthia Johnson

@minetodo.bsky.social

1 year ago

Wish tag from virtual Wish Tree for Yoko Ono. Cynthia's wish is: Stand By ME/CFS!

Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. Please lend your voice and become an ally today!
#StandByMEcfs #StillSickStillFighting #MEcfs
#TeachMETreatME #EndMEcfs #GlobalVoiceforME
#wishtreeforyokoono

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Cynthia Johnson

@minetodo.bsky.social

1 year ago

#wishtreeforyokoono Wish by Cynthia Johnson (ME/CFS since 2009) #StandByMEcfs

Stand By ME/CFS!
We are banding together globally to raise awareness, demand health equity and seek a path towards the cure for ME/CFS.
Please lend your voice!
#StandByMEcfs #StillSickStillFighting #MEcfs #TeachMETreatME #EndMEcfs #GlobalVoiceforME #wishtreeforyokoono

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Pi

@pi-the-dog.bsky.social

1 year ago

“We shouldn't be out of sight, out of mind” - Una, South Africa - World ME Alliance Name: Una Alexia KarlsenPronouns: she/herAge: 42Home: Cape Town, South AfricaSick for: 20 years (Content warning: medically assisted dying) In 2020, during the Cape Town Pride parade, I collapsed, jus...

Una contributed this #GlobalVoiceForME profile of herself for World ME Awareness Day, 12 May 2024.

She died shortly thereafter, on 16 May, in Switzerland, with medical assistance, with me and her parents by her side, and with an outpouring of love and support from her friends and family back home.

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Cynthia Johnson

@minetodo.bsky.social

1 year ago

Stand By ME/CFS | Cynthia Johnson, Edge Prize 2023 #edgeprize2023 #2023prize_community_resilience #2023prize_systems_and_governance #2023prize_storytelling_and_knowledge_weave This video was created as a part of a submission to “The Edge Prize” www.edgeprize.org 2023 cohort. View and contribute to this project on Hylo: https://www.hylo.com/all/projects/post/59493 About the video & creator: My name is Cynthia Johnson and I am an ME/CFS activist. I am also an advocate for health care, affordable housing and disability rights. And I am an Edgewalker. Please watch my video and hear my story. Any help lifting the significant financial burden of chronic illness will allow me to devote more of my limited time towards this important advocacy. I have suffered from ME/CFS since 2009. As the #MillionsMissing come out of the shadows, we are banding together to raise awareness, demand health equity and seek a path towards the cure for ME/CFS. After decades of neglect, we are #StillSickStillFighting. I hope you will lend your voice and support to me/us in any way you can! I am happy to share what is working from the ME/CFS model of activism and could be replicated by other causes. We are building a model of how distributed organizing can move mountains. Through our collective storytelling, governmental advocacy work and transorganizational cooperation with a network of nonprofits, we are creating change. As ME/CFS activists and organizations, we work with a variety of stakeholders locally, regionally and globally. We continually share our knowledge and stories in new and creative ways. We are a resilient community and have learned to even advocate from our beds. ME/CFS stands for myalgic encephalomyelitis/chronic fatigue syndrome. Much of the world refers to it as just ME. To learn more, check out: MEAction Network (www.meaction.net), Open Medicine Foundation (www.omf.ngo), Solve M.E. (www.solvecfs.org) and the Bateman Horne Center (www.batemanhornecenter.org). – This video was created as a part of a submission to “The Edge Prize” www.edgeprize.org 2023 cohort. The Edge Prize is a bioregional community, accelerator, and prize challenge focused on Salmon Nation, a bioregion defined by the historic range of wild Pacific salmon, from the Salinas River in California, north to the Yukon River in Alaska. The goal of the Edge Prize is to: * Convene a group of extraordinary entrepreneurs, leaders, and innovators throughout Salmon Nation working on regenerative projects that benefit the lands, waters, and people of the bioregion — “The Edgewalkers.” * Invite them into a supportive community of reciprocity, mentorship, workshops, and collaboration. * Amplify their stories, in order to bring resources, collaboration, partnerships, and inspire others to start their own regenerative initiatives — in Salmon Nation and beyond. We are building a public-facing library of “what’s working” in Salmon Nation to help scale and accelerate regenerative practices worldwide.

Stand By ME/CFS youtu.be/s9cMmFDI4rk
Please watch my Stand By ME/CFS video! I have suffered from ME/CFS since 2009. Please lend your voice and support. Become an ally! With gratitude, Cynthia #StandByMEcfs #GlobalVoiceForME #StillSickStillFighting #MillionsMissing #EndMEcfs #TeachMETreatME

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@dgspsoa.eurosky.social

1 year ago

Titel der Karikatur: The Scales of Injustice. Zu sehen ist eine überdimensional große Waage. Auf der Waage befindet sich eine Plattform mit Geld von Government Funding. Rechts zu sehen ist eine Waagschale voll mit "Evidence of bio-medical causes of ME. Links befindet sich eine leere Waagschale mit "Evidence of Psychiatric causes of ME. An dieser Waagschale hängen drei Personen (Männer) der Psycholobby. Dadurch wird die linke leere Waagschale beschwert und nach unten gezogen. Infolgedessen fällt das Geld (Government Funding) von der Plattform auf der Waage in die linke Psycho-Waagschale.

#MyalgicEncephalomyelitis #LongCovid #MEAwareness #HealthEquity #MillionsMissing #WorldMEDay #GlobalVoiceForME #ChangeTheFuture4ME
#STOPtheHarm #FUNDtheResearch #STARTtheTreatment

Creator Unknown. Please tag for credit

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jo

@moerakijo.bsky.social

1 year ago

The background is white on the left hand side and blue on the right with a crooked line in the centre. On the left hand side are three people connecting and on the right is a person on their own and looking distressed. On the right hand side are the words NE/CFS affects social interaction. National Advisory on ME - ANZMES On the left hand side is World ME Day

ME affects social interactions ... Extreme fatigue, pain, and ‘brain fog’ often force us to cancel plans, limit outings, or withdraw from social activities altogether. This withdrawal can lead to feelings of isolation and loneliness as we struggle to conserve energy.
#WorldMEDay #GlobalVoiceForME

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jo

@moerakijo.bsky.social

1 year ago

Image is on a white background with a winding arrow starting on left hand side and tracking gradually towards top right corner. The arrow is made up of people wearing different coloured clothing. There are also individual people walking around the arrow in different directions. The wording on the image ME is a global health crisis.... Become a #GlobalVoiceForME World ME Day 2024

#GlobalVoiceForME

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jo

@moerakijo.bsky.social

1 year ago

World ME Day When pushing harder can make you sicker... Will you #LearnFromME this May 12th?

ME is a global health crisis. And millions more are getting sick following COVID-19 infections. It is estimated more than 55 million people worldwide are living with the debilitating effects of this condition.
#GlobalVoiceForME #WorldMEDay

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jo

@moerakijo.bsky.social

1 year ago

ANZMES – The Associated New Zealand ME Society

#ANZMES
#GlobalVoiceForME

anzmes.org.nz

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Millions Missing France

@millionsmissingfr.bsky.social

1 year ago

#MillionsMissing #MillionsMissingFrance #EncéphalomyéliteMyalgique #EM #MECFS #EMSFC #JeDisEM #WorldMeAlliance #WMEA #WorldMeDay #journeeinternationaleEM #OMS #Organisationmondialesante #GlobalVoiceForME

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Millions Missing France

@millionsmissingfr.bsky.social

1 year ago

💌 𝗔𝗰𝘁𝗶𝗼𝗻 𝗶𝗻𝘁𝗲𝗿𝗻𝗮𝘁𝗶𝗼𝗻𝗮𝗹𝗲, 𝘀𝗶𝗴𝗻𝗲𝘇 𝗹𝗮 𝗹𝗲𝘁𝘁𝗿𝗲 𝗽𝗼𝘂𝗿 𝗹’𝗢𝗠𝗦 !
Dans le cadre de la campagne #GlobalVoiceforME organisée par World ME Alliance, dont nous sommes membre, nous allons demander aux représentants de la France à l’#OMS de s'engager pour devenir porte-paroles pour l'#EM.

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@dgspsoa.eurosky.social

1 year ago

Log in or sign up to view See posts, photos and more on Facebook.

Or register to join us for the event on Zoom (limited spaces):
worldmealliance.org/2024/04/regi...

#WorldMEDay #MEAwareness #GlobalVoiceForME #MyalgicEncephalomyelitis #pwME
World ME Alliance

Source:
www.facebook.com/share/p/1peP...

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Tom Kindlon

@tomkindlon.bsky.social

2 years ago

World ME Day When pushing harder can make you sicker... Will you #LearnFromME this May 12th?

World ME Alliance has announced a theme/hashtag for World ME Day 12th May 2024: "Become a #GlobalVoiceForME." The website has tools to help folks post on social media and make custom posters. There's also an ME fact sheet, videos, and images that can be shared
worldmealliance.org/worldmeday/
#MEcfs

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Firstname Lastname #FuckTrump

@notunpackedyet.bsky.social

2 years ago

Mmmm it's almost World ME Day again. I know I should write something, stick it up on LinkedIn, make a fuss at work (get it on our intranet etc). www.actionforme.org.uk/news/a-globalvoiceforme-... #MEcfs #LongCovid #GlobalVoiceForME

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