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FDA official and rare‑disease patient recounts liver transplants and family caregiving At a Rare Disease Week town hall, a patient‑advocate who now holds leadership at the FDA shared a multi‑decade transplant journey, the role of living donors in his family's survival and how personal experience shaped his advocacy for data‑driven care.

After enduring a decades-long battle with a rare liver disease, one father's journey highlights the transformative power of living organ donation and the critical role of caregivers in the fight for hope.

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#US #CitizenPortal #LivingDonorTransplant #PatientAdvocacy

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🧠 “We make a living by what we get, but we make a life by what we give.” –Churchill
💙💚Grateful to join #SSMHealthSTL#MidAmericaTransplant for 2025 #DonateLife ceremony—honoring donor heroes, celebrating second chances, & sharing impact of our growing #LivingDonorTransplant program🤝🏽 #TeamTransplant🏥

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