@rthonwesstreeting.bsky.social
Coroners’ prevention of future death notices should not be ignored
#pwME should not starve to death or be wrongly institutionalised because no NHS specialist services exist for #severeME
Successive governments have known for decades
#JusticeForME
#HumanRightsAbuse
TW:
More deaths of #pwME 💙
@ashleydaltonmp.bsky.social
@wesstreeting.bsky.social
What are you doing about the decades-long human rights crisis of #SevereME? Why are we expendable?
@tessamunt.bsky.social
@davetuller1.bsky.social
@georgemonbiot.bsky.social
#JusticeForME #GreatestMEdicalScandal
… misunderstanding ME & seeing things like my unwashed hair etc as neglect rather than me preserving energy and ensuring I can still get to the toilet. We just can’t risk extra involvement unfortunately. Thank you for the #JusticeForME campaign, it gives me a lot of hope it won’t always be this way!
The government ignored UN warnings about the extreme harm to disabled people the ‘welfare’ bill would cause so I don’t hold out much hope they’ll show humanity here. Thank you for speaking out.
On a separate note, I’d really appreciate it if you’d read the comments about the #JusticeForME campaign:
8
We’re too ill to advocate for ourselves but often push beyond what’s safe (as I am) because if we don’t nothing changes.
@ashleydaltonmp.bsky.social you know all this. *You* have the power to change it and save lives. Why aren’t you?
#GreatestMEdicalScandal #JusticeForME #SevereME #HumanRights …
A horrid part of #SevereME is developing new worrying symptoms (eg. currently have breast rash & swelling) as you can’t get to a hospital. If you manage it, it’s dangerous due to prejudice & lack of understanding. Same issue with home-visits but you risk a ‘safeguarding’ report as well
#JusticeForME
Please, please read… this is so vitally important if you don’t know what #severeME *really* is.
Also Sue is brilliant and a wonderful writer!
#MEcfs #LongCovid #GreatestMEdicalScandal #JusticeForME #HumanRights
What I hate most is the squabbling & corruption. I’ve been bedbound by #SevereME for years & have to watch from the sidelines as people with ME die while so many in power waste precious energy on greed & self-interest. Where is the humanity? Why don’t they care?
#GreatestMEdicalScandal #JusticeForME
‘Feminist, Writer, Linguist. Wannabe diplomat with her Irish passport, a gift for Russian & a balanced interest in Israel/Palestine.’
#MEKills #PlanForME #JusticeForME #MaeveInquest
The #MEcfs community know exactly who this is…
#GreatestMEdicalScandal
#SevereME #JusticeForME
Do you have a spare room to rent?
Please rent to Anna and you’ll be helping someone in need at the same time!
(see below)
#Neisvoid #MEcfs #LongCovid
#SevereME #DomesticAbuse
#ChronicIllness #JusticeForME #UnitedForME #MutualAid #HomeShare #HouseShare #Melbourne #Australia #SOS
Thank you #JusticeForME! Please see the update via the link for more:
“… it was the positive response we were asking for. Without making any promises, the need for seamless NHS provision fit for meeting the needs of all people living with ME, regardless of disease severity, was recognised.“
#MEcfs
Seems to be a theme for the current government; make a plan but don’t back it with any meaningful money for it to actually work…
People have been knowingly dying of ME for decades & nothing is being done. There isn’t one specialist service in the NHS
#SevereME #JusticeForME #FundThePlan #LongCovid
Can you help in any way please:
@actionforme.bsky.social
@meassociation.org.uk
@thereforme.bsky.social
?
#DontletMEdie #SevereME #JusticeForME #UnitedForME
@ashleydaltonmp.bsky.social Please help people with #MEcfs – it’s one of the most serious, debilitating illnesses in the world
I’m not even the worst affected and I’m mostly bedbound and haven’t been able to go downstairs in my home for 2.5 years
You have the power to help
#JusticeForME #SevereME
@ashleydaltonmp.bsky.social Please would you take a look at this?
#JusticeForME #SevereME
@ris-law.bsky.social is there anything the #MEcfs community can do to help besides fundraising to help the #JusticeForME campaign please?
Many of us could share links to info or videos etc that may be helpful. If you tell us what you need, we will no doubt try to provide!
#ThereForME #UnitedForME
This brilliant video about the #GreatestMEdicalScandal has been out for a while but it’s worth reposting in case you haven’t seen it…
If you don’t know much about #MEcfs or #LongCovid, or aren’t aware of the shocking treatment of people, please watch & help advocate for us!
#JusticeForME #SevereME
Just had to reschedule an important medical appt because the energy required to prep for it (even with help) has worsened me too much.
#SevereME #JusticeForME
@chrisgpackham.bsky.social me too
#SevereME #JusticeForME #TakingThePIP
“… how systems keep people poor while pretending it’s their own fault”
This is the epitome of how disabled people are treated by the UK government.
#TakingThePIP #Disability #SevereME #ME/CFS #LongCovid #PACEtrial #JusticeForME #GreatestMEdicalScandal
2/2
➩ Imagine hospital being a dangerous place despite being ill enough to be in intensive care. This is how many of us live for years.
#ME/CFS #pwME #SevereME #JusticeForME #Justice4ME #LongCovid #MillionsMissing
⚖️ The #JusticeforME crowdfunding campaign is closing today - over £10K raised! To find out more & support 👇
Will you be near London’s Southbank Sat/Sun? Last days for @jeremy-jeffs.bsky.social powerful exhibit ‘Lives we cannot live’ sharing photos and stories of people with the devastating disease #ME/CFS
Free
11am-6pm
Oxo Gallery, Oxo Tower Wharf, Barge House St, London SE1 9PH
#JusticeForME #LongCovid
I rest my god d**n case
#JusticeForTuvix
#JusticeForMe
PREACH!!!!!
#JusticeForTuvix
#JusticeForMe
